positive dbl stranded DNA...

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LynnRN
Regular Member


Date Joined Oct 2007
Total Posts : 289
   Posted 6/17/2008 10:01 AM (GMT -7)   
So,I'm waiting for my GI to call me,probaly have to stop the Humira,and increase back up to my Imuran,but I have been off of Humira for about two weeks now,and I have not had any increase in my GI symptoms,and my red arms,rash,and lacey purplish rash on my legs are gone,also a big decrease in my headaches. So,we'll have to wait and see,probaly one of those weird DIL reactions??? eyes

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/17/2008 1:31 PM (GMT -7)   
Sorry to hear you had a bad experience with Humira. I haven't used that med myself, but it sure sounds as though the reaction you had was not a pleasant one. Sure hope you get feeling better soon.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


LynnRN
Regular Member


Date Joined Oct 2007
Total Posts : 289
   Posted 6/17/2008 2:32 PM (GMT -7)   
He called back,it was the Humira,so I have to stop,wants me to go on Tysbari or Remicade,but I'm not willing to take those side effects,especially the brain issues with the Tysbari!! I see him next week for a discussion,I did great being on just the Imuran and Asacol,but  I have a stricture,and he's just afraid that those two drugs alone won't prevent me from having surgery one day,so I'm sooo confused,been in tears most of the day!!

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 6/17/2008 3:42 PM (GMT -7)   
Hi Lynn I was very upset when I had to stop the Rem. and by the time I had to stop the Imuran I had adjusted some to the med changes. Lynn a resection isn't that bad if a person has to have one and I know I cried when the Dr. started talking about it. Gee sometimes a person feels like they just cain't try enough. I know the Hum. seemed to be working for you and I can understand your frustration. There are other meds and options so hang in there you"ll get things going better. lol gail

LynnRN
Regular Member


Date Joined Oct 2007
Total Posts : 289
   Posted 6/17/2008 4:14 PM (GMT -7)   

I guess my biggest issue is that once put on the Imuran about 2-3 years ago,my symptoms improved drastically,I didn't even tell any better improvement with the Humira,so I guess I'm trying to  say,is,if I have had no change in my symptoms,why should I even consider Remicade or Tysbari??

Those side effects,even rare,are horrendous,and scarey,I'm so afraid my GI is going to really put pressure on me when I talk to him sad


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 6/17/2008 5:09 PM (GMT -7)   
Hi I know how you feel I am doing a battle at times with just wandering what to do with myself. Not any advice here but I am sure in time you"ll decide on some sort of option. lol gail
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