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styxgurl
Regular Member


Date Joined Jan 2008
Total Posts : 67
   Posted 6/16/2008 2:25 PM (GMT -7)   
 I have been flaring and am on 40mg of pred, I saw my gi today and ask for pain meds, well he tells me I am the only crohns pat. he has that asks for pain meds! so no i didn't get any. I really can't believe I am the only one......i feel like crying.....
 


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 6/16/2008 2:35 PM (GMT -7)   
that's bologna. my GI gave me all the pain meds I could ever use...and more!
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 6/16/2008 2:37 PM (GMT -7)   
You are by FAR not the only one who ask for pain meds!! Either go see your primary care doc,, or try a pain
clinic. Try and keep your chin up....
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


Shellz0711
Regular Member


Date Joined Jun 2008
Total Posts : 54
   Posted 6/16/2008 2:38 PM (GMT -7)   
Your doctor isn't the one experiencing the pain, I would like to see him have crohn's for a day then tell you that you don't need meds. I take percoset daily and have had severe pain since February. My doctor is very understanding and asks me how much I want or how much I think I need a day. I think you need to find a more understanding GI. for him to compare you to his other patients is wrong, everyone has different pain tolerances and everyone is affected by this disease differently. Don't let yourself suffer you deserve to be treated.

styxgurl
Regular Member


Date Joined Jan 2008
Total Posts : 67
   Posted 6/16/2008 2:44 PM (GMT -7)   
thanks for all the replys......thinking about changing docs.....just hate having to have all the tests done again.

 


songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 6/16/2008 2:52 PM (GMT -7)   
I got only a few words for you---find a new GI---what a crock of *bleep*!

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005--spread to ileum and small intestine as of April 2008. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently on Remicade every 8wks, 40mg Pred, Pentasa.


potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 6/16/2008 3:04 PM (GMT -7)   
I have had two doctors over the years and both told me that they did not want to prescribe pain medication. The reason both gave was that if the pain becomes very bad, they want to see me right away. Just my two doctor's worth. :-)

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 6/16/2008 3:09 PM (GMT -7)   
Your doctor is a moron.
Dx'ed in 1999. No surgeries.

Current meds: 75 mg 6MP. 20mg prednisone.  Udo's Choice Probiotics (30 billion).


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 6/16/2008 4:23 PM (GMT -7)   
WOW yeah that doesn't sound right. My GI gave me meds for pain, although they really didn't do anything except give me D,
I'm going to ask for something different when I see him this week. But yeah he has no problem giving me something if I need
it. I would find a new GI.
Living with Crohn's Disease since Jan./2000 but had a few years prior
Still trying to figure out if I truely have it.
(This is such a confusing disease)
 
Meds I have tried:  Just about everything 
Meds currently on:  Prednisone 35mg tapering
No Surgeries
 


Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 6/17/2008 3:55 AM (GMT -7)   
styxgurl -

You are not alone in this area. I posted here on the same topic sometime ago. Many GI docs for some unknown reason are like this, my last one included. Though I did not want to, I ended up seeing a pain management doctor. I took a copy of all my medical records in with me to that she would have a very good understanding of what I am going through. Pain is no good. Very difficult to hold down a full-time job and be in so much pain during a flare.

Good luck to you.


PS: Request a copy of all your medical records from GI and from any hospitals that you have been in, including ER visits, for your own records. Always a good thing to keep a copy for yourself.

styxgurl
Regular Member


Date Joined Jan 2008
Total Posts : 67
   Posted 6/17/2008 4:00 AM (GMT -7)   
Do you need a referal to go to a pain doctor?

 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/17/2008 6:40 AM (GMT -7)   
I have heard quite often that many GI's are notorious for not prescribing pain meds. I personally get all my pain medication from my primary care doctor. I think the GI's get concerned that the pain meds may mask symptoms or could cause your bowel to slow down. Still doesn't help when you are suffering so much.

With my health plan we do need a referral to pain mgmt docs. I would talk with your family doc and ask if he will prescribe pain meds, and if he won't, then ask for a referral to a pain mgmt doc. Good luck!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 6/17/2008 6:40 AM (GMT -7)   
I think you may do. Get that from your primary care if you have one.

One thing more, I know you are in pain, and you do need pain management. But I also think your GI also needs to look
into some different treatment regime for you. It seems to me that 40mg of pred is not cutting it anymore. Has he spoken to
you about remicade or Humira, for instance. Pain is an indication that something is wrong, and that needs to be addressed...

I hope you get the help you need hun....
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 6/17/2008 6:43 AM (GMT -7)   
can you maybe ask your pcp? i am so sorry you have to deal with such a wing nut! that's awful we crohnies have to fight for things like pain meds. i don't know how i would make it through some days without them. i hope you get the health care you deserve!

take care :)
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 6/17/2008 11:39 AM (GMT -7)   
I get my pain meds from my PCP also.
Vicky / 48 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (27) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


shylou
New Member


Date Joined Jun 2008
Total Posts : 15
   Posted 6/18/2008 6:10 PM (GMT -7)   
I to was denied pain meds was told it would not help but yet when I was in the hospitol they had me on delaton and percosets hardly ever take the pain away just takes the edge off. mad

Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 6/19/2008 4:24 AM (GMT -7)   
Well, just saw my new GI, older gent who was highly recommended. I was waiting to see what he would say about pain management - yep, very much against narcotics. Says they are bad. I politely said stop the pain, as I would love nothing more than to have to take the darn things. He looked at me funny then ordered some sort of blood test that I hadn't heard of and then a small bowel CT scan that they only have at Presby Dallas, again, that I haven't heard of. Then he told me he would try some crohn's meds the other doc hadn't tried Remicaid to start and Immurun (can't spell meds well!). I smiled and said thanks, held up both hands lifted one and said pain, lowered that one lifted the other and said no pain then waived the no-pain hand and said I will take the no pain along with pain meds, thank you very much. At least I got a laugh out of him but am down to five pain pills and 6 nausea pills and no medications prescribed from him yet - dread creeping into my thoughts. The nausea is almost as bad as pain too, ya know - ESPECIALLY at work!

Decided that GI docs are anti-pain people. If only there was a perm remission cure... then the hell with pills!!

Ya know who really peeve me? Pill seekers! If people didn't do that, then us folks who actually have need wouldn't be in this pickle.

Take care all,

-Leslie
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