Constant tired or no energy due to Prednisone?

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Artc
New Member


Date Joined May 2008
Total Posts : 15
   Posted 6/20/2008 9:57 AM (GMT -6)   
Hello fellow corhn's,
 
I am on prednisone 35mg/day for around 3 months now.
Developed a moon face with skinny arm and legs.
 
Everyday I feel like a old man with no energy and constant tired.
 
Prednisone the root cause?
 
Anybody out there has the same feeling?
 
How to overcome the tiredness or increase energy?
 
Thank for any advise received.

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1434
   Posted 6/20/2008 10:04 AM (GMT -6)   
My legs and arms actually feel weaker as well since starting 20mg pred 4 weeks ago. I'm not sure if I'm weak because of the pred, the 6MP, the fact that I have a ferratin level of 4 or that I've lost 5 pounds this month (down to 5'9", 130 lbs). Or maybe a combination of all.

I am also confused Artc...
Dx'ed in 1999. No surgeries.

Current meds: 75 mg 6MP. 20mg prednisone.  Udo's Choice Probiotics (30 billion).


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 6/20/2008 10:29 AM (GMT -6)   
Sometimes, is not just the prednisone, but our disease itself. At the moment I'm only on Humira, yet I still have no
energy. I also ache badly....

I think it's the nature of the beast.....
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 6/20/2008 11:06 AM (GMT -6)   
I think a lot of it is the nature of the disease unfortantaly... Although I'm on pred. too and don't have a lot of energy on it.
Some days are better than others.
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS too
 
Meds I have tried:  Just about everything 
Meds currently on:  Prednisone 30mg tapering
                           Methotrexate injection 12wks
                           Folic Acid
                           Wellbutrin
No Surgeries
 


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2189
   Posted 6/20/2008 11:43 AM (GMT -6)   
At 40mg I actually had a ton of energy. I felt great, in every way. Hungry, but good! LOL Also have the moon face. Now that I'm down to 20 mg, the tired stuff is back. Which is typically my norm, in the past I've been known to take a nap a day.

Part of me hopes it's just from me tapering, maybe that is making me tired? Because I hate to think I'm going back to needing a nap every day.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 20 mg, Asacol, Questran, Toprol XL (for high blood pressure).


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 6/21/2008 1:33 AM (GMT -6)   
One thing that I have felt that has helped me IMMENSELY is exercising. I know with our illness it can be crazy hard (worrying about accidents, etc etc) but I force myself to work out and always end up feeling SO MUCH BETTER within a few days. When I sweat I think of it as "killing my Crohn's" as I'm getting rid of Crohn's toxins.

I've been on and off of prednisone so much the past two years, but can say that Remicade and 6-MP has made me more fatigued then prednisone ever did. I feel with prednisone I get my life back, as I *usually go into remission. When I'm fatigued I force myself to do a light workout and always end up feeling better. I know it's hard, but def worth it. Even if it's only going for a walk with your pup or something.
turboemma.blogspot.com/


shylou
New Member


Date Joined Jun 2008
Total Posts : 15
   Posted 6/21/2008 9:04 PM (GMT -6)   
I also am on 40mg pred. and am so tired and I ache all over. but I dont know if Im so tired cause I have had bad insomnia.Or if its just a general side effect from the meds. I get plenty of exercise single Mom of 4 children 3yrs, 4yrs, 7yrs,8yrs. Summer break Im always on my feet also work a full time factory job. Looking for any ideas to keep myself going.
25 years old just DX 5/08 after 3 yrs. of IBS treatment. 
 Was told yesterday that it is  in my small intestines Currently on 40 mg pred. (tapering). Had along battle with illness, doctors, and surgeons.  


Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/21/2008 9:13 PM (GMT -6)   
shylou said...
I also am on 40mg pred. and am so tired and I ache all over. but I dont know if Im so tired cause I have had bad insomnia.Or if its just a general side effect from the meds. I get plenty of exercise single Mom of 4 children 3yrs, 4yrs, 7yrs,8yrs. Summer break Im always on my feet also work a full time factory job. Looking for any ideas to keep myself going.

Shylou, YOU have a busy lifestyle, and with this disease, normally you get tired, and 4 kids and all so young! And, a full time job.  How do you do it???? What you need is a couple of weeks all to yourself, no job and have the kids with your parents or camp. You need to relax.  I dont think a fully healthy person could not feel tired.  Prednisone usually gives you energy, keeps you away, you are opposite.  I just started pred today too.  I feel so achy, already.  I mowed 3 acre property (riding lawn mower) pulled weeds and exercised, yeah I am feeling it.  I am glad my daughter is 20 and has a summer job, gives me a total break.  Take care of yourself, you are overdoing it.  Hugs!
Tough times don't last long, tough people do!


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 6/21/2008 9:47 PM (GMT -6)   
Hmm, the pred never makes me tired-the RA does. What happens for me with pred is I "Forget" that I am sick. I have only been on pred when I was so sick I could not make it through a normal day. Then I go on pred and feel better joint wise and have extra energy but it is very false so I will start doing something and get exhausted in the middle of it (now this is something I would not have thought of doing right before starting the pred). For me feeling tired on pred is an indication the underlying disease is still very active and I am overdoing.
Sj

Artc
New Member


Date Joined May 2008
Total Posts : 15
   Posted 6/21/2008 11:16 PM (GMT -6)   
Hmm, so it's the nature of the disease or pred or 6mp?
My personal experience is just before this disease. I had ton of energy and never tired like now.
So confusing as what Jen77 said from 40 to 20 mg the tired stuff is back. I thought it would improve your energy level by 50%.
Pred seem to improve sjkly energy level.

Anybody who is in currently in remission also had this constant tired and low energy level?

Iilturbo - I will take your advise and excerise and see it improve my energy and reduce the tiredness.

chubbaluv
Regular Member


Date Joined Apr 2004
Total Posts : 41
   Posted 6/21/2008 11:32 PM (GMT -6)   
Can't relate to fatigue and Prednisone.  I was on 40 mgs. and tapered down eventually but it was in December and my husband thought I was going to string lights on top of the roof of our house, it was crazy.  I would wake up at 3 a.m. and want to vacuum.  My house was organized down to the last box in the basement, I ate like a football player, stole food off people's plates around me, gained 30 lbs./moon face.  Felt fabulous but I still am carrying about 10 of those 30 lbs around.  :(  Shouldn't complain I guess but I wish I could keep the ENERGY part of the Prednisone without the other side effects.

Dx in 2000 after my 2nd chlid was born, at 32 years old
No classic symptoms, just low-grade fever/joint pain/flu-like symptoms
 
One resection after 3rd child/had abscess develop during that pregnancy and went thru TPN to get thru the last 10 weeks of pregnancy.  No more babies for me :(...
Three anal fistulas after that, three setons.
 
Currently taking 6mp/Purinethol and
celebrating the good days in a BIG WAY when I have them.


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2189
   Posted 6/22/2008 1:12 AM (GMT -6)   
Artc, over the last two years I would say I was in a remission. Meaning no symptoms of pain and D for the most part. But most of the time I had the tiredness, and I would seem to need naps every day. First I would think it was because I'm anemic, but blood tests always said no. All my other blood work would be fine as well. So my doctor said it's probably just the Crohn's, even though it was the only symptom I was having. Guess that is better then having that plus the pain, D, and weird inflammation of other areas that I just had with last flare. But it stinks. I don't feel like myself when I'm so tired all the time. It's like I have to push myself to get through the day. So I'm with chubbaluv, sure wish I could keep the energy, but not the rest of the side effects of this medication.

Tomorrow I go down to 15 mg. Kinda scary, because I know the lower you get, the higher the chances of the flare returning. Fingers crossed I go back in to another 2 year remission (or longer works too! hehe). I'm really scared of if I don't though, what that will mean for me next. I have never been on anything else, like the 6mp meds. Going up the ladder scares me for sure!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 15 mg *eek*, Asacol, Questran, Toprol XL (for high blood pressure).


Artc
New Member


Date Joined May 2008
Total Posts : 15
   Posted 6/22/2008 6:40 AM (GMT -6)   
Jen, happy to hear you are in remission. That would be my goal too.
Wow...2 years remission and still had the tiredness. But you still on prednisone during this time.
I guess is due to prednisone.

Wish you all the best for tomorrow.

Anybody not taking any 6mp or Prednisone while in remission still feel the side effect of tired or no energy?

LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 6/22/2008 7:00 AM (GMT -6)   
Yes I've was in remission for a long time but I would still be tired and have no energy at times.
I work full time so I would just push myself through the days, but on the weekends when my
son takes him nap, I take a nap!! :-)
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS too
 
Meds I have tried:  Just about everything 
Meds currently on:  Prednisone 30mg tapering
                           Methotrexate injection 12wks
                           Folic Acid
                           Wellbutrin
No Surgeries
 


Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/22/2008 10:03 AM (GMT -6)   
Artc said...
Jen, happy to hear you are in remission. That would be my goal too.
Wow...2 years remission and still had the tiredness. But you still on prednisone during this time.
I guess is due to prednisone.

Wish you all the best for tomorrow.

Anybody not taking any 6mp or Prednisone while in remission still feel the side effect of tired or no energy?
Hey Artc, yes, when I was on Humira, had a couple of weeks relief, and was on 1 cipro a day, I was still tired, did exercises, everything.  It is the nature of the disease.  If you flare, or not in total remission and drug free, you could have energy.  Do you drink coffee?
Tough times don't last long, tough people do!


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2189
   Posted 6/22/2008 12:09 PM (GMT -6)   
Artc said...
Jen, happy to hear you are in remission. That would be my goal too.
Wow...2 years remission and still had the tiredness. But you still on prednisone during this time.
I guess is due to prednisone.

Wish you all the best for tomorrow.

Anybody not taking any 6mp or Prednisone while in remission still feel the side effect of tired or no energy?
Oh no Artc, I've only been on prednisone since early May, that's when I flared up again. Before that I was in a remission for 2 years, after a sever GI bleed. With only taking Asacol, but was still always tired. Then I flared bad in May, and they put me on pred. That's when my energy came back, but I'm down to 15 mg now, so there goes that!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 15 mg *eek*, Asacol, Questran, Toprol XL (for high blood pressure).


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 6/22/2008 1:13 PM (GMT -6)   
You're not the only one who's on prednisone and feels tired all the time... It's the same way with me. I don't think I've ever gotten the energy boost everybody talks about while I've been on prednisone. But I think everyone here is probably right... It's probably more the nature of the disease than the prednisone that's causing the fatigue.

I wish I could help you out, but I can't seem to figure out how to get my own energy levels up.
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Artc
New Member


Date Joined May 2008
Total Posts : 15
   Posted 6/23/2008 12:11 AM (GMT -6)   
Thank you for all your feedback.
Look like we have to live for this disease and with prednisone to control it. As there is no known cure for Crohn disease as of now.
Even when you are in remission for years. The feeling of tiredness will be there even low dose of prednisone. Correct me if I am wrong.

So far anybody is drug free and in remission without the tiredness?

Such a horrible disease that rob everybody of life energy.

Crohn's 4 ever - I used to drink coffee or tea. But now stop for fear of flaring up. Heard coffee no good for us.

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2189
   Posted 6/23/2008 1:43 AM (GMT -6)   
It's so different for everyone. There are a lot of people who go in to remission and have their energy back. Very few I think are ever drug free though. Some manage with natural remedies, but most need some kind of maintenance medication. Like Asacol. Really can't stay on prednisone anyway, it's got horrible side effects long term.

Remission means different things to different people too. I think most people will always have some kind of symptoms here and there, even while in remission. Since were not cured. I've learned to enjoy the good days, and roll with the punches.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 15 mg *eek*, Asacol, Questran, Toprol XL (for high blood pressure).

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