Changing medication and have no idea if it isa good thing o not

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bwrmom
New Member


Date Joined Jun 2008
Total Posts : 7
   Posted 6/19/2008 9:53 AM (GMT -7)   
My husband has been dealing with crohn's /colitis for almost three years.The doctors have never put him on maitainence therapy before, he has been on asacol, endocort, and prednizone while in his flare, but once he is better he does fine on his own. He had one large flare two years ago and since has put on 40 pounds of good weight. Anytime he felt his colon asew we would go to a verys trict deit and he would be fine. We just had our third baby two weeks ago and while I was in labor he was in the er because his abdominal pain was too much to bear. they put him on prednizone and he got better within a week he went to his gi for a colonoscopy yesterday and she said colitis was throughout his colon and she wants him off the steroid and wants to try 6mp. I am so worried. I have been reading everyone's post and I just get more worried it sounds like most of you are on so many meds is this to be expected. It seems like a lot of you have been hospitalized is this also to be expected?
 
 

Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 6/19/2008 10:04 AM (GMT -7)   
I'm curious about the Asacol....are you saying he was only put on it while in a flare and then when he got better he stopped taking it?

My understanding is that Asacol is a maintenance drug, like Colazal. It helps to reduce inflammation in the colon (particularly for those of us with Crohn's Colitis). It shouldn't be something you take for just a while and then get off of. At least that's the way my GI has explained it to me. I take Colazal and have been on it for about 5 years now. Even in my most recent (awful) flare, they did not want me to stop taking the Colazal but did put me on a 5-week taper of Prednisone.

There are many others on here that have far worse situations and do take more meds...I'm sure they'll be able to offer up some more info for you soon..
Diagnosed in October, 2004 at age 33.
36/F/SC
Current Rx's: Colazal (generic), Nexium (generic), Ferrous Sulfate, One-A-Day multivitamin, Culturelle Probiotic, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/19/2008 10:23 AM (GMT -7)   
I once enjoyed a 20 year remission. My first two flares were four years apart, and my treatment was much like your husbands. I would take the meds until I was well then when stop them when I felt better. Would I do that again, NO WAY. Just as Kittikat says, Asacol is a maintenance med. Everyone should be on some kind of maintenance med. My 20 year remission ended with a emergency resection due to a total obstruction. While your husband is going on with his life, med free, the disease is still in there ticking away and doing its damage. Yes with Crohns you will have to take alot of medication, but that medication is to keep the inflammation down and to keep you healthy. I only take Asacol to keep my Crohns in remission. I do still have bad days, but they are usually caused by eating the wrong thing or stress. JMHO
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


bwrmom
New Member


Date Joined Jun 2008
Total Posts : 7
   Posted 6/19/2008 2:25 PM (GMT -7)   
Thank for you advice we just talked to the gi doctor and she said she found no crohn's this time or uc only colitis. All of his blood for is perfect. so I hope with regular care he will be ok. Thank you for sharing your story I did read it to him hopefully he will hear your advice and stick to something. His brother is dying of sarcoma and he is 28. He had bowel resection and I know what that involves I am so sorry you had to do that twice

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 6/19/2008 6:28 PM (GMT -7)   
Hi It is hard on a person who has IBD when a loved one is dying so it would probably be good for him to take extra care with his health now. Congradulation on your new addition. lol gail
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