For those of you whose GI's say your arthritis is labeled as "Crohn's Arthritis" AND you have a Rheumatologist...
My ankles swell so bad before a flare is coming on that I cannot walk or drive. I'm usually on crutches for about 2 weeks. As I've slowing been coming out of a 4 month flare this year, my feet have been continually swollen most days. Some days they just really hurt. Other days they are so swollen it's difficult to walk/drive although I can still technically do both. When I told my GI about this 2 weeks ago, he just simply said, "yeah, that's definitely Crohn's Arthritis" but didn't offer any suggestions about what to do when they swell like that.
I asked if I should see a Rheumy but he said NO because he (my GI) knew it was Crohn's Arthritis...however, if my swollen feet became a chronic thing, he'd probably refer me to a Rheumy.
So for over a week now, my feet have been really swollen. Luckily is hasn't been SO bad that I couldn't walk but it certainly limited me WANTING to walk from the aching and just the swolleness...makes it hard to "roll the foot.
So I called my GI and he's referring me to a Rheumy. Although, of COURSE, now my feet aren't as swollen as the day I called my GI! It's like taking your car to the auto body shop because it's been making a thumping noise but then when you get there, it doesn't make the noise! I imagine with my luck by the time I get an appt with a Rheumy, my feet will be fine!
I'm curious to know what all of your Rheumatologists have said about your joint inflammation that is coming from the Crohn's Disease. What do they do for you? Do the give you meds to help stop the swelling? Take Xrays of the "inflamed" area? I'm just wondering if I should actually bother seeing a Rhuemy since it's obvious the swelling ankles are due to my Crohn's which is a Gastro thing.
Of course, my GI's nurse put in my brain one time that swollen ankles could indicate a blood clot so I've always got that in the back of my mind now...
Diagnosed in October, 2004 at age 33.
Current Rx's: Colazal (generic), Nexium (generic), Ferrous Sulfate, One-A-Day multivitamin, Culturelle Probiotic, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date