I don't recall if Ive asked this but....

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songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 6/16/2008 12:28 PM (GMT -7)   
do any of you get acne? I mean like bad acne related to the Crohns but yet the dermatologist doesnt put 2 and 2 together??
 
I broke out with cystic acne 6mths before being dx'd in 05 and always had perfect skin before that. My nodules on my face come and go but never disappear for good and when I flare my face gets worse. The nodules are what most people say they get on their legs.
 
Has anyone else wondered if the 2 are related? cuz most people will tell you, acne is really from a  poor immune system.

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005--spread to ileum and small intestine as of April 2008. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently on Remicade every 8wks, 40mg Pred, Pentasa.


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/16/2008 12:39 PM (GMT -7)   
I wondered that also because the more under control my CD is the less acne I get. I actually had less acne when on prednisone but I also had less CD Symptoms then too.
 
I will see if my CD improves if my Skin does too. I wish I knew how to fix that cause none of the remedies I have tried work and I am too old for acne!
 
Karen
 
 

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 


MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 6/16/2008 12:43 PM (GMT -7)   
HS and crohns go together too.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...


songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 6/16/2008 12:49 PM (GMT -7)   
sorry Im ignorant---mmmnavy ...what is HS?

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005--spread to ileum and small intestine as of April 2008. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently on Remicade every 8wks, 40mg Pred, Pentasa.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 6/16/2008 12:58 PM (GMT -7)   
Hidradenitis suppurativa

"it's considered a severe form of acne (acne inversa) because it occurs deep in the skin around oil (sebaceous) glands and hair follicles."-Mayo Clinic

http://www.mayoclinic.com/health/hidradenitis-suppurativa/DS00818
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...


songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 6/16/2008 1:00 PM (GMT -7)   
wow thanks!!!! navy Ive been looking for a link on google forever---thanks sooo much

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005--spread to ileum and small intestine as of April 2008. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently on Remicade every 8wks, 40mg Pred, Pentasa.


songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 6/16/2008 1:01 PM (GMT -7)   
I guess maybe Ive read about this in the past, but thought it wasnt what I had cuz it doesnt mention the face area but it describes what I get on my face perfectly! I should take a pic for you all to see.  ;-(
 
oh and Ive had this too:
  • Scars and skin changes. Severe hidradenitis suppurativa may leave thick, raised scars, pitted skin or patches of skin that are darker than normal (hyperpigmentation).

  • Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

    Diagnosed with severe Crohn's colitis in May 2005--spread to ileum and small intestine as of April 2008. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently on Remicade every 8wks, 40mg Pred, Pentasa.

    Post Edited (songstress) : 6/16/2008 2:04:25 PM (GMT-6)


    pb4
    Elite Member


    Date Joined Feb 2004
    Total Posts : 20576
       Posted 6/16/2008 1:03 PM (GMT -7)   
    I don't (nor have I) had issues with acne and I've been flaring straight my entire 17 yrs...pred can cause acne issues, this happend to me once with being on pred, but it was on my back, not my face, tiny little acne.

    You could use a product called proactiv, they have a line that covers more than just face, they have body products as well.

    :)
    My bum is broken....there's a big crack down the middle of it!  LOL  :)


    songstress
    Regular Member


    Date Joined Jul 2005
    Total Posts : 393
       Posted 6/16/2008 1:07 PM (GMT -7)   
    awww pb4, I know what your talking about with the acne that comes with pred..this is TOTALLY different. proactiv cant touch these things. They are deep deep nodules that come to no head--I know disgusting. Been to a ton of dermatologists...nothing has ever helped..they wanted to put me on Accutane but its bad on the stomach

    Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

    Diagnosed with severe Crohn's colitis in May 2005--spread to ileum and small intestine as of April 2008. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently on Remicade every 8wks, 40mg Pred, Pentasa.


    MMMNAVY
    Veteran Member


    Date Joined Jul 2006
    Total Posts : 6927
       Posted 6/16/2008 1:12 PM (GMT -7)   
    I really think a dermatologist would be in your best interest here. Check out some of the pics on the net, unfortunately this is usually in areas that have skin to skin contact ie groin or underarm. I would not recommend using proactiv in this case, you need prescription meds that will not hurt your girly bits (assuming you are female) if it goes to your groin.

    But I do think (proactiv's) cleanser, toner, weekly or perhaps 2 times week acne mask, and then an oil free moisturizer is a good place to start (2 times a day). Most importantly I think a profession evaluation would be in your best interest.

    http://dermatlas.med.jhmi.edu/derm/result.cfm?Diagnosis=63
    Forum Co-moderator - Crohn's Disease
    We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
    Make sure your suffering has meaning...-?
    All suggestions/options/opinions are caveated with please consult with your local health care provider...

    Post Edited (MMMNAVY) : 6/16/2008 2:23:08 PM (GMT-6)

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