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dreamer06
Regular Member


Date Joined Jun 2008
Total Posts : 220
   Posted 6/13/2008 6:43 PM (GMT -7)   
I have had an anal fissure since october and I had surgery for it then.  But I have been leaking constantly nonestop since then.  It is begining to drive me slightly mad.  My doctors tell me they dont know when I will stop leaking.  At this point I feel like I will be wearing pads and leaking for the rest of my life.  I was wondering if anyone else has gone through this and how they delt with it?
 
Erin

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 6858
   Posted 6/13/2008 9:39 PM (GMT -7)   
Welcome to Healing Well, dreamer06! I'm glad that you joined us. Did you have an internal sphincterotomy, cutting of the internal sphincter? One of the more common complications of this surgery is fecal incontinence. I assume that is what you mean when you say you are leaking. What is the surgeon or your GI saying about this now that it has gome on for so long?

I have had fissures but none surgically repaired so I can't offer any suggestions about that. I did have my sphincter cut completely through and then sewed back together. This was during an emergency vag delievery where they had to get a baby with a too big head out quickly. That healed fine with no complaints.

I am so sorry you are plagued with the leakage - that has to be hard to manage. I hope that someone with more experience comes along to offer more advice.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, Sjogren's ?
 


dreamer06
Regular Member


Date Joined Jun 2008
Total Posts : 220
   Posted 6/13/2008 9:47 PM (GMT -7)   
I didnt have a sphincterotomy I had c-tons (not sure of the spelling).  Its just where they make an opening so the fisure can drain.  But the draining has gone on for so long.  My docotor says that he doesnt know how long I will be draining.  The fact that I am on staroids doesnt help any with the healing process.  Its just so frustraiting and physically and emotionally draining also.

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 6858
   Posted 6/13/2008 9:54 PM (GMT -7)   
Ah, good news actually!!!! A sphincterotomy that causes fecal incontinentence is a tough thing to correct. A seton drain can drain for a long time. However, some people have great success at getting the areas to close up and get their drains removed. I know we have lots of people that have or had setons. Hopefully they will be along to answer.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, Sjogren's ?
 


jlove71
New Member


Date Joined Jun 2008
Total Posts : 7
   Posted 6/14/2008 5:36 AM (GMT -7)   
 Just keep your head high, and your bottom in a sitz bath! No kidding, I've been dealing with double draining fistulas for most of the last ten years, with a couple periods of remmision only. It is a hard way to live cause I'm allways worried about leakage when I'm in a public place, and due to the pain of these little suckers, I am limited in my physical activity. Just try to stay positive and hit the sitz baths frequently. Good luck and hope your feeling better soon.

First major symptoms in '96, horseshoe fistula's and severe abdominal pain with BD shortly after. Diagnosed with Crohn's in 2001. Double fistulectomy in '02. Too many cut, drain and packs to mention.
Began Remecade in late '02, 5 vials every 4 weeks. 500mg Cipro twice daily, and 250mg Flagyl 3 times daily.


frar
Regular Member


Date Joined Jul 2003
Total Posts : 365
   Posted 6/14/2008 7:47 AM (GMT -7)   
I had a seton also and it drained until the seton fell out; about one year later. Sitz baths two or three times a day helped alot. Good luck and God bless.
F.


dreamer06
Regular Member


Date Joined Jun 2008
Total Posts : 220
   Posted 6/14/2008 1:53 PM (GMT -7)   
Thanks for all the advice its really helpful knowing I'm not the only one out there who is going through this.

kam#7
Regular Member


Date Joined Jun 2008
Total Posts : 125
   Posted 6/18/2008 11:11 AM (GMT -7)   
Baths, baths, baths! My doc had me taking at least 3 baths a day when I was dealing with awful fissures. I found a lot of relief after a few days. Good luck and stay in touch!
KAM
35 year old female - Diagnosed w/Crohn's 2002 - Surgery 2004
Currently taking:

  • Pentasa 500mg 3X2
  • Entocort 3mg 1X3
  • Immodium as needed
  • Zoloft 150mg 1X1
  • Wellbutrin 150mg 1X1
  • Seroquel 200mg 1X1


chubbaluv
Regular Member


Date Joined Apr 2004
Total Posts : 41
   Posted 6/18/2008 10:01 PM (GMT -7)   
I had my 3rd seton in the past 4 years in October and I had to get it tightened twice (can you say OUCH?) but 8 months later after the 2nd tightening it fell out just recently and I too have a little leakage going on.  My doc said to keep soaking and wait for it to completely heal/close which could take a few weeks.  I always where a pantyliner.  I don't know what guys do, but the pantyliner always saves me in public places and I usually have to change it just once a day, so I can't complain.  Hang in there.  You are not alone.  I kept telling myself that things could be worse, I could have more than one at a time, I could have it worse and not have any bowl control at all.  I'm enjoying my drain free butt right now for as long as I can!!!!  :)

whatsup.downthere
New Member


Date Joined Dec 2008
Total Posts : 5
   Posted 12/29/2008 7:28 PM (GMT -7)   
hello I just had to say, A simple test for the cause of fissures. Stay away from nightshade plantsand foods for 3 to 4 days see what happens or add them in after staying away from them for 3 to 4 days. Something to keep in mind for people with fissures. Anal swelling, itching, burning, bleeding, Fissures can be due to sensitivity to night shade plants. ( plants that grow at night; they are poisonous; - and by todays regulations would not be allowed if offered as a new food; such as potatoes, tomatoes peppers, eggplant; Oh and corn is a partial night shade -corn is in many things as corn syrup, fructose, oil, citric acid (from corn -yes from corn and widely used as a preservative ) from china. OH tests on rats for corn syrup reactions, showed: delayed male development, enlarged hearts, females low pregnancys to full term, severe liver problems as if an alcoholic, due to the liver having to process the corn syrup, while every cell can process sugar, oh and the brains slowed reaction to knowing the body has been feed. (obesity?)
rolleyes

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18188
   Posted 12/30/2008 12:16 PM (GMT -7)   
Use lots of epsom salts in your sitz baths, this should help heal the fissure(s)...and then gently pat dry and gently rub some extra virgine olive oil on the area.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


whatsup.downthere
New Member


Date Joined Dec 2008
Total Posts : 5
   Posted 12/30/2008 1:47 PM (GMT -7)   
Treatments sound good, lets find the cause and prevent them before they start. Many people are sensitive to nightshade, corn syrup, corn oil. Corn oil caused problems with the bladder. it was removed and soy oil took over. The corn was then used to make corn syrup, the results are now being felt. If you have an itchy burning anus? Join the no night shade foods plants club.
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