Prednisone Question

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LBJ
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Date Joined May 2005
Total Posts : 511
   Posted 6/5/2008 7:49 PM (GMT -7)   
Its been a long time since I've been on this stuff, and I remember from years ago when I was on it that
while on it, I wanted to eat everything in sight, including the kitchen sink.  LOL      So why is it that I'm
on it now and I actually have the opposite happening??  I'm eating, but I can't eat much.  Basically my meals
are ending up being half of what I can eat when I'm normal and feel good.   I have the stuff feeling and
just can't eat anymore.   Should I be worried??   I'm definitely going to bring this up to my second opinion
doctor tomorrow when I meet him, but I thought I would ask here tonight too. 
 
Dawn

rootsmith
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Date Joined Jan 2004
Total Posts : 598
   Posted 6/5/2008 8:00 PM (GMT -7)   
I just read somewhere on this website that a person can react to prednisone in different ways at different times
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin, sertraline, lyrica  


SydneyJo
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Date Joined Mar 2006
Total Posts : 1354
   Posted 6/5/2008 8:02 PM (GMT -7)   
Hi Dawn,
With me I know it depends on how high of a dose of the pred Im on - the higher the dose the hungrier I am!
Do mention this to your Dr though , as you should with anything that doesnt feel "normal'. Good Luck tomorrow.
Take care
Joanne

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 6/5/2008 8:32 PM (GMT -7)   
Dawn, I had the same thing happen the last three times I was on prednisone. I actually lose weight when I am on the stuff now. Go figure....especially since I one gained 65 pounds while on pred.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


Shoshanna
Regular Member


Date Joined Feb 2008
Total Posts : 91
   Posted 6/6/2008 7:12 AM (GMT -7)   
I have been off and on prednisone for 34 years there have been times that I haven't put on weight. It depends on the dosage for me though. If it is low I eat normally. If it is high I like you eat everything and the kitchen sink looks good. hehehe

I would discuss this with the doc and see what he/she says.

Shoshanna
CD diagnosed 34 years ago
Stem Cell Transplant may be back on
Lap-assisted Ileocolic Resection- February 2008
Ankylosing Spondylitis
Uveitis
Back on Prednisone - I hate it
Methotrexate
Ranitidine HCL 
Prednisone 1% (eye drops)
Maxidex  (eye ointment)
Homatropine 5% (eye drops)
B12, Folic Acid, Vitaman D, Calcium


Jason D in MN
Regular Member


Date Joined Jun 2008
Total Posts : 54
   Posted 6/6/2008 9:50 AM (GMT -7)   
25 years off and on prednisone for me. Like most others appetite increase corresponded with dosage. It has always increased my irritability level. As of a decade ago, it began inducing anxiety/mania in me. (Pretty much full blown mania at 60+ mg/day).

Now I avoid it like the plague, unless I'm in the middle of an acute severe flare that won't respond to anything else. Entocort works "OK" for moderate flares, but it's still a steroid and has all the normal adrenal risks.

Also I've got osteopenia as a result of being on and off Prednisone so much.

As always keep your doctor apprised of *everything* that could be a side-effect.
-- Jason
Diagnoses? Crohn's in 1983; Kidney Stones in 1997; Reactive Airway Syndrome in 2002; Major Depression and GAD in 2003; Migraines in 2006; ADHD and IBS in 2007.

Current Meds? 6MP; Adderall; Wellbutrin; Zoloft; Albuterol (emergencies only); Fexofenadine; and Epidrin or Imitrex (depends on migraine severity...etc)

Overall: Things are So-So. In other words "It could be worse. It could be raining."


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 6/6/2008 7:50 PM (GMT -7)   
Every one reacts different to predisone the first time I was put on it was because I had gotten snake bite well I did fine was on it for a couple of months and winged off no problems.Later on when I was diagnosed with crohns my GI asked me if I have ever been on perdisone and I said yes and had no problems with it.Well as time went on I was gaining weight left and right and I had a moon face like you wouldn't believe.I was on it for right at a year and was winged off,then the next and last time I was on predisone I begin to have problems with my lungs and it turned out the predisone was doing oppsite of what it was suppose to do there for it caused me a lot of grieve and now none of my doctors will put on it nor will I left them.But every one is different.
Curley
.........
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 6/6/2008 10:46 PM (GMT -7)   
Side effects, your reaction, how it helps (or lack there of) can differ each time you go on pred, it's not exactly a stable drug when it comes to these issues that's for sure...for me it got to the point where it lost all of it's evvectivness too, which is also known to happen.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Crohny93
Regular Member


Date Joined Mar 2008
Total Posts : 118
   Posted 6/19/2008 6:02 AM (GMT -7)   
I have been on 40 mg of prednisone for a few weeks, and had 2 remi infusions, (doing ok) My doc wants me to go down to 30 mg, but i feel like its too fast. I was on 60 mg for 2 months. Is there a good tapering schedule that anyone followed?  

Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 6/19/2008 7:10 AM (GMT -7)   
Is it the actual Prednisone that can cause weight gain or is it the fact that the Prednisone increases appetite, therefore you eat more and put on the weight that way? I mean, if you take Prednisone and then ate like a rice cake every meal, would you still gain weight?
Diagnosed in October, 2004 at age 33.
36/F/SC
Current Rx's: Colazal (generic), Nexium (generic), Ferrous Sulfate, One-A-Day multivitamin, Culturelle Probiotic, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 6/19/2008 9:47 AM (GMT -7)   
Kittkatt, I think it can be both. The pred not only makes you hungry, but put on weight, and retain water! Not only that, I went in to it thinking I could control the hunger, or at the very least eat very very healthy items. That way I wouldn't put on weight. Yeah right! LOL It also has me CRAVING the worst kinds of foods, like salty foods and sweets! It's also something I've found very difficult, if not impossible to fight those hunger urges. You feel just starving.

That's been the biggest side effect for me. That and the "moon" face. In the beginning I was more irritable, but that has seemed to get better as I taper down. Going down to 15 mg this weekend, and I'm hoping the hunger stuff will start to get better too!


~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 20 mg, Asacol, Questran, Toprol XL (for high blood pressure).


Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 6/19/2008 11:15 AM (GMT -7)   
That's what I was wondering, too...if the amount of mg's of Pred made a difference in whether or not you got hungry or not or gained weight or not. I'm guessing it does make a difference.

I've been on 20mg before and tapered over 5 weeks...but 20mg doesn't seem to be a lot after seeing how much some on here have had to take. I never really got more hungry...although I felt much better so I did eat more than the mashed potatoes and Ensure I'd been on (bring on the Nachos!).

But more than anything, the 20mg made me not only feel better for at least a few weeks but I managed to get enough spastic energy from it to paint one of the rooms in my house! Now that I'm off it, though, I don't have any more energy to finish the rest of the house so I'm hiring somebody. :)
Diagnosed in October, 2004 at age 33.
36/F/SC
Current Rx's: Colazal (generic), Nexium (generic), Ferrous Sulfate, One-A-Day multivitamin, Culturelle Probiotic, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 6/19/2008 2:34 PM (GMT -7)   
I think so, I think the dosage probably matters a lot. The higher your on the more the side effects. My doctor even said he wanted me at 20 mg for that reason. I notice I'm losing my energy too though. At 40 I was bouncing off the walls, getting all kinds of things done, with little sleep. Yesterday I even took a nap, so that shows I'm going back to my usual "tired" self. Oh joy!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 20 mg, Asacol, Questran, Toprol XL (for high blood pressure).


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 6/19/2008 2:57 PM (GMT -7)   
Interesting... I've never had that much energy while I'm on prednisone... I feel tired all the time... *Of course, I haven't been getting sleep lately, so that's part of it*

Everything else, though... man... I hate side effects.
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 6/19/2008 5:14 PM (GMT -7)   
Sometimes I'm a little piggy when I'm on prednisone (I once went from 105 to 133 lbs) and other times I can control my appetite quite will. Right now is one of those times. I really haven't had much of an appetite but last time I started on prednisone (end of Feb) I ate everything in site! I don't know what the deal is, but my body reacts different each time I take the stupid lil white pills!
turboemma.blogspot.com/


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 6/19/2008 7:26 PM (GMT -7)   
Celey, that stinks that you never get that side effect. Having energy has been the only side effect that I actually enjoyed. The rest, not so much! Took another nap today, so yeah, coming down to 20 mg really zapped that away.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 20 mg, Asacol, Questran, Toprol XL (for high blood pressure).

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