Severe Stomach Pains

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Crohnie08
New Member


Date Joined Jun 2008
Total Posts : 10
   Posted 6/9/2008 6:10 PM (GMT -7)   
I am new to this forum, and new to Crohn's. I was diagnosed about 2 months ago.
I seem to be on the lucky side of this disease (knock on wood) so far. My main problem is a severe pain in my upper stomach. The pain is directly under my rib cage. My general doctor originally diagnosed me with acid reflux. My GI started my on Asacol and Entocort 2 months ago, but I am still in pain. I can't go to work, or really even function because it's so bad. Before I started on my meds I would also have nausea and episodes of vomiting.
I have no bathroom issues with my disease so far, which is why I feel like I have it pretty well. I have been reading this forum for about a month and have read a lot of your stories. I was wondering if anyone had the same symptoms as me, and what they did for the pain.
For the last 2 months I have been eating mostly "mushy" foods. I haven't thrown up since I started on meds, but the nausea and pain are still severe at times.
If anyone could give some advice I would really appreciate it.
Thanks!

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 6/9/2008 7:16 PM (GMT -7)   
Hello & welcome, have you had a colonoscopy yet? If you haven't maybe that would be a step in the right direction.

I always feel if there is pain and it is severe, it really needs to be checked out..... Good luck.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 6/9/2008 7:45 PM (GMT -7)   
If your pain is that high up ask your doc for a gastroscopy.
Dx'ed in 1999. No surgeries.

Current meds: 75 mg 6MP. 20mg prednisone.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/10/2008 6:46 AM (GMT -7)   
There is no cure for crohns.
____________________________________

Post Edited By Moderator (MMMNAVY) : 6/13/2008 2:41:07 PM (GMT-6)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/10/2008 6:50 AM (GMT -7)   
jg, first off welcome to Healingwell. Have your doctors prescribed any kind of antispasmotics? These are helpful for the painful cramps we all suffer with. Some of the most commonly prescribed antispasmotics are Bentyl, Levsin and Donnatal. Hope this helps some.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 6/10/2008 10:40 AM (GMT -7)   
I agree with Nanners on the antispasmodics.  My pain is a couple of inches above my belly button and has brought me to the floor in severe pain many times.  I've tried several anti-spasmodics and the one that has helped me the most is Librax.  I would definitely ask your doctor for an endoscopy/upper GI...mine showed gastritis, reflux and ulcers. 

...rejoice in our sufferings, because we know that suffering produces perseverence; perseverence, character; and character, hope.   Romans 5:3-4


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/10/2008 10:43 AM (GMT -7)   
Ooh ZenaWP I forgot about Librax. That one works well for me too, especially when I have the yucky gut with it.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


JudithUK
Regular Member


Date Joined May 2008
Total Posts : 24
   Posted 6/10/2008 11:29 AM (GMT -7)   
LIke you im new to crohn's. Pain just above the belly button. Only upset stomach every now and then. Eating mush cuts down on pain a bit. But not eating helps, but probably not healthy. I have lost nearly 3 stone since January.
I have an upper tract endoscopy next Thurs. But im afraid the pain is too low for them to find it.
Things in the UK move very slowly. Appointments are many weeks apart.

Crohnie08
New Member


Date Joined Jun 2008
Total Posts : 10
   Posted 6/10/2008 6:27 PM (GMT -7)   
Thank you everyone for the feedback. I actually have had an endoscopy, colonoscopy, as well as an upper gi series. The Crohn's is located in my illium. I don't know if that affects how bad this pain is. I will definitely ask my doctor about the antispasmodics. Like I said, I have been on the meds for 2 months now. How long does it take most people to start responding? I know with this disease it is hard to compare, but just wondering...
F/23 Diagnosed 4/07 with Crohn's
Currently on Entocort and Asacol


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 6/10/2008 7:18 PM (GMT -7)   
I would have thought your entocort should have cut in by now. I think if your pain continues at the rate it is, you
may need to discuss a stronger med like Humira.
My disease is in my ileum too, as it is for the majority of us. The pain I feel is felt usually in the lower right side,
but other times it will be more on the other side... I also get mid abdomen pain, if I'm beginning to obstruct.

I really feel you need to talk to your doctor again....
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/12/2008 2:30 PM (GMT -7)   
dunny2 said...
I would have thought your entocort should have cut in by now. I think if your pain continues at the rate it is, you
may need to discuss a stronger med like Humira.
My disease is in my ileum too, as it is for the majority of us. The pain I feel is felt usually in the lower right side,
but other times it will be more on the other side... I also get mid abdomen pain, if I'm beginning to obstruct.

I really feel you need to talk to your doctor again....

Ditto, I agree with everything you are saying, I am on Humira too 11th week and doing great. Get well soon jg!

Robert P
Regular Member


Date Joined Apr 2005
Total Posts : 127
   Posted 6/12/2008 4:45 PM (GMT -7)   
Let's be supportive here.
__________________
Rule 3

Post Edited By Moderator (MMMNAVY) : 6/13/2008 2:44:11 PM (GMT-6)


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 6/12/2008 5:09 PM (GMT -7)   
Hi jg Welcome to HW and hope you get as much help as I get from this site. I will say my crohn's was in my TI too and I had upper chest pain mostly when I had blockages. My small bowel was not letting the stool past threw and causing me alot of problems. The meds weren't helping me .I had to have a resection that helped, I did have BM issues though. Hope this helps some I do follow a low residue diet. Hope your GI can help you with this . lol gail

Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 6/12/2008 5:25 PM (GMT -7)   
Just wanted to say... Let's not get mean to each other and everything... Rob, I'm sure Nanners wasn't trying to be rude or offensive to anyone. She's a very nice person.

This disease is just very frustrating... and when someone claims that there is a "cure", it can be very upsetting because some things that work for others (puts them in remission, not cure them), don't work for someone else. And when someone is insistent about a "cure", it can make a person frustrated and angry because its almost like being accused of not doing everything you possibly can for your health.

Let's all just get along, okay? :)

And... welcome to Healing Well, JG. I hope you get to feeling better...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 6/13/2008 9:20 AM (GMT -7)   
I agree with Celey.  It has been discussed on here before that many of us think of the word "cure" as being something only used by someone who is trying to take advantage of us by selling us something that supposedly cures and incurable disease.  I do not think Nanners comment was rude or offensive or was intended as such; I think she was trying to warn chas that using that terminology may prevent his post from being taken seriously by all.  We are here to support each other.  I feel that any disagreement to something that has been posted has a right to be heard, but not in a manner such as Robert's post below.  Robert, you were upset that Nanners post was offensive and not in the spirit of this forum...what, then, do you consider yours to be?  Not trying to pick a fight...just voicing my opinion. 
...rejoice in our sufferings, because we know that suffering produces perseverence; perseverence, character; and character, hope.   Romans 5:3-4


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/13/2008 9:29 AM (GMT -7)   
We have alot of newly diagnosed people on this board. I do not want one more innocent person to be misled into believing there is a cure for Crohns. Because it is a fact that there is no cure for Crohns! Yes I am a slave to western medicine because it works FOR ME. Some have been lucky to be able to have their Crohns controlled with diet when medications didn't help. Some have been able to use natural routes. Some are finding success with LDN or one of the newer released meds. This is an individualized disease and people who doesn't even have Crohns themselves, can't come on this board and put out false information like that. I also believe he has been corrected on this more than once. I in no way was trying to be inflammatory, I was frustrated that this person who doesnt even have the disease is putting out false information. And thank you Celey for your constant support. As always I am here for you too.

Post Edited By Moderator (MMMNAVY) : 6/13/2008 2:48:34 PM (GMT-6)


RedAdmin
Veteran Member


Date Joined Aug 2003
Total Posts : 1017
   Posted 6/13/2008 10:15 AM (GMT -7)   
JG, because of how severe the pain is you mentioned and because of where you mentioned it is I am going to ask you to do a search and then you will have something else to ask your doc about.

The pain you describe, the location and the episodes of vomiting sound very much like my husband. For 18 years we thought that it was part of his Lupus. Well we recently went to a new GI, actually he saw my GI and we now have a dignosis. I will warn you that it is as hard to get as getting a CD dignosis because you have to rule out everything else first.

There is no test that can be done to say for certain if this is what you have or not, but I personally know that a name will get you a different response from ER.

Okay here is what I want you to look for Cyclic Vomiting Syndrome. I am not a doctor I am not telling you that you have this. I am asking that you look at it and talk to your doctor.

Good luck and keep posting.
Red (Lee Ann)
 Happy Bunny 
      When life gives you lemons, squirt juice in your enemy's eyes.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 6/13/2008 2:04 PM (GMT -7)   
Hey Ya'll,
Let's be supportive here, so I took out the personal attacks. Until a cure for crohns is found that is well regarded in a top tier peer reviewed academic journal, has been proven unconditionally, is an accepted by WHO/AMA/(etc.), and works universally, I would feel the word "cure" is being used inappropriately in this forum. The avocation of medical causes is not allowed on this forum. You can say that "I have had some success with this option." But one cannot say the same basic thing in every post. For example, "If you do or take this ___ then you crohns will be all better, and here is my story about it." That is not allowed. That is advocating.
Navy
________________________________________________________
4. Use good judgement. NEVER rely on information or opinions exchanged via the forums or chat rooms to replace necessary, personal consultation(s) with qualified health or medical professionals to meet your individual health or medical needs. Remember that what's right or has worked for one person may not be what's right for you.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/14/2008 7:50 AM (GMT -7)   
Thank you Navy~

Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Robert P
Regular Member


Date Joined Apr 2005
Total Posts : 127
   Posted 6/14/2008 1:44 PM (GMT -7)   
Navy – thank you for cleaning up what apparently was an unintentional attack in the form of miscommunication. You’re edit of my post is definitely a better way of saying what I was attempting to communicate.

Nanners – my apologies for my post being written as if you were intentionally being mean. I don’t know you enough to come to that conclusion one way or another so for that I apologize. It was really late, or shall I say early in the morning and this was my first time back on the forum in many months so I was unaware of any history that you’ve referred to and was reacting based solely on this thread alone. Please accept my apology.

Everyone – the perspective I was coming from regarding the word “cure” was based on the definition of cure rather than whether or not it had been officially declared that there was a cure for/from IBD/Crohn’s/UC/etc. Here are a couple of the meanings of “cure” according to dictionary.com 1) a means of healing or restoring to health; remedy. 2) a method or course of remedial treatment, as for disease. 3) successful remedial treatment; restoration to health. 4) a means of correcting or relieving anything that is troublesome or detrimental.

So, my assumption, and we all know what happens when we assume, was that this was the spirit in which the word was being used and according to these definitions it would be appropriate to state that one particular method or another brought about a cure for an individual because it would be stating that their health was restored and that their symptoms were relieved or corrected.

As several have stated, and I too wrote in my post that was so nicely rewritten, that we’re probably better off not using the word cure in this forum.

As many of us are aware this disease, or perhaps more our reaction to it, has a significant mental/emotional component to it (Mind-Gut relationship) therefore in my personal opinion if someone feels better about and reduces their risk of flaring by considering themselves cured then who are any of us to say otherwise. Having said that I still think it is in everyone’s best interest NOT to use that word here.

Hopefully I’ve cleared the air and done a better job communicating this time around. My apologies to any and all whom I offended or whom felt my original post was a retaliation attack.

To getting along and being supportive,
Robert
Robert

Dx Crohn's 1999; Started Flagyl 6/8/08 (500mg 3/day) in an effort to eliminate a persistent perianal fistula.  Aside from that have been drug free for a long time thanks to a number of lifestyle changes, much of which was learned from the Listen to Your Gut book.

"Coming together is a beginning.
Keeping together is progress.
Working together is success."
- John C. Maxwell


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 6/14/2008 2:40 PM (GMT -7)   
That's the spirit... :)
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 6/14/2008 4:15 PM (GMT -7)   
Robert, if using the word cure to describe a person's health status serves to reinforce the strong sense of denial that many with chronic illness struggle with, then I can see where not challenging that use of the word can be detrimental. While we are here to give support, sometimes you are at your most supportive when you challenge instead of when you just act as a booster.
Belleenstein:

30+ years living with Crohn's.


Robert P
Regular Member


Date Joined Apr 2005
Total Posts : 127
   Posted 6/15/2008 3:28 AM (GMT -7)   
belleenstein, I agree with your perspective in some situations but I'm not sure this one. If the person has eliminated their symptoms with a specific method and they feel better about considering themselves cured then I'm having a hard time seeing the harm in that. Now, publicly posting that message in a way that could be misunderstood, especially by newbies could definitely be harmful for the newbie. In hind sight I think I understand now that is what Nanners was trying to articulate I just took it wrong and over reacted. I'll do my best not to make that mistake again. Thanks to those who pointed out the error in my way and challenged me. :-)
Robert

Dx Crohn's 1999; Started Flagyl 6/8/08 (500mg 3/day) in an effort to eliminate a persistent perianal fistula.  Aside from that have been drug free for a long time thanks to a number of lifestyle changes, much of which was learned from the Listen to Your Gut book.

"Coming together is a beginning.
Keeping together is progress.
Working together is success."
- John C. Maxwell


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/15/2008 8:41 AM (GMT -7)   

RobertP no hard feelings at all.  That was exactly what I was trying to say.  I welcome family members coming here to find help for their loved ones who suffer with Crohns, but I don't like when they say "my ________ was cured of their Crohns by doing ______."  I don't one person to be deceived into thinking there is a cure for Crohns, because nothing at this time has been found to cure us.  Somethings may help us reach remission but not cure us.

jg, I am so sorry your post got highjacked, and I pray that you find some relief soon.  (((GENTLE HUGS TO YOU)))


Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

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