What do you find most helpful on HW ?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 6/14/2008 5:53 PM (GMT -6)   
Hi I like the fact others are so supportive and that there is a lot of variety. lol gail

potty pooper
Regular Member

Date Joined Dec 2006
Total Posts : 375
   Posted 6/14/2008 6:10 PM (GMT -6)   
I like sharing experiences and advice with people that truly understand what we are going through. Even loved ones don't truly understand.

Veteran Member

Date Joined Mar 2006
Total Posts : 1354
   Posted 6/14/2008 6:25 PM (GMT -6)   
I like the way we can have a laugh at this DD with people who actually find poop jokes funny and the support when doing it tough.

Veteran Member

Date Joined May 2005
Total Posts : 511
   Posted 6/14/2008 6:42 PM (GMT -6)   
I like that if I have CD related questions I can ask and everyone here understands. I don't have any family or friends with
this disease so I often feel alone.
Living with Crohn's Disease since Jan./2000
But still trying to figure out if I truely have it.
(This is such a confusing disease)
Meds I have tried:  Just about everything 
Meds currently on:  Prednisone 40mg

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 6/14/2008 9:23 PM (GMT -6)   
I love having a place to share my embarassing moments and crohns stories.

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 6/14/2008 9:25 PM (GMT -6)   
You guys listen!!! That for me is everything....

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts

Veteran Member

Date Joined May 2007
Total Posts : 1284
   Posted 6/14/2008 10:50 PM (GMT -6)   
All of the above... :)
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.

Veteran Member

Date Joined May 2007
Total Posts : 1488
   Posted 6/14/2008 11:13 PM (GMT -6)   
I like all of the above too and that there is an opportunity to see/hear all the different perspectives and individual choices of therapy and how each person learns coping skills differently. Sharing these experiences helps each of us grow and find our respective journeys through the maze.

Gail- It is also special to find friends like you too!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.

Robert P
Regular Member

Date Joined Apr 2005
Total Posts : 127
   Posted 6/15/2008 5:41 AM (GMT -6)   
All of the above and the collective experience the group brings. Centuries of experience. It's an excellent knowledge base. A place where people can come with IBD and not be embarrassed or afraid to ask questions and know that the answers they are going to get are the best, most honest answers they could possibly get because the people here don't have a hidden agenda, a profit motive, to tell you anything other than the honest truth of what's worked or not worked for them. In short it's all of you, the members of HW that make this such a helpful place. Thank you! Excellent idea for a thread topic gachrons.

Dx Crohn's 1999; Started Flagyl 6/8/08 (500mg 3/day) in an effort to eliminate a persistent perianal fistula.  Aside from that have been drug free for a long time thanks to a number of lifestyle changes, much of which was learned from the Listen to Your Gut book.

"Coming together is a beginning.
Keeping together is progress.
Working together is success."
- John C. Maxwell

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 6/15/2008 11:20 AM (GMT -6)   
All the friends I have made on here. I have learned more here than I have from my doctors,
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 6/15/2008 11:47 AM (GMT -6)   
Definitely the support, understanding, ability to "talk" freely without embarrassment... The fact that I don't feel so alone. In fact, on here I feel almost "normal!" (Whatever that is!) I'm very thankful for this group!
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--methylpred - finally off 6/15/08, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08, started Xifanan 5/24/08 
--single mom to 10-yr-old girl

Regular Member

Date Joined Feb 2008
Total Posts : 298
   Posted 6/15/2008 11:56 AM (GMT -6)   
I have learned SO MUCH since joining HW. The experience here is priceless! Before HW I only had my own experiences to go off of, now I know what is "normal" and what isn't. Plus, all the advice has helped me SO MUCH! Thanx guys, y'all ROCK!

Regular Member

Date Joined Jul 2005
Total Posts : 393
   Posted 6/15/2008 5:04 PM (GMT -6)   
I like that there is always someone who has been there, done that! Its helps not to feel sooo alone

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005--spread to ileum and small intestine as of April 2008. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently on Remicade every 8wks, 40mg Pred, Pentasa.

Veteran Member

Date Joined Dec 2007
Total Posts : 2113
   Posted 6/15/2008 5:41 PM (GMT -6)   
I love the fact that we are all supportive, that when we disagree we do so respectfully and don't hold grudges, I like the fact that the moderators are here doing their job to ensure that this remains a positive happy family and peace is maintained, I like the fact we usually do a good job of respecting and supporting our moderators, I love the fact their is always someone who knows more than I do and will share their knowledge, and someone generally needs a bit of knowledge or advice that I can give. Mostly I love that you are all here.

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 6/15/2008 7:54 PM (GMT -6)   

Not feeling alone....

also having people that know how it feels to have CD! That is priceless! Even my hubby has no clue how sick I can be...or how tired etc.

I honestly would have had a much more difficult 1st year without being able to discuss this stuff!



Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.


Veteran Member

Date Joined Mar 2007
Total Posts : 900
   Posted 6/15/2008 9:54 PM (GMT -6)   
I don't know what I would do without HW.... I would feel a real loss, like my arms or legs had been cut off. HW literally "holds me up " sometimes. I love this "family" even tho we have never met....the caring is genuine, the friendships real.
I love that people here understand ..... truly 'get it'.... Our family and friends do their best to support and understand but they really don't KNOW! "its the ...unless you've walked a mile in a man's shoes....thing !
Up until I found HW, I always felt that somehow, this was all in my head....the disease was real enough, but I always felt like I had brought this onto myself somehow ...for worrying too much, stressing too much, not eating right etc etc... and always felt like family didn't think it was all that bad...you know "pull yourself up, suck it up, it couldn't be that bad that you have to cancel an outing AGAIN!.
You've been my lifeline... HW is a GODSEND! and even when I'm not online, I think of everyone every single day!...but I end up being online regardless if I've had time during the day because I'm usually up at 3 a.m anyway and thank God you are here!
Love and prayers

and P.S. y'all make me laugh!!!
51 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.,RLS, arthritis

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 6/16/2008 7:00 PM (GMT -6)   
Reading all your reples and kindness is great and loving the friendships as well, the tall ships just sailed out today in Halifax. Being here is like sailing off to sea not always calm waters but lots of poo. Gotta love it lol gail
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, October 22, 2016 12:28 AM (GMT -6)
There are a total of 2,709,941 posts in 298,856 threads.
View Active Threads

Who's Online
This forum has 153377 registered members. Please welcome our newest member, vnvnnetvc98.
185 Guest(s), 8 Registered Member(s) are currently online.  Details
redseal25, bluelyme, abhi, Lymiemomster, Ljm2014, Another Worried Wife, DJMcPhee, celebrate life

Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer