To those diagnosed with AS

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Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/18/2008 9:44 AM (GMT -7)   
I am going back to my Rheumy today.  Finally!!!  I have been waiting 4 mos to get back in to see her.  We had to break for a bit because I had my knee surgery.  Before my knee surgery I had a MRI (ordered by her), and one thing that was noticed on this MRI other than the torn cartilage was that I had significant wear on my bones for someone my else.  It was like someone who was at least 15 years older than I am (currently 50). 
 
My question is even if you are negative on the blood tests can you still have AS?  I have alot of problems in my low back and hips.  Actually my joints hurt worse than my gut most days.  I am going to ask for a MRI of my low back and hips to see what kind of wear/damage I have in them.  I have had some regular xrays and they just say I have some osteoarthritis.  I would think that Percoset would help with that pain, but most days it just takes the edge off.  Also, does AS have flares too?  i.e. Like do you have good days and bad days?
 
And finally do you have any suggestions/questions you think I should ask her?
 
Thanks for your help in advance.  My appt is at 2:30 pm PST.
 
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/18/2008 9:51 AM (GMT -7)   

Nanners, I hope you get the answers you need. I also still think I could have AS and can't figure it out.

I think Keah was negative for the blood test. She was the one that answered all my questions about AS.

I found a lot of info here:

http://forums.spondylitis.org/ubbthreads.php?ubb=cfrm

 

good luck!  Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/18/2008 1:42 PM (GMT -7)   
Thanks Karen that was really helpful. Let's see if I can get those MRI's ordered now. I think I have read that those are the best to diagnose AS as regular xrays don't show as much.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 6/18/2008 3:41 PM (GMT -7)   
The appearance of sacroiliitis [inflammation of the sacroiliac joint] is really the hallmark sign of Anhylosing Spondylitis. Xray evidence does not appear until much damage and fusion begins therefore a MRI is the best way to examine the SI joint for inflammation. HLA B27 is one of the tests that they sometimes use to aid in making the diagnosis of AS but it is really not that useful. Many people with AS are HLA B27 positive but you can also have AS and be negative. Aslo, many people carry the HLA B27 but do NOT have AS. I believe HLA B27 occurs in about 8% of people of European descent.

Now, you can also have significant spinal involvement, large joint involvement, and enthesitis [tendon insertion point problems] without having AS. This is called spondyloarthropathy associated with Crohn's disease. This often acts independent of Crohn's flares. In fact, my original diagnosis was spondyloarthropathy [SpA] with enthesitis. My gut was in remission and the joints flared like crazy. In fact this is now a worse problem than the CD. Eventually the right SI joint got into the act and became inflamed, thus the move to calling it AS. My rheumy says that SpA and AS are essentially the same - the treatments for them are the same.

I have to unload my groceries, but I'll try to get back here later and offer up some suggestions of things to ask her
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 

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