Humira weekly vs bi-weekly. *Huge* difference

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CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 6/16/2008 2:46 PM (GMT -7)   
So last week, I was out of town when I was due for my Humira shot. Up until that point, I wasn't really sure that Humira was doing much for me. It turns out it was; just going three days passed when I was supposed to do the shot had me flaring big time. Doing the shot helped within a day, but I didn't get back to how well I was prior to going overdue on the Humira.
 
My prescription is written so that I get four syringes a month. So I waited a week after my last shot, and did another one. That was three days ago, and I feel better now than I have in a long, long time. Not just the Crohns symptoms are better; my arthritis pain is better, my joints aren't as stiff, and my lower back hasn't felt this good since I was on 40 mg of pred. Just an amazing difference.
 
For those of you that are getting some relief from bi-weekly Humira, but would like additional relief, you might want to talk to your GI about the possibility of once weekly Humira. For me, it's made a world of difference.
Just trying to be a "Regular Member".
 
Entocort 9 mg/day, Prednisone 20 mg/day, Pentasa 4 gm/day, started Humira 1/22/08, started 100 mg of Azasan (Imuran) 2/20/08. I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 6/16/2008 4:21 PM (GMT -7)   
WOW that's really good to know!! Is it ok to do weekly?? I think my GI is going to have me start on this soon. I am definitely going
to ask him about this. He's afraid to put me on it though because I failed on Remicade, but I need to feel better and I'm willing to take
this chance. He said we would talk about it more at my next appointment this week.
Living with Crohn's Disease since Jan./2000 but had a few years prior
Still trying to figure out if I truely have it.
(This is such a confusing disease)
 
Meds I have tried:  Just about everything 
Meds currently on:  Prednisone 35mg tapering
No Surgeries
 


CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 6/16/2008 4:38 PM (GMT -7)   
Most Docs will want to see a few months of successful Humira use before they'll approve it for once-weekly dosing. Talk to him/her about it, though.. it certainly can be worth it. :)
Just trying to be a "Regular Member".
 
Entocort 9 mg/day, Prednisone 20 mg/day, Pentasa 4 gm/day, started Humira 1/22/08, started 100 mg of Azasan (Imuran) 2/20/08. I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.


Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 6/16/2008 4:57 PM (GMT -7)   
I'm glad to hear this. I'm probably going to be starting Humira this week or next and I'm scared to death that bi-weekly isn't going to be enough. I don't know if my doc will give me the option of weekly injections, but I'm going to talk to him about it this week. They tried to do that to me with Remicade and I never lasted the length of time they said I "should" be able to go. I always needed it MUCH sooner. So... I'm glad to hear you're doing so well.

Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/16/2008 5:12 PM (GMT -7)   
Hey crohnsdaddy.  I am on the bi-weekly and it wasnt working as well and I saw my GI and he was not readily wanting to let me have weekly shots.  It seems 2 weeks I am fine then a shot and then 2 weeks I have LRQ pains and the cycle goes that way.  He says if it doesnt work I may have to have surgery....that will be the 3rd operation.  I told him no surgery yet, I want this summer to be a pain free one for a change, last year was Remicade allergy, summer before that 4 kidney stones.  So I opted to take Prednisone IF the Humira doesnt work.  He is going on holidays soon and my next appt isnt til Sept.  I was doing well.  Now I am flaring again, and it will be 3 months on the 28th of June.  Humira says it can take up to 3 months. So I will try til then.  The though of weekly injections scare the dickens out of me, and I am NOT ready for surgery.  Prednisone only works til you are down to 3 pills.  I am going to stay on Cipr and flagyl, only was taking either or a day.  Now taking one of each a day.  I was hoping the Humira would start working.  I dont know what to do, if it doesnt work by the 28th! Any suggestions?
 

LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 6/16/2008 5:19 PM (GMT -7)   
CrohnsDaddy said...
Most Docs will want to see a few months of successful Humira use before they'll approve it for once-weekly dosing. Talk to him/her about it, though.. it certainly can be worth it. :)

Oh ok...  Yeah I'm sure he will only want me to do bi-weekly at least for a long while.  He is really worried about me going on
it but I did tell him that I'm willing to try it.  Reading so many people on here who had Remicade issues and are doing great
on this so I'm all for trying it.  What's the worst that can happen?  I have a reaction to it and end up in the hospital like
I did the Remicade.  I can handle it.  lol  
Living with Crohn's Disease since Jan./2000 but had a few years prior
Still trying to figure out if I truely have it.
(This is such a confusing disease)
 
Meds I have tried:  Just about everything 
Meds currently on:  Prednisone 35mg tapering
No Surgeries
 


CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 6/16/2008 8:02 PM (GMT -7)   
Crohn's 4 ever said...
Hey crohnsdaddy.  I am on the bi-weekly and it wasnt working as well and I saw my GI and he was not readily wanting to let me have weekly shots.  It seems 2 weeks I am fine then a shot and then 2 weeks I have LRQ pains and the cycle goes that way.  He says if it doesnt work I may have to have surgery....that will be the 3rd operation.  I told him no surgery yet, I want this summer to be a pain free one for a change, last year was Remicade allergy, summer before that 4 kidney stones.  So I opted to take Prednisone IF the Humira doesnt work.  He is going on holidays soon and my next appt isnt til Sept.  I was doing well.  Now I am flaring again, and it will be 3 months on the 28th of June.  Humira says it can take up to 3 months. So I will try til then.  The though of weekly injections scare the dickens out of me, and I am NOT ready for surgery.  Prednisone only works til you are down to 3 pills.  I am going to stay on Cipr and flagyl, only was taking either or a day.  Now taking one of each a day.  I was hoping the Humira would start working.  I dont know what to do, if it doesnt work by the 28th! Any suggestions?
 
 
I'm sorry to hear you're not doing well. :( Crohns just *sucks*!
 
You might want to tell your Doc that you've been reading alot on the internet about people with Crohns taking weekly Humira shots, and that many GI's are approving it. It might light a fire under him/her to get the latest information on prescribing from Abbott Labs, and get more comfortable with it. Docs always seem very resistant to prescribing the "latest and greatest". Once they develop a certain "comfort level" that comes with time and experience, they loosen up a bit. Humira is still new enough that alot of Docs won't prescribe it *at all*. Mine was hesitant at first, but now he's a real Humira proponent.
 
You might consider firmly telling him/her that you *really* want to try it, and that if he/she wants additional lab work, office visits, or other precautions taken, you'd be glad to comply, but you really do insist on giving it a try. Also mention that you are well aware of the potential side effects and risks, but want to do it anyway. That little statement really seems to let me get my way with Doctors more times than not. :) Tell him/her that you would much rather run the risks of weekly Humira than another surgery.
 
Let us know how it goes!

Edit: I forgot to mention that Humira took a long, long time to help me at all. It was very slow, and very progressive. So slow that I didn't really realize how much it *was* helping til I went overdue on my shot. The initial effect was slow and progressive, but the additional benefit from the second shot was noticeable after *one day*. Probably because I'd already been on it five months.


Just trying to be a "Regular Member".
 
Entocort 9 mg/day, Prednisone 20 mg/day, Pentasa 4 gm/day, started Humira 1/22/08, started 100 mg of Azasan (Imuran) 2/20/08. I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.

Post Edited (CrohnsDaddy) : 6/16/2008 9:05:00 PM (GMT-6)


CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 6/16/2008 8:05 PM (GMT -7)   
LBJ said...
CrohnsDaddy said...
Most Docs will want to see a few months of successful Humira use before they'll approve it for once-weekly dosing. Talk to him/her about it, though.. it certainly can be worth it. :)

Oh ok...  Yeah I'm sure he will only want me to do bi-weekly at least for a long while.  He is really worried about me going on
it but I did tell him that I'm willing to try it.  Reading so many people on here who had Remicade issues and are doing great
on this so I'm all for trying it.  What's the worst that can happen?  I have a reaction to it and end up in the hospital like
I did the Remicade.  I can handle it.  lol  

I sure hope it works for you, LBJ. I've got my fingers crossed for ya. :)
Just trying to be a "Regular Member".
 
Entocort 9 mg/day, Prednisone 20 mg/day, Pentasa 4 gm/day, started Humira 1/22/08, started 100 mg of Azasan (Imuran) 2/20/08. I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 6/16/2008 8:16 PM (GMT -7)   
Hi, CrohnsDaddy, I know you and I started Humira within days of each other, and the weirdest thing, only yesterday
I told my husband that I wished I didn't have to wait another week for my shot, I really could do with it now. So you
kinda read my mind I think. I'm gonna call my GI and see what he says......
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 6/16/2008 8:56 PM (GMT -7)   
Yeah...the weekly injections made a huge difference for me too considering I can't take a full dosage of the Imuran. You make think I'm crazy but I feel better within 30 min. of taking my shot and then about 8-12 hours later fatigue sets in for about 48 hours but I'll take that anyday over the runs! So glad this is working for you!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.

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