fluttering after ilecectomy, have you every experienced?

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Regular Member

Date Joined Apr 2004
Total Posts : 41
   Posted 6/18/2008 10:49 PM (GMT -6)   
Hopefully I'm spelling it right but after having a resectioning 5 years ago, lately I feel like I'm 5 months pregnant, not in size, but with movement in the area where the surgery was performed, the lower right side.  It feels like a baby kicking/moving around and it is strong and strange, not painful at all tho.  I'm going to call my doctor and ask but has anyone else experienced this kind of feeling after surgery?  I'm thinking it's scar tissue (sticking and releasing) somehow but hopefully it's nothing to worry about
Also, someone once told me that you would have to have surgery again every 10 years if you've had it once in the same area.  Any truth/proof of that with anyone as well.  Just curious.

Veteran Member

Date Joined Feb 2007
Total Posts : 1010
   Posted 6/19/2008 6:20 AM (GMT -6)   
I've had two resections -- 1993, 2005 with a laparotomy with adhesion release in 2002 that should have been a resection (my symptoms returned within five months). So I sort of follow that principle but -- and it's a big but. With new medications and changing standards of care, I believe that if you are appropriately managed (treat inflammation even though symptoms might be mild) you can significantly slow down the formation of the scars that lead to stenotic fibrosis of the bowel and eventually obstruction.

As to the fluttering, yes I get this and it usually correlates to my disease activity. When I am really well, I experience it only rarely. As i begin to relapse it becomes more noticable and more frequent and when I'm really sick, I have so much activity going on I feel like I'm six, seven months pregnant. And I don't mean the flutter of butterfly wings, I mean arms and legs poking and prodding.

30+ years living with Crohn's.

Regular Member

Date Joined Apr 2004
Total Posts : 41
   Posted 6/19/2008 8:03 AM (GMT -6)   
Mine does feel like kicking/arms & legs.  I guess I should call my doc.  It's not constant but probably around 10% of my day.  I've been dx now 8 years.  It feels like a lifetime.  30 years for you, bless your heart.  Thanks for your reply.

Mormor Vicky
Veteran Member

Date Joined Mar 2007
Total Posts : 684
   Posted 6/20/2008 11:41 AM (GMT -6)   
I would have that after my resection. It felt like a cell phone vibrating inside me. I was thinking it was some nerves or something mending.
Vicky / 48 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
Daughter (27) also has Crohn's since she was 12.
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor

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