I feel very fortunate to have the job I have. My boss is very understanding and I have kept him in the loop regarding my medical tests and appointments (maybe TMI, but I figure it is probably safer to be upfront about things instead of quiet). The restroom is just around the corner from my desk so that is really nice!
I do feel bad because over the past year, I have taken A LOT of time off here and there to go to my follow-up doctor appointments, especially for the eye inflammation. I do have the sick and vacation time though so that helps cover it.
I don't believe I have Crohn's really bad or anything like that, so I don't know what the future holds as far as working and stuff goes. I suppose only time will tell. I do recall though, when I went on prednisone a couple of months ago for my eyes, I was having HORRIBLE joint pain, to the point where it was painful to drive, walk, do anything! I would get home from work and just lay in bed till morning. Needless to say the prednisone helped a lot, and I am back on it again for my eyes, and I wonder what will happen when I end up back off of it again.
Having a "mean" boss is the absolute pits. No one should be shamed for having an illness, and ours is so public, with the bathroom issues and all. It is so good that you come here for support, because at least we understand that you can't "Take Pepto and suck it up". Can you transfer? Could you look for another job? I have pretty good job hunting skills, if you need help. As a boss, I have found that people usually don't abuse sick time, and if they do, they can be worked with. It is unacceptable to keep hassling you over a documented chronic illness. Grrrrr...