My 23 year old daughter has perianal crohn's disease. She has had 2 or 3 abcesses and one fistula. She is currently on Remicade. It did heal up her fistula after the 3rd infustion, but she is now having some really bad joint pain and swelling. She is going to take an infusion this Fri and if the joint pain doesn't stop, she is going to stop taking the Remicade. It does wonders for some people and it has healed her, but at what cost?
Well, my abscess burst on its own last Saturday; lots of clear drainage right away and a bit more on Sunday. I saw my GP on Monday and she tried to create more drainage but all that happened was a crazy amount of pain and spent the rest of the day feeling electrical impulses up and down my body. Had some more drainage on Wednesday, but the size of the abscess is not changed. My course of antibiotics (cipro and flagyl) is over so I'm worried that the party isn't over yet. Anyone know if fistula is a danger?
jla: I have tried accupuncture to relieve arthritis in my wrists and fingers but it didn't work. However my sister tried it for plantar faciitis (basically a painful tendon problem in the foot from over use) and she said it worked in short term. I am sorry to hear about your pain and wish I had an answer (which I could use too).
I also have peri anal crohn’s and have been going through a lot this last year. I have crohn’s further up too inside my bowel but the peri-anal is smashing me at the moment – I have skin tags, fissures, a fistulas and an abscess which refuses to drain properly. I am currently on the waiting list for remicade and won’t get it for another three months.
My first surgery for the abscess resulted in 2 setons. Then a month later I had to have another ‘mushroom’ drain inserted because the setons weren’t draining sufficiently. Now, a month on from having the mushroom catheter inserted, I am having extreme pain again and can barely walk. Sitting is excrutiating. And I live alone, am 23 and trying to hold down a full time job.
All this time I have been on flagyl and amoxicillin; I don’t know how much they are helping but I have been on them for so long now!
Hopefully once I am on remicade it will help but until then I will be walking around with this tube poking out my butt and extreme pain and constant drainage. Such is life.
Post Edited (milliondollarbooty) : 3/27/2010 8:17:14 PM (GMT-6)