Is there any evidence of a connection of Crohn's and Fibromyalgia?

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teenatoons1
Regular Member


Date Joined Aug 2006
Total Posts : 44
   Posted 6/8/2008 9:29 AM (GMT -7)   
Is there any evidence of a connection of Crohn's and Fibromyalgia?
I have both. I am SO tired! I have a light case of crohn's, but instead of attacking me itself, it seems to be attacking me in the break down of my immune system. I lost my job of 7 years because I get sick too easy. I am having a hard time finding a job. I am guessing it is because I miss too much work. Last night, my husband and I were at a wedding. We danced a slow dance , but the whole time we danced, I was distracted by the pain I was getting from him just holding me. It felt like he was giving me a bear hug, but he was holding me gently. I couldn't tell him, because we don't get to dance much, so I suffered through it. My six-year-old son doesn't understand the pain. He likes to roll on my back (log roll me). I have to remind him everyday. I am fortunate enough that my Crohn's is so light, my only pains are when I push on certain parts of my abdomen. I am also suffering with insomnia, exhaustion, and depression. sad My dr isn't really that helpful when I do go. I don't go unless I have to, because my medical bills are outstanding. Between my back and neck injury and my being sick all of the time, and no job, we have fallen behind in medical bills. On paper, my husband makes too much money for assistance. I don't take my med either, because of the cost. I have Lyrica Rx to me but I can't afford it. I hope my next posting is more light hearted. Thank you for reading this one. I know things will get better, but I am impatient.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/8/2008 9:36 AM (GMT -7)   
I don't know if there is medical evidence or not, but I know many of us suffer with it. I really feel for you, I can't imagine living with either condition without insurance and I am so sorry that life is throwing so many roadblocks at you. Yesterday was such a bad day for me with the fibro, tummy is in remission. My hands and feet hurts so much, today they are better, but now the neck, back and hips hurt. So I do relate to how you are feeling. I send you (((GENTLE HUGS))) and pray for better days ahead for you.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Shoshanna
Regular Member


Date Joined Feb 2008
Total Posts : 91
   Posted 6/8/2008 10:19 AM (GMT -7)   
Here is a website for you to look at: http://www.fibromyalgia-symptoms.org/fibromyalgia_crohns.html according to them there is.
CD diagnosed 34 years ago
Stem Cell Transplant may be back on
Lap-assisted Ileocolic Resection- February 2008
Ankylosing Spondylitis
Uveitis
Back on Prednisone - I hate it
Methotrexate
Ranitidine HCL 
Prednisone 1% (eye drops)
Maxidex  (eye ointment)
Homatropine 5% (eye drops)
B12, Folic Acid, Vitaman D, Calcium


LBJ
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Date Joined May 2005
Total Posts : 511
   Posted 6/8/2008 10:33 AM (GMT -7)   
I'm sorry your so miserable and suffering along with no insurance. That has got to be so hard!! :-( I don't know if it is but let me
tell you, I'm only 36 years old and my body right now feels like I'm 100+ and I'm going through a Crohn's Flare. I've been suffering
like this for a month now. It's awful and I don't wish anyone to go through this stuff we suffer from!!! ((((Hugs)))
Living with Crohn's Disease since Jan./2000
But still trying to figure out if I truely have it.
(This is such a confusing disease)
 
Drugs I have tried:  Just about everything
 
Drugs I'm on right now:  Prednisone 40mg
 


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 6/8/2008 10:40 AM (GMT -7)   
there is such a thing as an autoimmune cascade...
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...


Jason D in MN
Regular Member


Date Joined Jun 2008
Total Posts : 54
   Posted 6/8/2008 12:08 PM (GMT -7)   
I think what MMMNAVY is trying to say is that when people come down with one autoimmune disorder there is a chance they will have or acquire more through time. Crohn's being partially (or wholly depending on who you asking) an autoimmune dysfunction, it is entirely possible that yours are related. I'm sorry to hear about your rough situation. As for telling or not telling your family members when you're in pain because you haven't danced (or what ever) in a while, I think that's a tough call for anyone to make. I probably would have told, but then again i'm a socially clumsy S.O.B. so take that with a pound of salt... or more...
-- Jason
Diagnoses? Crohn's in 1983; Kidney Stones in 1997; Reactive Airway Syndrome in 2002; Major Depression and GAD in 2003; Migraines in 2006; ADHD and IBS in 2007.

Current Meds? 6MP; Adderall; Wellbutrin; Zoloft; Albuterol (emergencies only); Fexofenadine; and Epidrin or Imitrex (depends on migraine severity...etc)

Overall: Things are So-So. In other words "It could be worse. It could be raining."


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/8/2008 4:29 PM (GMT -7)   
A rheumatologist told me that a study had been done by the Mayo Clinic, and they found that people who had been treated (in their teens, from memory) with high doses of pred for long periods had an increased likelihood of developing fibro.

I was pretty drugged up at the time so don't remember more than that, and haven't been able to find any such studies on the internet, so I'm guessing the research was printed rather than put online. Still, I was a highly predded teen so it made sense to me.

Sorry you're feeling so tired.

I.
Co-Moderator Crohn's Forum.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 6/9/2008 5:33 AM (GMT -7)   
Hi Hope you get those meds soon. I see you have been recently DX with the fibro. So what meds do you take for your crohn's ? I know the feeling of children not being able to understand things hopefully he'll start rolling his Dad instead. How long have you not been sleeping and had the depression? Are you trying any relaxing methods? I seem to toss and turn alot lately so doesn't help with the sleeping. Smetimes though I sleep like a rock. Hope you feel better soon. lol gail

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4392
   Posted 6/9/2008 10:35 AM (GMT -7)   
Magnesium does exactly the same thing as Lyrica, but costs waaaay less. Magnesium deficiency has been linked to symptoms of Fibromyalgia, also. I was dx with Fibromyalgia and then when I upped my magnesium intake, the symptoms went away. If one form gives you "D" then try a different form. Some with Fibromyalgia find malic acid combined with magnesium to be helpful.

Take care,
-Razzle
Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD (Lupus?), Osteoporosis, Anemia, T- & B-Cell Lymphopenia, malabsorption/malnutrition, Lyme Disease (Igenex Lab IgM WesternBlot positive/CDC negative), etc.
Meds:  Pulmicort, Injectable Vitamin B12, Herbs, Nutritional Supplements, Homeopathy.


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/9/2008 10:52 AM (GMT -7)   

teenatoons1, I too have fibro. My muscle relaxer (Generic of Soma) is very inexpensive, I think less than $10.00 per month. The generic does work for me so maybe you can try something like that. I know it is tough, hot baths also work for me.

I also joined the National Fibro Assoc. Newsletter and get some info from that too.

good luck!

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/9/2008 11:03 AM (GMT -7)   
Ivy I think I just read something about that on Health Talk(?). I had put in my search engine joint pain and Crohns Disease and read that same thing that Fibro happens to alot of folks who took alot Pred in there teens. I was diagnosed at 18 and had two really big flares and was on Pred alot the first four years after my diagnosis and my Rheumy says she thinks I have Fibro, but I am starting to think its something else.

Karendee does the Soma help much? I am suffering something fierce with joint pain right now and even my Percoset is not helping much.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/9/2008 12:50 PM (GMT -7)   
Nanners, the Soma helps me a lot. I have some bad days ocaionally but now I can get up out of chairs etc with out severe pain. I was on flexerill at first and it stopped working and switched to soma. I think it helps a lot. I used to not be able to sleep from the pain and now I can sleep much better.

Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 


Chasity102304
Regular Member


Date Joined Nov 2007
Total Posts : 165
   Posted 6/9/2008 2:51 PM (GMT -7)   
I was dx with FMS in 03 before I really got sick with Crohn's. At one point it was so bad that my arms were completely going numb at random times...not good while driving or working with small children as I was at the time. I took Motrin (800mg daily) along with 30mg of Flexrall (sp?) which helped. Someting that is KEY to helping with pain and muscle spasms is controlling stress and getting enough sleep at night. I went from 2004 until 2008 with no FMS meds and felt great (with the exception of my crohn's issues which complicate things) but now that I'm 26 weeks pregnant and not sleeping well at all, my FMS is acting up. Even when I do get sleep, it's restless sleep and I never get to that important deep level of rest which is when your body rebuilds or restrengthens itself daily. I am having MAJOR muscle spasms in my back which bring me to my knees some days. It sucks!!! But I'm dealing with it until the baby is born and I can get back on track with taking something to help me sleep (something strong that is). GOODLUCK!!!!
Fibromyalgia DX March 2003
Crohn's DX Jan 2006 (Symptoms since 96-Misdiagnosed as "female" problems-Major flare during pregnancy in 05 which lead to DX)
1st resection July 2007
Currently on Remicade/8 weeks


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 6/9/2008 7:19 PM (GMT -7)   

 

 

      Once, you get one Auto-immune problem, you are much more likely to develop a 2nd & even a 3d.

      I don't have Fibro, but I do take Lyrica. Its said to be good for Fibro..

    Sincerely,

   Matthew


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 6/9/2008 8:15 PM (GMT -7)   
Razzle- what is the daily recommended dose for magnesium and malic acid? I'm new to the Fibro & could ask this on that board but since the topic came up.....

Nanners-I can tell you the tramadol (ultracet) for pain works soooo much better for me than the percocet. My rheumy told me that the percocet isn't as effective. I know it's nice not being "stoned" all the time from the percocet. He is also considering Cymbalta for me which is used for diabetic nerve pain in the feet as well as depression. I'm sure I'll have to take it at night cause I would be a terrible drug addict. If I took it in the day...somebody would have to wipe the drool off my desk!

I do know that long therapies of steriods can cause muscle atrophy (spelling? muscle wasting) over time. I would assume this is true for prednisone as well. I believe fibro is a result of the prednisone for us crohnnies not neccessary a secondary disease because we have crohns...IMHO.
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/10/2008 4:56 AM (GMT -7)   
Chasity102304 said...
Someting that is KEY to helping with pain and muscle spasms is controlling stress and getting enough sleep at night.
I toatally agree!!! If I get less sleep one night (which happens sometimes due to my CD keeping me up) I suffer the next day quite a bit. Stress seems to make everything worse for me so I try to keep that down but that is hard!
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/10/2008 6:58 AM (GMT -7)   
Broomhilda wish I could take the Tramadol but that stuff really upsets my stomach. I am one of those Crohnies with very sensitive stomach.

I would like to hear more about the Malic Acid/Magnesium dosages others are taking. How much of each?
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/10/2008 6:30 PM (GMT -7)   
Nanners, they discuss those supplements a lot on the fibro forum. Have you thought of popping over there and seeing what their members have to say?
Co-Moderator Crohn's Forum.


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 6/10/2008 7:32 PM (GMT -7)   

Here's a connection I found. Since getting well again from following an antifungal diet, I am a big believer in fungus being a cause of a lot of our problems. I guess you'd need to read it and decide for yourself.

 
Kim

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4392
   Posted 6/10/2008 11:58 PM (GMT -7)   
The dose of Magnesium & Malic Acid should be individualized ~ magnesium can have heart rhythm and GI side-effects if you get too much, but what is too much for one person may not be enough for another. Magnesium should be started at small amounts, and slowly increased to bowel tolerance (i.e., if you get "D," decrease the dose down by 1 pill/day until the "D" isn't an issue any more, then stay at that amount). Watch out for heart rhythm side-effects from Magnesium; taking Calcium with the Magnesium may help reduce the chance of this happening. Magnesium also can interact with some medications, so make sure to discuss possible interactions with your pharmacist (they know more about drug interactions than most MD's). Also, be sure to ask your doctor if it is safe to take Magnesium and Malic Acid ~ there are some health conditions that may be adversely affected by high doses of Magnesium or Malic Acid.

Food source of Malic Acid is apples, but a supplement can give you a more concentrated dose. I haven't tried Malic Acid myself (the Magnesium seems to do the trick for me to reduce pain), so I'm not sure how it works. However, I'm sure the folks on the Fibromyalgia forum here at HW can give you more info.

Good luck,
-Razzle
Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD (Lupus?), Osteoporosis, Anemia, T- & B-Cell Lymphopenia, malabsorption/malnutrition, Lyme Disease (Igenex Lab IgM WesternBlot positive/CDC negative), etc.
Meds:  Pulmicort, Injectable Vitamin B12, Herbs, Nutritional Supplements, Homeopathy.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/11/2008 3:09 AM (GMT -7)   
That's great info, Razzle. Thanks.
Co-Moderator Crohn's Forum.


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 6/11/2008 8:21 PM (GMT -7)   
Yes Razzle, it sure was great info! I do plan on talking with the Rhemy (my GI's husband by the way) about taking the malic acid....and the magnesium could be a problem. We'll see. I was not aware of possible heart rythm side effects so that is good to know too! Thanks again!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.


Robert P
Regular Member


Date Joined Apr 2005
Total Posts : 127
   Posted 6/11/2008 10:39 PM (GMT -7)   
Don't have Fribro but a product I came across a few months ago at a trade show was designed specifically for someone who does. My wife and I as well as many of our friends and family now use it as a safe alternative to pain meds for just about any pain/ache.

Muscle Mist from www.aromasensations.com

Other suggestions would be their Lavender and Ylang to help fall asleep and stay asleep.

Also recommend EFT (Emotional Freedom Technique) from www.emofree.com, www.tapping.com & www.tryitoneverything.com for, as the web site name suggests, just about any/everything. It's free, self-administered in minutes, has no side effects & it really works. Who could ask for more?
Robert

Dx Crohn's 1999; Started Flagyl 6/8/08 (500mg 3/day) in an effort to eliminate a persistent perianal fistula.  Aside from that have been drug free for a long time thanks to a number of lifestyle changes, much of which was learned from the Listen to Your Gut book.

"Coming together is a beginning.
Keeping together is progress.
Working together is success."
- John C. Maxwell


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 6/12/2008 8:43 AM (GMT -7)   
I sometimes wonder if this is what I have also. Especially with some of the burning pains I get in my hands and feet. Wouldn't surprise me at all if these two go hand in hand.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 25 mg, Asacol, Questran, Toprol XL (for high blood pressure).

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