So sorry about your granddaughter. My daughter was diagnosised when she was eight but I know that her symptoms went back to birth and really started to show theirself when she was five and it took many drs and many trips to er and hospital stays to get a final diagnosis. Good news, I was told that sometimes when they get this young they grow out of it during puberty. So I am the only parent praying for early puberty. The bowel symptoms are calming down after two years but she has severe joint pain, high sed rate and tiredness and she has learned to cope the best a ten year old can. but I agree with the person that told you that you have a good rheumatologist to keep digging for the cause. Please keep us posted.
I would like to thank everyone who took the time to respond with comments.
My grandaughter will be seeing a GI monday 6-23-08 and I will post whatever the results are.
Thanks again for everyones comments and concerns.