Did you take your first Humira shots at home or in the Doctor's office in case of allergic reaction?

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karendee
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Date Joined Mar 2007
Total Posts : 1642
   Posted 6/14/2008 8:30 AM (GMT -7)   
Sorry, I searched and did not see this question asked before in the meds thread.
 
Anyone care to give me advice? I am ready to self inject on Monday or Tues (after my TB test comes back clean) and my Doctor said I can just do it all at home for the first time so I don't have to go into the office.
 
I thought most people did the first 4 shots in the Dr office? Anyone think I would be ok at home w/ my hubby, my mom is visiting so she will be here too.
 
I was thinking of taking some benadryl just to be extra careful and be ready to call 911 in case I have a bad reaction.
 
Am I being overly cautious or being too scared over nothing?
 
thanks,
karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 


LisaLee37
Regular Member


Date Joined Apr 2005
Total Posts : 384
   Posted 6/14/2008 8:48 AM (GMT -7)   

Hi Karen,

I had my loading dose of 4 injections done at my doctor's office. He also had me come in for the next 3 separate injections. When I was on Remicade I developed drug-induced Lupus, so I think he was way over cautious!! But I guess it is better to be safe than sorry. My husband has been giving them to me at home for two years now and I have never had a problem.

If you are going to do them at home, I have been told to have an epi pen on hand.

Good luck! I hope you get some relief from the Humira.

 


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 6/14/2008 10:41 AM (GMT -7)   
My loading doses were done at my GI's office. They have everyone do the first injection/s there so the nurse or PA can make sure the patient is using the right technique etc. If you are use to giving injections then perhaps your doctor feels it should be ok.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, Sjogren's ?
 


potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 6/14/2008 10:49 AM (GMT -7)   
I went in for my first one (that's when they did only one to begin with) to have the nurse show me how to inject. I use the syringes not the pens. I always take Benadryl about a half an hour before. Good luck!

karendee
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Date Joined Mar 2007
Total Posts : 1642
   Posted 6/14/2008 2:34 PM (GMT -7)   
Looks like I should ask the nurse if I can come in and make sure I have my loading doses at the office.

thanks for the advice everyone! I guess I was right to questin it. I bet the Doc has no idea that the nurses have us come in
:)

Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 


Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/14/2008 3:20 PM (GMT -7)   

Hi Karen, I live in Northern Ont Canada and I had a nurse come to my house and show me how to do it.  There is team called Progress.  The head office is in Montreal. Not sure if the contract out of Canada.  Progress calls me once a month to see how I am doing and a 24-7 emerg line if I needed to talk to someone about any thing.  I do my own needles, didnt have a problem, I use the syringes, alot easier and painless.  There is a self injection information at www.humira.com shows you when and where to do it.  4 needles at the initial start is probably more than I want to handle alone.  My husband is in Advanced first aid incase but ask your doctor if a nurse is available.  Where do you live? Good luck, I have no reactions or anything, it just stings for a min and goes  away, no redness, nothing.  You'll be fine, piece of cake.

 


curley
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Date Joined Mar 2005
Total Posts : 4305
   Posted 6/14/2008 6:56 PM (GMT -7)   
I had my done at my Rheumy's office the first time and was showed how to give them to my self and I had no problems at the office or home.
Curley
.........
 


ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 6/14/2008 7:24 PM (GMT -7)   
I was given the first injection by a nurse at my GI's office; then my doctor stayed in the room while I gave the other 3 injections.
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08.


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/15/2008 7:03 AM (GMT -7)   
wow, thanks everyone! I will also check into the nurse coming to my home, I live in IL but my coverage is good so that might be an option
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 


Keah
Veteran Member


Date Joined Nov 2003
Total Posts : 7314
   Posted 6/15/2008 7:18 AM (GMT -7)   
Hey Karen,
Have you ever used Remicade? If you did without a bad reaction, you might be just fine with the Humira. Most of the people I've talked to or read about who eventually stopped Humira because of ill-efffects did so after have been on it for some time.

I had used Enbrel twice a week for about 18 months before eventually making the switch to Humira, so my Rheumy (who prescribed it for my joint problems) felt that I'd be just fine at home. Of course I only got one shot since it wasn't prescribed for CD. In any event, I had gotten terrible injection site reactions from the Enbrel and often had to use a steroid cream to settle down the HUGE ugly welts. The Humira has never done anything other than burn a little while I was injecting and on rare occasions leave me a little bit of an itch. I've never gotten any redness or swelling.

I think that you and your Doc need to decide what will be best for you based on your level of comfort and not on what others have done. If you are OK with some Benedryl and injecting yourself, then go for it. If not, there is nothing wrong with popping into the Doc's "just in case".

Although a few have reported not having the burning during the injection, most say that they do get it. A few helpful hints, regardless of where you choose to inject are : First, let the medicine warm up to room temperature. The colder it is, the more it burns. I usually give it 20 to 30 minutes on the counter. Second, you might want to hold some ice on the area for a few minutes to numb it before the injection. This is easy at home, but if you go in to the Doc's, you might want to bring along one of those disposable ice packs. You can pop it and get the area good and cold right before you inject.

I have been lucky enough to have noticable relief in my joints within 12 to 18 hours after an injection. Essentiallly, when I wake up the next day, I am much better. I can't tell you much about my guts though because they have been more well behaved than my joints. However, on the whole, my guts have NEVER been better than over the last 18 months that I've been using Humira. The episodes of D and severe pain are fewer and farther between than ever before. Although I can't honestly say that I'm in a remission, I am quite pleased with the overall relief that Humira has given me. I hope you get equal or better results.


Keah a.k.a. Wormy
 God helps those who help themselves.
Please help us support this invaluable forum.
Crohn's Forum Moderator

Post Edited (Keah) : 6/15/2008 8:22:32 AM (GMT-6)


mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 6/15/2008 12:14 PM (GMT -7)   
Abott Labs will send a nurse to your home to show you how to self inject.  You can find the contact info on their website or in the Humira starter pack which I assume you were given.  I plan on doing that this week--I'll let you know how it goes! Fortunately I was fine with Remicade for about a year, so I don't anticipate a bad reaction.


19, College Student, diagnosed June 2007 but feeling great
Remicade has worked wonders, now off the Prednisone!
Asacol made me worse


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/15/2008 5:31 PM (GMT -7)   
Keah, I was not on Remicade first. I am going straight to Humira for a few reasons (cost is one)

I am ok with injecting myself I just hate to get sick and have my kids see it... :) I might even want to also try the syringe and not just the pens if they have them. I have watched the video on how to inject on the humira website a few times so I am sure I understand it

I will bring myself an ice pack if I go to the Doc. that is a good tip, thanks!

Mkl11, I did not get the starter pack the Dr office was out of them. He is only at that particular office 1 time a week and they were out. I am sure I can go get one tomorrow. I also ordered one from Abott as well as a sharps container.

I did not realize they will send out a nurse. I may have to look into it. Please let me know how that works for you.

thanks all of you, this info has really helped me!
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 


mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 6/15/2008 6:44 PM (GMT -7)   
I would call 1.800.4.HUMIRA to see if there are nurses available in your area. They explained to me that once I got my medicine I could call their support services and they would contact a nurse who would get back to you in at most 24 hours. Then you can set up a time within the next few days to have the nurse come to your home. I'm pretty sure I contacted them through the general Humira number--I can't seem to find a direct number to the nurses. Anyway, definitely pick up the starter kit. It comes with a practice pen, a small ice pack, and a travel case, plus tons of of info.

Good luck with everything! Unfortunately, my insurance is refusing my Humira at the moment (even though I become intolerant to Remicade) so I am currently medicine-less, but hopefully it'll be soon when I can start. I will for sure update you.
19, College Student, diagnosed June 2007, Remicade worked for a year, now switching to Humira.  Asacol made me worse, and refuse to go back on Prednisone.  Currently on a low gluten/sugar conscious/minimal dairy diet to control symptoms.  Studying in Prague, Czech Republic for Fall 2008 but concerned about disease while abroad.


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 6/15/2008 9:48 PM (GMT -7)   
I did it at the doc office, but I was SO scared that I told them I had to do it with my nurse teh first time =)

I love her and she was very patient with me.

karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/16/2008 6:32 AM (GMT -7)   

thanks mkl11! I will call that 800 number. I am sorry your insurance is not covering the Humira. Mine says it does online but I may call today to be sure.

Aimee, thanks, I am a bit worried doing the first shots too. since there are 4 of them, yikes eyes

karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 


wahoo217
Regular Member


Date Joined Mar 2004
Total Posts : 55
   Posted 6/16/2008 3:00 PM (GMT -7)   
Hi,
 
I actually had my first 4 shots today! I went to the Dr's office this morning and the nurse showed me and my boyfriend how to do it. First we watched a DVD, which gave me such anxiety and then she showed us the technique. My boyfriend did the last 3. I was definitely VERY nervous but it went better than expected, I think. It did sting a little but by the time it was really starting to sting, the shot was done. I had the pens which I've heard hurt more than the syringe, but it really wasn't bad at all...and I'm a BIG WUS! Still not looking forward to the next 2 shots in 2 weeks, but hopefully it'll be worth it. Good luck!!!

not creative
Regular Member


Date Joined Mar 2007
Total Posts : 466
   Posted 6/16/2008 4:32 PM (GMT -7)   
I've done every one of my Humira injections at home. My fiancee does them for me, but it's always been at home.

Maybe this is naive, but the thought of allergic reaction never even entered my mind. I wouldn't worry if I were you.
Laurenne, 23 Student @ University of California, Davis.
Dx'd w/ IBS and CD in 2002
On Humira, Strattera, Zoloft, (Multivitamin, Flax Oil, and Omega complex when I remember.)


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/17/2008 11:11 AM (GMT -7)   
wahoo217, thanks it is good to know you did not have any problems. I have left messages with my Doc's office to see if I need to come in or not.
 
not creative, thanks for the reassurance. If my Doc wants me to do at home I might go for it.
 
Karen
 

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 6/17/2008 1:42 PM (GMT -7)   
My GI's office advocates only 2 initial doses instead of 4 - I didn't think about allergic reactions either, I just didn't know how to do it myself and learn better by watching =)

She did one and I did the other.

Been on it 15 months without one problem - I love this drug!

karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/17/2008 2:06 PM (GMT -7)   
thanks, Aimee, If I can get the nurse to call in the RX and call me back I would get this over with. they are taking forever. I love my doc but his staff is not always the best.
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/19/2008 2:26 PM (GMT -7)   
I just found out yesterday that my Dr office has an education department. I have an appointment next week to learn and inject my first loading doses. (June 25th). My Dr acted like I would not get instruction but the nurse called me and explained the whole process etc....

thanks for all the help everyone!

Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 

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