Do you all know what trigers your CD flares??

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LBJ
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Date Joined May 2005
Total Posts : 511
   Posted 6/14/2008 7:53 PM (GMT -7)   
I was at my dad's today and talking to him about my recent flare issues.  He asked me if a certain
food trigers a flare for me?? There isn't one specific food that
starts my issues.  When my flares start, I usually wake up in the morning with a swollen knee
filled with fluid and then just shake me head and say "here we go again"   My joints start and
then within about a week I'm living in the bathroom. 
 
So I was just curious if the rest of you know specifically what starts your flares??
Living with Crohn's Disease since Jan./2000
But still trying to figure out if I truely have it.
(This is such a confusing disease)
 
Meds I have tried:  Just about everything 
Meds currently on:  Prednisone 35mg
 


georgialady
Veteran Member


Date Joined Aug 2004
Total Posts : 1169
   Posted 6/14/2008 8:48 PM (GMT -7)   
we are all alittle different with crohns--my main flare was caused by a blockage in upper stomach 3 more since then,dairy products cause some
of mine also ''stress''sometimes allergies changing seasons,winter,summer so on--spicy foods at times--as i stated we are all alittle different with
crohns disease--hope this helps some-

Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 6/14/2008 8:49 PM (GMT -7)   
Hmmm... Not sure if things trigger flares so much as they... aggravate them....

Chocolate is a big no-no for me...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 6/14/2008 9:15 PM (GMT -7)   
if we knew then we'd have a cure tongue

as peachypeach said, we're all different. you have to work out what triggers your flares for yourself unfortunately. super bummer.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 6/14/2008 9:34 PM (GMT -7)   
For me certain kinds of stress and certain foods are guaranteed to cause me problems. However, I still get the random flare now and again and have no idea what caused it.

dreamer06
Regular Member


Date Joined Jun 2008
Total Posts : 221
   Posted 6/14/2008 10:11 PM (GMT -7)   
I'm pretty new to all this. When you mean a flare do you mean just haveing a bad day with CD or do you mean a full relapse where you are in the bathroom and in major pain for weeks at a time? 

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 6/15/2008 12:28 AM (GMT -7)   
Stress. That's my biggest enemy. Certain foods can cause a bad day of D, but I don't think I've had a food cause a major flare up. It isn't always the same foods that cause problems either. I can eat something one time and be fine, the next look out! LOL
 
I really couldn't even tell you what brought on this last major flare up last month. I think it's actually been coming on for months. I was slowly losing weight for no reason, having more and more "bad days". Then it all came down on me. Wish I knew!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 25 mg, Asacol, Questran, Toprol XL (for high blood pressure).


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 6/15/2008 5:47 AM (GMT -7)   
I realize we're all different.  I'm not that dumb.  
 
Just thought I would ask.   eyes
Living with Crohn's Disease since Jan./2000
But still trying to figure out if I truely have it.
(This is such a confusing disease)
 
Meds I have tried:  Just about everything 
Meds currently on:  Prednisone 35mg
 


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 6/15/2008 9:29 AM (GMT -7)   
no one is calling you dumb. no dumb questions here. my apologies if i came off that way. it meant to be a tongue in cheek comment.

i have a hard time with corn, broccoli, cauliflower, and nightshade plants are iffy (eggplant, tomatoes). i need to watch my intake of leafy greens/high fiber foods, both in one sitting and total consumption in one day. i do fine with small portions. digestive enzymes help tremendously! i have found eating grains sparingly and avoiding processed and refined foods and sugars help a lot. gluten free seems to help too.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 6/15/2008 10:00 AM (GMT -7)   
Certain foods haven't triggered a flare for me. Basically when my body decides to flare, it flares. I have accepted the fact that I have to accept it for what it is...though it bites!

Certain foods can aggravate my flares, but doesn't make them worse. When I eat mexican I tend to have more blood in my poo than normal (and I love mexican)! I used to eat red meat a few years ago, until it made me RIDICULOUSLY sick and definitely aggravated my Crohn's.

Everytime I flare my mom tends to ask me, "What did you eat to make you flare?" and I simply have to explain that it wasn't what I ate, my body just decided to misbehave! Take Care!!
turboemma.blogspot.com/


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/15/2008 10:44 AM (GMT -7)   
Dreamer06 you have made a very good point. There is a difference between a true flare and just a bad day with Crohns. I think most of the above are just bad day or days because they ate the wrong thing or too much stress. To "me" a flare is when you develop the symptoms, the severe inflammation, D 10+ times a day, require more than just a few days of say a liquid diet to help clear things, they last for a much longer time, and they will definetly require medical assistance. Those 2-4 bad days to me are just aggravations due to having Crohns disease. I personally don't count those short times as flares. My flares have always taken at least a month to get back under control, not a few days. Hope that makes sense. JMHO
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 6/15/2008 1:46 PM (GMT -7)   
Caffeine will cause a flare for me. Can be coffee, tea, or cola. I imagine those caffeine-laden "energy drinks" would be very bad, but I've never tried them.

Anything that really irritates the intestinal wall would likely cause a flare. Some laxatives (ie Ducolax) will do that. No all laxatives are the "irritant" type. The kind they give you for colonoscopy prep are generally non-irritating.
Crohn's since 1988
3 resections

Post Edited (ozonehole) : 6/15/2008 2:49:17 PM (GMT-6)


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 6/15/2008 1:55 PM (GMT -7)   
I think there is a difference between symptoms and a flare. The problem is that the word "flare" is used on this board to describe a variety of conditions. To me, a flare is a sustained period of unwellness typified by an increase in the symptoms associated with disease activity. (For me that means an increase in night sweats, fatigue, pain, bloating etc Diarrhea is a constant for me now, so I don't count it as part of a flare.

Flaring, for me, has almost nothing to do with what I eat or don't eat, but when I am in a flare, that's when certain foods will tend to trigger symptoms. When I am not in a flare I am able to tolerate a much broader range of foods without an increase in symptoms, but there are still some foods that will guarantee that I see the washroom earlier rather than later (eg spinach) and some foods (corn) that will result in pain; and some foods (beans) that will cause me to bloat and feel uncomfortable, regardless whether I am in a flare or in remission.

I think we are all very individual in how we experience this disease.
Belleenstein:

30+ years living with Crohn's.


Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 6/15/2008 3:02 PM (GMT -7)   
Foods don't send me into a flare...I've only "flared" once since having Crohn's and so far that flare has lasted almost a year. Foods do aggravate my Crohn's when I'm already in a flare. I know a "true flare" is coming on when my ankles swell to the point I can't walk.

Back when I first started getting sick, not knowing what was going on, I now see I was in a MAJOR Crohn's flare. Just so happens at that same time my apartment became infested with mice - and the management kept calling me a LIAR until I started leaving the dead mice I caught on their doorstep! I can't STAND mice. These things were even visiting my BED!!!! It was awful and caused me EXCESSIVE stress. That was during the first flare and then I found out I had Crohn's.

I'd been doing quite well until last year when I built my first house. OMG...the stress of dealing with that was unbearable...things the builder promised that he never made good on...thousands of dollars WASTED...right around this time last year I was VERY stressed over an irrigation system that I didn't have any control over that was flooding my property. It was around that time I started getting into this flare I'm in now.

So MAYBE, just MAYBE, excessive stress is MY particular trigger!
Diagnosed in October, 2004 at age 33.
36/F/SC
Current Rx's: Colazal (generic), Nexium (generic), Ferrous Sulfate, One-A-Day multivitamin, Culturelle Probiotic, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 6/15/2008 9:50 PM (GMT -7)   
My flares only occur thanks to stress. I can pinpoint every single major flare to a stressful situation - almost always work related =)

I might have a day of pain thanks to a bad food choice but that's about it.

Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 6/15/2008 10:02 PM (GMT -7)   
I agree with Nanners.... I have good and bad days with CD... sometimes I'll have to go a few days on a liquid diet to let things calm down a bit....but a true flare for me means ending up in the hospital for a few weeks and being really sick for months on end. Last flare for me lasted about 8 months.
51 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.,RLS, arthritis
 
 


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/16/2008 6:44 AM (GMT -7)   
I don't have causes but I am starting to be able to tell when I am about to flare. I get really tired and have some constipation and pain before the flare. I have recently realized the C is a pre warning that lots of D is on the way...

Some things do make it worse but nothing seems to cause a flare that I can tell. I sure would avoid those things if I knew.

Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 6/16/2008 9:00 AM (GMT -7)   
I actually hate it when people ask me what I ate, like that always is why someone flares. Kinda makes you feel like you also had to do something wrong in order to flare up, that your body just couldn't have decided to do it all by itself. Even on just a bad day, I can't always nail it to a food. Sometimes I can, but not always. I try to remember most people don't understand, but it gets annoying sometimes when you are constantly asked what you did wrong that triggered a flare.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 25 mg, Asacol, Questran, Toprol XL (for high blood pressure).


Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 6/16/2008 2:48 PM (GMT -7)   
Ooh, I'm with Jen on that one, too - I can't stand for those who KNOW I have Crohn's to see me feel good one day and then sick then next and ask me, "well what did you eat? It must have been something you ate..." GRRRRRRRRRRRRRR! Maybe it was....maybe it wasn't. Maybe it was NOTHING! Maybe it was just the disease wanting to flare all by its little lonesome.

I don't know why that irritates me - I do understand that those without Crohn's can't possibly "get it" - but when I've explained it over and over...well, I guess that's why it bugs me.
Diagnosed in October, 2004 at age 33.
36/F/SC
Current Rx's: Colazal (generic), Nexium (generic), Ferrous Sulfate, One-A-Day multivitamin, Culturelle Probiotic, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date


Brig
Regular Member


Date Joined Apr 2008
Total Posts : 33
   Posted 6/16/2008 6:14 PM (GMT -7)   
Yes I HATE that also when you feel sick one day or are in a bit of pain one day and you are asked 'what did you do' 'what did you eat' 'are you suppose to eat that'. It is so frustrating!
My GI told me that diet will not make any difference to the real state of the disease and has nothing to do with it though a nutritious diet is helpful in restoring overall health and increases response to medication. In the begining it was nice to dream and listen to those telling me about diets that cured and I did try a few but reality kicked in as they didnt work for me.

petittarte
Veteran Member


Date Joined Apr 2006
Total Posts : 686
   Posted 6/16/2008 6:16 PM (GMT -7)   
The flare I had before this one was caused by a double dose of a Z pack for a nasty case of bronchitis. This current flare I haven't got a clue what started it.
Jodi

Remicade and 6MP


angelang40
Regular Member


Date Joined Sep 2007
Total Posts : 160
   Posted 6/17/2008 5:22 AM (GMT -7)   
i ate a pizza 2 weeks when i found out what sex of the baby my daughter was having ohhhhhhhhh how i wish i never now!!!!!!!!!might not get to egypt now one minute you can eat it the next you cant oh how i love this disease not!!!!!!!

br4d
Regular Member


Date Joined Feb 2008
Total Posts : 71
   Posted 6/19/2008 8:00 AM (GMT -7)   
i've given up trying to figure out what foods aggravate my CD.

lettuce and other leafy foods seem to be bad, and raw tomato mess me up pretty badly. but ketchup, tomato sauce, salsa, etc don't seem to.

i love spicy and mexican foods, and they don't seem to have much effect on me. i attribute most of my symptoms to stress.
.:brad:.

diagnosed in april 2002 during surgery for obstruction
meds: 50mg 6-MP, folic acid


Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 6/19/2008 11:46 PM (GMT -7)   
I ate popcorn at the movie theater about 3 weeks ago and bled for almost 3 days.
The other day I was craving popcorn again....had it and was perfectly fine. ! Go figure. !
51 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.,RLS, arthritis
 
 


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 6/19/2008 11:56 PM (GMT -7)   
Jen77 said...
I actually hate it when people ask me what I ate, like that always is why someone flares. Kinda makes you feel like you also had to do something wrong in order to flare up, that your body just couldn't have decided to do it all by itself. Even on just a bad day, I can't always nail it to a food. Sometimes I can, but not always. I try to remember most people don't understand, but it gets annoying sometimes when you are constantly asked what you did wrong that triggered a flare.

Oh yeah I agree!!  It makes me mad when family or friends ask me "So what did you eat that made you flare?"   nono
Thats a big no no with me!!! LOL
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS too
 
Meds I have tried:  Just about everything 
Meds currently on:  Prednisone 30mg tapering
                           Methotrexate injection 12wks
                           Folic Acid
                           Wellbutrin
No Surgeries
 

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