Crohn's veterans: do you have concern about cancer?

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EruditePaul
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Date Joined Jan 2006
Total Posts : 266
   Posted 6/19/2008 7:08 AM (GMT -7)   
I have had Crohn's Disease for about 15 years.  My disease has been relatively mild throughout the years.
 
I often come to this forum for information.  But I rarely found people discuss cancers here.  I heard that Crohn's Disease increases the risk of intestinal cancers, though the life time accumulative risk is less than 10%.  Are you concerned about the risk of small bowel and large bowel cancers?  Are you going through regular check-ups to rule out cancers?
 
Thanks
 

Diagnosed with CD in 1994;

Have being treated with Chinese herbal medicines for over 10 years.


RedAdmin
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Date Joined Aug 2003
Total Posts : 1017
   Posted 6/19/2008 8:11 AM (GMT -7)   
I know that they have said we are at higher risk, but for myself I have other things to worry about. I will cross that bridge if it shows up. I get my scopes when my doc feels I need them. The only thing I have had to deal with other than the CD its self is I think he removed a couple of palups (I just know I spelled that wrong). So to answer your question - No I do not even think about cancer.
Red (Lee Ann)
 Happy Bunny 
      When life gives you lemons, squirt juice in your enemy's eyes.


Nanners
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Date Joined Apr 2005
Total Posts : 14995
   Posted 6/19/2008 9:07 AM (GMT -7)   
I have had Crohns for almost 33 years and that is one thing I have never been concerned about. I think we are better able to detect cancer because we have many of the necessary tests ran fairly frequently. We would know sooner than the regular joe whats going on in our bodies. But to answer your question, no I am not concerned with cancer.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


potty pooper
Regular Member


Date Joined Dec 2006
Total Posts : 375
   Posted 6/19/2008 9:14 AM (GMT -7)   
Same here. I don't really think about cancer, and I've had CD over 43 years. I hope with regular exams, bloods, etc. I will know if and when I need to worry.

Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/19/2008 9:42 AM (GMT -7)   
Even though IBS runs heavy in our family and lost one uncle to intestinal cancer, I have thought about it from time to time, but worrying needlessly about something that may never happen, only causes more stress.  I try to think positive.

br4d
Regular Member


Date Joined Feb 2008
Total Posts : 71
   Posted 6/19/2008 9:49 AM (GMT -7)   
meh... cancer shmancer. with the ever-growing myriad of ways to contract cancer these days, i've decided to just say 'F' it and go about my life as normal as i can.
.:brad:.

diagnosed in april 2002 during surgery for obstruction
meds: 50mg 6-MP, folic acid


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 6/19/2008 10:15 AM (GMT -7)   
Life is too short to be worrying about what may or may not ever happen.   I never give a thought to it.   I deal with what comes to me now and will deal with what comes to me later.

Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS too
 
Meds I have tried:  Just about everything 
Meds currently on:  Prednisone 30mg tapering
                           Methotrexate injection 12wks
                           Folic Acid
                           Wellbutrin
No Surgeries
 


EruditePaul
Regular Member


Date Joined Jan 2006
Total Posts : 266
   Posted 6/19/2008 10:23 AM (GMT -7)   

It is good to hear from all of all !!!

A little while ago, I read from this Crohn's forum that a member was diagnosed of small bowel cancer possibly due to the use of Remicade.  But he maintained that the benefit from the drug outweigh its risk. 

Other than that, I rarely see people diagnosed of bowel cancers due to Crohn's Disease.  Do you?


Diagnosed with CD in 1994;

Have being treated with Chinese herbal medicines for over 10 years.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 6/19/2008 10:38 AM (GMT -7)   
I've had it for 17 yrs straight now with it being constant in my colon (which is suppose to increase the risk of colon cancer each yr) and my anus...on and off in my rectom and the first couple of yrs in the small intestines as well (yes, all at the same time) but I have no worries of colon cancer or anal cancer either, I don't know why, but I just don't, guess it's a gut instinct for me.

When I first saw the perianal skin tags on my anus way back before I even got sick (this is where my CD actually started) I didn't even think cancer then, likely because I was only 15ish and had no clue you could possibly get cancer there, but my first thought was hemmies and every STUPID doc that saw them told me that's what they were, of course they were ALL wrong, so was I but what the heck did I know, I was a teenager for crying out loud...if only I knew then what I knew now, I may have been able to save myself tons of grief.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Sniper
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Date Joined Feb 2004
Total Posts : 6518
   Posted 6/19/2008 11:59 AM (GMT -7)   
I try very hard not to ,, what if ... I deal with the here and now and believe me , thats enough. I made it through a war, heart trouble, working all my life and all of these with crohns symptoms. Now my wife has cancer and we are dealing with that too. That one is the hardest for me because I feel so D@&%$# useless. As Lee Ann said, cross that bridge when and if you get to it..
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Bane
Veteran Member


Date Joined May 2007
Total Posts : 589
   Posted 6/19/2008 4:53 PM (GMT -7)   
I've always assumed Crohn's increases the risk of cancer- it just makes sense. When one thing in the body goes wrong, it can cause a cascade effect and lead to many other malfunctions. That being said, I don't let it bother me. Crohn's is a challenge, and I've been dealing with it for a while. Cancer would just be another challenge to deal with.
20, Male, diagnosed over Christmas Break of my Junior year in High School. BEST CHRISTMAS EVAR LOL

(not really)


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 6/19/2008 4:59 PM (GMT -7)   
Before I got my CD dx, I worried about the Big C all the time. Of course, having had 3 scares by 1989, it was easy to.
Now I seldom even think about it anymore. I have to many other things to concern me, why stress out over cancer?

Matthew

Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/19/2008 5:03 PM (GMT -7)   
Sniper said...
I try very hard not to ,, what if ... I deal with the here and now and believe me , thats enough. I made it through a war, heart trouble, working all my life and all of these with crohns symptoms. Now my wife has cancer and we are dealing with that too. That one is the hardest for me because I feel so D@&%$# useless. As Lee Ann said, cross that bridge when and if you get to it..

Wow, my heart goes out to you and your wife.  You have been through enough!

lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 6/19/2008 5:10 PM (GMT -7)   
EruditePaul,

I have been concerned with getting cancers caused by the medications we are on. I was concerned about lymphoma (I am currently on Remicade) etc etc but then my doc explained that the odds were so small it wasn't even worth worrying about. I get a colonoscopy every year and figure that if it decides to pop up then I'll deal with it then. I decided to not worry, b/c it doesn't do anybody any good and won't change anything.

I think it is perfectly normal to "worry", we are all human! BUT I would say get your annual check ups, keep the faith, and let life take it's course!
turboemma.blogspot.com/


ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 6/19/2008 5:10 PM (GMT -7)   
I wish I were as upbeat as everyone else, but yes, I worry about cancer. But my concern is not due to the inherent increased risk of cancer because of having Crohn's, my concern is related to the use of the drugs I've been on to treat the disease - Imuran and Humira. It wasn't enough of a concern to refuse taking the drugs in the first place, but it was there in the middle of my mind (not right there up front and not buried in the back, so in the middle somewhere). I'm no longer on those medications, but I'm sure I will be on some biological or another, sooner or later.
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08.


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 6/19/2008 5:11 PM (GMT -7)   
Sniper,

My thoughts and prayers are with you, your wife, and your family.

Take Care,
Emma
turboemma.blogspot.com/


MikeB
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Date Joined Mar 2006
Total Posts : 1169
   Posted 6/19/2008 5:12 PM (GMT -7)   
Small bowel cancer is very rare, though the risk is slightly increased in Crohns. The risk of colon cancer is also elevated, but not as mush as with ulcerative colitis. Crohns patients with disease of 15-18 yeras or more are suggested to have screening colonoscopies every 2-3 years . . . and that should take care of any problems early, as colon cancer is notoriously slow growing in early stages. As someone said, we are probably better protected from intestinal cancer than the general population.

aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 6/19/2008 5:37 PM (GMT -7)   
always wondered if the numbers were higher because we pay more attention to those areas than normal people
SCD since 01, remission since 01, occasional Arby's breaks :)


EruditePaul
Regular Member


Date Joined Jan 2006
Total Posts : 266
   Posted 6/19/2008 5:46 PM (GMT -7)   
MikeB said...
Small bowel cancer is very rare, though the risk is slightly increased in Crohns. The risk of colon cancer is also elevated, but not as mush as with ulcerative colitis. Crohns patients with disease of 15-18 yeras or more are suggested to have screening colonoscopies every 2-3 years . . . and that should take care of any problems early, as colon cancer is notoriously slow growing in early stages. As someone said, we are probably better protected from intestinal cancer than the general population.

Yes, small bowel cancer is rare, but Crohn's patients have a 40-60 fold increase of risk as compared with the general population.  It is extremely difficult to diagnise small bowel cancers (not with colonoscopies).  As I know, most of the small bowel cancer patients cannot live more than 6 months after diagnosis.

Crohn's patients only have slightly increased risk of colon cancer than the general population.  And the prognosis is better for colon cancer patients.   


Diagnosed with CD in 1994;

Have being treated with Chinese herbal medicines for over 10 years.


CrohnieYogi
Regular Member


Date Joined Oct 2006
Total Posts : 367
   Posted 6/19/2008 6:01 PM (GMT -7)   
Like others, I get scoped enough that any cancer should be caught super early.  I do, however, have tons of colon cancer in my family.  So it's not necessarily IF I get colon cancer, but WHEN.  But my husband, daughter, and work keep me super busy, so I don't really have time to worry!

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 6/19/2008 7:34 PM (GMT -7)   
I never really worried about cancer, until I was Dx with chronic pancreatitis. Now I've been told I have a 1 in 5 chance
of contracting pancreatic cancer. At first that news floored me, but after the initial shock, I've kinda picked myself up,
and decided, not to dwell on it. Only when I get bad pain, do I start to worry a little. However I'm still very bitter about
the fact that I was one of the unlucky ones to get this condition, after taking 6mp. But I guess we take those kinds of
gambles with lots of our drugs....
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 6/19/2008 8:14 PM (GMT -7)   
Paul are you sure it was a case of small bowel cancer being associated with Remicade? I've never heard of that. Lymphoma is a serious concern for those of us taking immuno-suppressants and immuno-modulators, but I am unaware of a link between Remicade and small bowel cancer. I hope someone can confirm this. Thanks
Belleenstein:

30+ years living with Crohn's.


Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 6/19/2008 11:27 PM (GMT -7)   
Sniper.... keeping you , your wife and family in my prayers as well. Lord! You have been earning your wings haven't you. !
God Bless... much love,
Mary
51 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.,RLS, arthritis
 
 


EruditePaul
Regular Member


Date Joined Jan 2006
Total Posts : 266
   Posted 6/20/2008 7:09 AM (GMT -7)   
belleenstein said...
Paul are you sure it was a case of small bowel cancer being associated with Remicade? I've never heard of that. Lymphoma is a serious concern for those of us taking immuno-suppressants and immuno-modulators, but I am unaware of a link between Remicade and small bowel cancer. I hope someone can confirm this. Thanks

A little while ago, there was a member here.  I do not remember his name (maybe Mike).  He reported that he was diagnosed of small bowel lymphoma, possibly related to the use of Remicade.  He then said he was treated successfully of the lymphoma and he maintained that the benefit of the drug still outweighs its associated risk.

 

The reason that I brought up this thread is to find out if there are other incidences of small/large bowel cancers reported on this forum. I would like to find out how serious the issue is among Crohn's community.   

 


Diagnosed with CD in 1994;

Have being treated with Chinese herbal medicines for over 10 years.


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 6/20/2008 7:42 AM (GMT -7)   
I recall the post yuo reference, about a year or so ago. In several years on thsi forum, as a frequent poster and diligent reader of posts, that is the only instance I can recall of anyone citing a case of intestinal cancer of any type or location as a possible result fo their Crohns diease or treatment. The bottom line is you are still a lot mmore likely to get colon cancer if you have a family history or polyps, and if you are over 50, regardless of underlying medical issues like Crohns.
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