crohns surgery while pregnant?

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Christiny
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 6/17/2008 4:14 AM (GMT -7)   
I'm sorry I know some of you might be sick of reading my posts but I truely feel stuck between a rock and a hard place.


I was Dx in Jan with CD when a partial obsuction had me throwing up my own stools (yuk) I was hospitalized for 10days after a wash out and sent home on 50mg Prednisolone after 2weeks I was able to tapper down severe bloating had doc and surgeon convinced I needed more surgery so small bowel seris was done showing 2 stictures and a fistula with abnormal bowel loops. I was booked to have surgery 22/4/08 they said needed to do a right hemi-colectomy ok fine I didn't want too but felt no other option the prednisolone side effects were a nightmare so I was off them by 26/3/08.



Hubby and I had been trying for a bub for 8 years with two losses IVF and AIH and were told to stop trying till after the surgery but of cause my pre op test revealed we hadn't tried hard enough we are pregnant WOW. So the surgery was cancelled as I was only 5-6 weeks and re-booked 15/7/08 28 days from now and I'm freaking out.



I've had 5 losses in total and I have a son born 2 weeks early and a daughter born 12 weeks early. I had bleeding at 10weeks this time and D's with blood that has all stopped now I've had 3 B12 injections and the D's have gone too I can now eat some things that I once couldn't I feel ok little cramy I think you'd call it under my ribs when I sit mostly and nauseous and tired but I am pregnant so I think that could explain all that. I'm worried about pre-term labour as I have a history of it and with the Crohn's then add the surgery.



I dont want to lose this baby I'm 14 weeks now but no-one seems to hear me I dont want this op I dont want to put my baby at risk, can't it wait til after the baby is born. My doc doesn't want to give me meds but wouldn't they be safer for my baby than surgery, I want both of us to be fine isn't there a test that will show whats happening to my bowel now not 4months ago.



Has anyone here had or avoided surgery while pregnant what was the outcome



Scared to make a decision

Post Edited By Moderator (MMMNAVY) : 6/17/2008 8:17:18 AM (GMT-6)


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 6/17/2008 7:16 AM (GMT -7)   
humm I do not know, but if it is ok I am going to change the name of your post so hopefully we can get you an answer.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 6/17/2008 7:29 AM (GMT -7)   
Hi! Your situation sounds so scary. I just wanted to let you know that a friend of mine with a high risk pregnancy just had her appendix removed (emergency surgery) while she was pregnant. I think she was about 3 or 4 months at the time. Her previous pregnancy was an eptopic one that caused her all kinds of complications and infections after removal. She also has endometriosis. But, her and baby are doing great despite have the appendix removed. (She is now 6 months).

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 6/17/2008 7:32 AM (GMT -7)   
Hi Wow time is going by fast and glad to hear you are doing better. Sorry I don't have the answers your looking for but hope you can calm down and make this decision without too much stress.Where is your fistula? Hope things work out for the best. lol gail

Christiny
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 6/18/2008 6:01 PM (GMT -7)   
Unfortunatly they have not told me where my fistula is just I have one guess thats something I should have asked.
 
I have asked for an appointment with my crohn specialist but she away sick not sure when she'll be back really want her to recheck the need for surgery
have got an appointment with surgeon for 4/7/08 so I can quiz him even though his nurse said there was really no need.
 
The closer it gets to my op date the more nervous I'm getting trying to stay calm but not really working
Dx Crohn's 17/1/08
Dx Endometrosis 2002
Dx Lupus Anti Coagulant 2004
Prednisolone 30mg lowing dose 5mg per week
100mg Aspirin
Elevit Multi Vitamin
B12 Injections Weekly
Pregnant Due 16th Dec 2008
 
 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 6/18/2008 6:22 PM (GMT -7)   
What does your OB/GYN say? Will they work together?

belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 6/18/2008 7:54 PM (GMT -7)   
Christiny it is your body and noone should make you feel like you are being forced into surgery. However, you and your husband have to be prepared to really hear all the points of view and then make decisions based on what's best for you. Do your own research about medications and pregnancy etc. Find out what drugs are used (especially after the baby's neural and skeletal and organ systems are basically formed) and the risks. Don't expect your GI to know anything about what's safe for your baby. That's for your ob/gyn and pediatrian to figure out. Surgery is a risk, for sure, but so too is crohn's disease, especially if it is unstable. It sounds like you may have a fistula between two loops of bowel? You've already presented once with an obstruction. If the fistula is draining from the point of that obstruction the bowel there may be badly compromised. Are you in danger of perhaps perforating? These are the kinds of things you need to know in order to make your decision. Surgery is a major body stresser and no one wants to undergo a major surgery while pregnant, but you do not want to perforate and present with sepsis either.

So it sounds like you don't yet have the answers you need to make peace with the need to have surgery. Hope you can get the answers you need to make a decision that you can be at peace with.
Belleenstein:

30+ years living with Crohn's.


chubbaluv
Regular Member


Date Joined Apr 2004
Total Posts : 41
   Posted 6/18/2008 8:44 PM (GMT -7)   
When I was 29 weeks I developed an abscess, went on TPN until I delivered my baby girl at 38 weeks.  Nothing by mouth (except popsicles, hard candy and very little other options!!), received all nutrients thru the bag, had in home nurse care come and change dressings for line.  It was the hardest thing I've ever gone thru in my life.  But it saved my life and my baby's.  She was perfect and still is.  Had an ilecectectomy 5 weeks after she was born and have been in semi-remission for 5 years.  Make sure you are seeing a doctor that specializes in Crohns, not just a regular GI.  A regular GI wanted to put me on steriods and it would have killed us both.  Good luck to you and your baby!

Christiny
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 6/19/2008 12:25 PM (GMT -7)   
My OB/GYN said it's always preferable to avoid surgery when possible, but as she hasn't at this stage had contact with my GI just my general doc who passes most info back and forth.
My GI did say back in Feb that I was a risk of perforation but that was in Feb and I can't help thinking I've I got this far with meds since the end of March.
 
I am prepared to listen to my GI and Surgeon and their point of veiws but I just want it expained not just told I need the surgery
 
I have been trying to look stuff up about it all just not finding much.
 
 
Dx Crohn's 17/1/08
Dx Endometrosis 2002
Dx Lupus Anti Coagulant 2004
Prednisolone 30mg lowing dose 5mg per week
100mg Aspirin
Elevit Multi Vitamin
B12 Injections Weekly
Pregnant Due 16th Dec 2008
 
 


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 6/19/2008 2:09 PM (GMT -7)   
I am in the EXACT same boat!
I'm 12 weeks pregnant with active crohns and partial obstructions. Meds aren't helping very much.
I am also going to be seeing a surgeon soon. I'm hoping if I have to have surgery it will be done laparoscopically as it's less invasive.
I've also had bleeding problems from the uterus and am at risk for miscarriage.
 
 

bwrmom
New Member


Date Joined Jun 2008
Total Posts : 7
   Posted 6/19/2008 4:30 PM (GMT -7)   
I do not have any answer for you but I was reading what you are going thriugh and I am so sorry. I just had my baby two weeks ago and my husband was in the er because of his crohn colitis and I know it is so hard to have these kind of worries while pregnant. Take care I will be thinking of you

chubbaluv
Regular Member


Date Joined Apr 2004
Total Posts : 41
   Posted 6/19/2008 8:33 PM (GMT -7)   
Ask your Crohns doc about going on TPN - it stands for Total Parionatal(?) Nutrition, something like that.  It is brutal to not be able to eat for the duration of your pregnancy but it will stop all food from passing through your intestines and it will hopefully rest and your disease will quiet down.  I had an abscess ready to burst, and not allowing anything to get through the area (I was even restricted for liquid for the first few weeks) got me through to the 38th week so the baby and me were safe.  If the abscess did burst, we would both have not made it.  Of course, I am not a doctor, but it is an option to consider if it is something that will work with your specific situation.  After 4 weeks or so I was able to have popsicles, liquid food like Ensure, even eggs with white toast.  You'll work with a nutritionist that will put the exact amount of calories and fats you need in your IV bag to keep you and your baby healthy.  Putting the central line in isn't fun, but they will numb the area and it is a very quick procedure.  Hang in there.  I will pray for you and your baby.  Make sure your doctor is looking at every angle and option!
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