Wow. What happened?

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JudithUK
Regular Member


Date Joined May 2008
Total Posts : 24
   Posted 6/4/2008 9:27 PM (GMT -7)   
Things are still happening to me for the first time since all this stated in January.
Yesterday, most of the pain in my knees and elbows just went away. Stomach pain too. My temp dropped from 99.5 to 97.4 and weirdly my period just stopped, when it shouldnt have done. I can run up stairs, and I ate solid food, not soup, for the first time in months.
I dont know why it happened or if it will last, but I like it.

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 6/4/2008 10:02 PM (GMT -7)   
Heres hoping it lasts a long ling time.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


survivor49
Regular Member


Date Joined Oct 2007
Total Posts : 241
   Posted 6/7/2008 12:14 PM (GMT -7)   
judith, that happened to me as well after about my 7th infusion of remicade. it felt like a miracle. it lasted a week and then happened again after my 8th and lasted 2 weeks. here's hoping that the 9th is even better. are you on remicade?

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 6/7/2008 12:23 PM (GMT -7)   
Hi So glad your feeling better hope it continues and wow you sure must have liked that solid food after all that time. lol gail

JenLS
Regular Member


Date Joined Apr 2008
Total Posts : 60
   Posted 6/7/2008 4:18 PM (GMT -7)   

Glad to hear you are doing well!  Hope it continues!


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 6/7/2008 5:25 PM (GMT -7)   
Glad your feeling so much better!!! What is your secret??? :-)
Living with Crohn's Disease since Jan./2000
But still trying to figure out if I truely have it.
(This is such a confusing disease)
 
Drugs I have tried:  Just about everything
 
Drugs I'm on right now:  Prednisone 40mg
 


Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/8/2008 6:05 AM (GMT -7)   
That is great, I say, dont question it enjoy it!  I am on my 10th shot of Humira and I feel the same, and almost a perfect poop!  NO side effects or reactions, just finally starting to kick in.  cheers!

Shoshanna
Regular Member


Date Joined Feb 2008
Total Posts : 91
   Posted 6/8/2008 10:10 AM (GMT -7)   
I am glad for you and hope that it continues...and I always don't question it just accpet it.
CD diagnosed 34 years ago
Stem Cell Transplant may be back on
Lap-assisted Ileocolic Resection- February 2008
Ankylosing Spondylitis
Uveitis
Back on Prednisone - I hate it
Methotrexate
Ranitidine HCL 
Prednisone 1% (eye drops)
Maxidex  (eye ointment)
Homatropine 5% (eye drops)
B12, Folic Acid, Vitaman D, Calcium


Jason D in MN
Regular Member


Date Joined Jun 2008
Total Posts : 54
   Posted 6/8/2008 12:54 PM (GMT -7)   
wanna send some of that good health my way? I always keep a little pred or entocort around the house... unfortunately last night I had to restart the steroids... (I'll let my doc know tomorrow... )

I hope your good spell lasts a very long time. I've had a few of those long runs of good health ... they're awesome... and like you you almost feel as if something is wrong and that you shouldn't feel *that* good.

take it easy!
-- Jason
Diagnoses? Crohn's in 1983; Kidney Stones in 1997; Reactive Airway Syndrome in 2002; Major Depression and GAD in 2003; Migraines in 2006; ADHD and IBS in 2007.

Current Meds? 6MP; Adderall; Wellbutrin; Zoloft; Albuterol (emergencies only); Fexofenadine; and Epidrin or Imitrex (depends on migraine severity...etc)

Overall: Things are So-So. In other words "It could be worse. It could be raining."


JudithUK
Regular Member


Date Joined May 2008
Total Posts : 24
   Posted 6/9/2008 12:32 AM (GMT -7)   
Well, the good spell lasted 5 days. The stiffness is back in my knees and elbow etc. It was a very short let up, but I forgot what it felt like to be "normal". My whole mood and demeanour changed and lifted. Its gone now but maybe it will come back.

rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 6/9/2008 4:14 AM (GMT -7)   
That's how I felt just recently on my 10 day pred trial. I couldn't believe how great a normal gut feels, didn't give digestion a second thought. It didn't last once I got off but now I know what is possible. I'm back on 10mg a day and not quite as good, but ok. Friday I start MTX (I think)

I hope you get to experience feeling good again soon
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin, sertraline, lyrica, 10mg prednisone, next???   


Portugal
New Member


Date Joined Jun 2008
Total Posts : 4
   Posted 6/10/2008 3:43 AM (GMT -7)   
hello.

I was diagnosed with crohn for 4 months ...
i'm pass very difficult moments ..
I am being medicated with corticosteroids (budesonido) but feel abdominal pain every day, all the time ....
Is this normal? there any medicine for the patient not have so many pains?
the symptom k worries me most is the same abdominal pain very strong ...
sincere compliments

JudithUK
Regular Member


Date Joined May 2008
Total Posts : 24
   Posted 6/10/2008 5:52 AM (GMT -7)   
I am new to this too. Post your question on the main crohn's forum for someone with more knowledge than I have. It is miserable trying to work it all out.
Good luck

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 6/10/2008 6:04 AM (GMT -7)   
Yes, it is normal to have abdominal pain with crohns. Most of us take some sort of pain killers.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...

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