Can I donate an organ?

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jid
Regular Member


Date Joined Apr 2005
Total Posts : 103
   Posted 6/17/2008 8:09 AM (GMT -7)   
I have CD but I also have a friend who is in desperate need of a kidney. I'm consulting my Dr on this, but i wanted to know if any of y'all have ever donated or been given advice on donation. Part of me says that I don't need one of my kidneys. the other part says that i may need both to synthesize the drugs i'm on. But i'm no doctor. Is this a bad idea?

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 6/17/2008 8:41 AM (GMT -7)   
I have no idea but I think it is great you are considering doing this.

MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 6/17/2008 8:43 AM (GMT -7)   
I would think a lot would depend on the severity of your disease. Overall, there really are very few connections between Crohns and kidney function. Most of our meds are metabolized in the liver, not the kidneys. I would think you might be a good candidate for donation, assuming all the blood typing and other factors show you to be compatible. I'm just not aware of anything that would make it difficult for a Crohn's patient to operate on one kidney.

Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 6/17/2008 9:40 AM (GMT -7)   
Two things to consider. First, kidney involvement is a rare complication of Crohn's disease (I think approximately 1% of people with Crohn's develop renal amyloidosis). You might want to discuss with your doctor the potential kidney complications of Crohn's, and whether they would be more difficult to deal with if you only had one kidney.

Second, one or two cases have been recorded of people with Crohn's donating a seemingly healthy organ, and the recipient later developing Crohn's beginning in the donated organ. See this link:

http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=15306609

(I remember an additional report of a couple of cases, but can't find it now.)

Your potential recipient should be made aware of this risk.

Regardless of your ultimate decision, you are a very altruistic person and good friend to be considering this, especially considering your own medical challenges.

Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 6/17/2008 11:18 AM (GMT -7)   
I can't imagine that you'd be able to donate your organs.  I had asked my local blood bank if I could donate blood.  They said no because it still hasn't been determined exactly what causes IBD.  I know it's not exactly the same thing but I'd think it would have an impact on any decision of this sort.
Vicky / 48 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (27) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/17/2008 11:20 AM (GMT -7)   
I also heard we cannot be organ donors or blood donors because the cause of CD is unknown but maybe someone will have other research to dispute this. I hope you are able to dontate because that is such a great gift you would be giving.
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 6/17/2008 12:24 PM (GMT -7)   
I was told I could donate blood (but I have chosen not to for the time being). I think part of it would depend on how dire your friends situation was. If I was going to die if I didn't get a new kidney and could only take a kidney that may give me crohns, I would take it. And not just because I already have crohns. I would do the same for any managable chronic illness (asthma, diabetes, arthritis, etc.) I wouldn't blame the medical community if they save yours for a last resort but I think it would be better than nothing!

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 6/17/2008 4:09 PM (GMT -7)   
Hi One other point to consider is what kind of meds have run threw your body? There also are some vitties that are descreated threw the urine system.As a person with a disease I would certainly consider this and do lots of research. lol gail

petittarte
Veteran Member


Date Joined Apr 2006
Total Posts : 686
   Posted 6/17/2008 5:30 PM (GMT -7)   
I don't know about organs but I donate blood all the time even with the 6mp and Remicade.

Jodi

Remicade and 6MP


jid
Regular Member


Date Joined Apr 2005
Total Posts : 103
   Posted 6/17/2008 5:43 PM (GMT -7)   
Sadly, this gal is going to die if she doesn't get a kidney soon. She had one once that was good for about 10 years. Now she needs another one but the constant dialysis has caused her vains to collapse. So she isn't well. I spoke to the nurse today and I'll get the word tomorrow on whether i am a decent candidate for at least blood-work.

more to come...

broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 6/17/2008 9:11 PM (GMT -7)   
Jid- I think you are a special person to even consider this. I don't have an answer for you just proceed with caution in your decision. I also have decided not to give blood or donate organs upon my death. I couldn't live with the thought of giving a person this disease. Prayers are with you both.


On the lighter side of the topic of organ donation....I will donate my intestines to anyone that will have them.....I'm sick of them '"literally"! Bet I can't find any takers here!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.


Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/18/2008 7:40 AM (GMT -7)   
You are brave to donate your organs, I couldnt, I get kidney stones too often. I live in Canada and they will NOT let anyone with IBD to donate blood or plasma. And, I am not even a bleeder.

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 6/18/2008 9:36 AM (GMT -7)   
Just want to chime in jid -- it's wonderful that you are considering this. The gift of life, literally. I wish you and your friend all the good wishes in the world!

Shari
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--methylpred - finally off 6/15/08, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08, started Xifanan 5/24/08 
--single mom to 10-yr-old girl


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/18/2008 9:39 AM (GMT -7)   

jid, I hope you get the ok to help your friend!!! I also would take an organ if I was going to die even though it may give me a disease. She may even get a mild form of CD or none at all.

Good luck!

I also wanted to say what a great person you are for considering giving an organ!!

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 


jid
Regular Member


Date Joined Apr 2005
Total Posts : 103
   Posted 6/18/2008 2:08 PM (GMT -7)   
I just heard from the nurse. She said that the risk to me is too high. :( i'm kinda bummed. i really want to help this woman.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 6/18/2008 2:18 PM (GMT -7)   
Hi JID Sorry things are not going good. What are her chances of getting one from someone else ? How far on the donor list is she? Hang in there . lol gail

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 6/18/2008 5:42 PM (GMT -7)   
Sorry you got the bad news but glad they are looking out for you as well.

broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 6/18/2008 6:54 PM (GMT -7)   
I am sorry Jid...know that some things are just beyond our control. I'll keep praying for your friend.
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 6/19/2008 5:38 AM (GMT -7)   

Good Morning,

What a wonderful person you are to want to give one of your own organs, I want to thank you for being such a great person.

Because of the many meds people with Crohns Disease take or may need to take and the surgeries they may go through, giving up even one kidney could put you in jepordy.

We found out on a CT scan my husband was born with only one kidney so he has no fall back.  He is at high risk for surgery as any damage to his kidney would be devestating.

I will keep your friend in my prayers.
Kitt


 

Kitt, Moderator: Anxiety, Panic & Depression 
*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~


indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 6/20/2008 7:28 PM (GMT -7)   

I think it is great you considered donating an organ.  That is a very sweet and very giving thing to do!

I am sad to learn that having this disease means we cannot donate. 

I will keep your friend in my thoughts and prayers.  Please let us know how she is doing.

Hugs,

Indigo

 

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