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SKR
Regular Member


Date Joined Oct 2007
Total Posts : 42
   Posted 6/20/2008 10:21 AM (GMT -7)   
Hiya
 
I'm going through a bit of a rough patch and just wondered if people know of natural meds that have worked really well for their symptoms. I'm on peppermint tea and although it doesn't make me any worse I can't say it really helps either. Any other suggestions and where to get them from?
 
Thanks in advance
 
SKR
18 YEARS, diagnosed in 2000
Currently on Infliximab and Methotrexate
 

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/20/2008 10:23 AM (GMT -7)   
Probiotics work well for me. I was having D 5-7 times a day and now I only go 1-2 times. Sometimes we get too much of the bad bacteria in our intestines and the probiotics help to level out the playing field so to say.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 6/20/2008 10:59 AM (GMT -7)   
For me, natural antifungals like capryllic acid or olive leaf extract, along with following a strict antifungal diet for awhile helped me get rid of my UC symptoms altogether. I also believe that probiotics are very beneficial. pb4 has recommended psyllium husks, which is a great bulking agent. I have had good success with that, as well.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 6/20/2008 11:52 AM (GMT -7)   
I use bee propolis with quite a bit of success...not full remission for my crohns-colitis (CD affecting the colon) but it did stop all my bleeding and lower back pain, cut back my daily BM's in half and most of my mucus...

I use it in conjunction with probiotics, omegas 3-6-9 and fibre supplements (which made symptoms even better)...my GI encourages me to continue with it all and said that even if the bee propolis didn't help my symptoms that it's an excellent source of dietary supplementation since us IBDers don't necessarily get all of our nutrients via food alone.

Don't use bee products if you're allergic to bees, and if your pregnant or nursing it's advised not to use them during that time either.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


medchrt1
Veteran Member


Date Joined Sep 2005
Total Posts : 517
   Posted 6/20/2008 4:49 PM (GMT -7)   
as with crohns,, many times the very things we require are not easily tolerated,, perhaps a good article to read is http://www.drhoffman.com/page.cfm/171
Crohn's disease and ulcerative colitis, by Ronald Hoffman, M.D., CNS
September 1995
there are some naturals listed, i have even gone as far as to swish vitamins and minerals in my mouth and spit them back out just enuf to let em enter somewheres in my mouth wall rather than swallowing em.

CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 6/20/2008 6:10 PM (GMT -7)   
i find peppermint and ginger teas work well for an upset stomach. i take digestive enzymes (1-3) with every meal in an attempt to prevent that though.

a green drink does wonders. i take it in the morning, about a half an hour after my probiotics (using vsl 3 right now). this way i get my vegetables in the morning and it is nature's energy drink with all the b vitamins and protein in it.

i do the maker's diet and incorporate aspects of the scd into it. both difficult diets, but if you can do it then more power to you. i now use food as my medicine and have cut out refined and processed foods and sugars.

cod liver oil is supposed to have some benefits, but i dont know if i feel a legit response to it. but it is fantastic way to get your omega 3 efa, which basically every one is grossly deficient in.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


SKR
Regular Member


Date Joined Oct 2007
Total Posts : 42
   Posted 6/21/2008 4:17 AM (GMT -7)   

Thanks everyone thats really useful..

SKR

18 YEARS diagnosed 2000


vidoska
Regular Member


Date Joined Sep 2007
Total Posts : 37
   Posted 6/22/2008 5:22 AM (GMT -7)   
I am taking royal jelly on a daily basis now. I see great improvement in energy level and reduced or no pain. I also try kombuha, a cup or two each day.

38 years old female, Dx'd July '06, Crohn's collitis and terminal ileitis,

Used Meds: Cipro, Flagyl, Sulfasalazine, 5ASA, 5ASA Enemas, Probiotics,B12 and Iron shots, blood transfusion, Urbason 60mg, Prednisone 20mg - Irigography, X-Ray Intesinal Passage, Colonoscopy in April 06, July 06, Hospitalized - Symptoms long before diagnozed (diarrhea, weight lost, fatigue, exhaustion, pain, subfebrile temperature, joint pain, especially knees)

Current meds: probiotics, prednisone tapering 30mg, sulfasalazine 3x1g, B12 shots, folic acid, omeprazole, xanax 2x0,25mg, alternative: royal jelly, tea mixture,

No surgery so far- History of Graves-Basedow disease in 1995


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 6/22/2008 10:17 AM (GMT -7)   
vidoska said...
I am taking royal jelly on a daily basis now. I see great improvement in energy level and reduced or no pain. I also try kombuha, a cup or two each day.

You might do very well with bee propolis then if you're finding benefits from the royal jelly, I think bee propolis is possibly a stronger form of antibacterial, antifungal and antiviral...I take it with much success, it lessened my daily frequency cutting my daily bm's in half, stopped ALL my bleeding and lower back pain and cut my mucus way down too, then when I added the fibre supplements (as directed by my GI) that cut my BM's down even more and completely stopped the excess mucus issues.
 
I have crohn's colitis as well (CD affecting the colon).
 
:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 6/22/2008 11:58 AM (GMT -7)   
pb4- remind me again of the brand name of bee propolis and dosage you take daily. Thanks........

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 6/22/2008 12:25 PM (GMT -7)   
The brand is from Puritans Pride online (they always have some kind of sale going on) and they only sell 500mg caps of which I take one 2 times/day.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


camjames
Regular Member


Date Joined May 2006
Total Posts : 229
   Posted 6/24/2008 9:59 PM (GMT -7)   
I can also say that psyllium husks is a good fiber supplement. My bottle of the capsules is currently empty, and I plan to buy another in the next few days for around $12. I find it really helps with bloating. For example, two days ago, I found myself very bloaty for a few hours, not wanting to do anything. Then I remembered the psyllium...only took 2 capsules with a bit of water (recommended with this brand was 5 capsules with more water), and within 10 minutes I was nearly bloat free, with a more relaxed feel to my whole stomach. Not a cure or anything, but another good must have natural supplement for crohnies with bloat, D or C.

kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 6/25/2008 12:57 PM (GMT -7)   
Just wondering, chas036...did you go on the diet too?
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