Poor me(BIGTIME VENT)

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songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 6/20/2008 8:09 PM (GMT -7)   
do you all ever wake up and think this? I mean we all know having a pity party is no good for us but sometimes I wonder "why me"? Why do I have this disease? I know there are plenty other things out there that are way worse like cancer and more painful diseases, but sometimes, Im sooo tired of being sick. Tired of being in pain. Tired of being in a bathroom. Just wondering if anyone has those days where you're tired of hurting and wish you could have your old life back.
 
Not a day goes by that I dont wish I could make some plans without them being ruined because I don't feel well. Even (TMI) initiating sex with my husband is not something I look forward to. Because I hurt here or there, or am nauseated. Can't look forward to a meal without thinking of the repercussions.  This is really a DISEASE. But people don't take it seriously because you're not dying from it, and you normally can't die from it. They just think you are a complainer, or a whiner.
 
I had a nurse in my last hospital visit tell me she admired me because while all the other patients complained and moaned, I sat there and waited patiently for my medicine and never complained when in pain or puking. She said they need to walk a day in my shoes. I more so, wish my family and friends could, then they would at least see, its no walk in the park having Crohns.
 
But not to be negative...I do still hold out hope that one day i will go into a longterm remission. I pray and so does my family, so until then..POOR ME! LOL LOL LOL tongue

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005--spread to ileum and small intestine as of April 2008. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently on Remicade every 8wks, 40mg Pred, Pentasa.


JudithUK
Regular Member


Date Joined May 2008
Total Posts : 24
   Posted 6/20/2008 9:54 PM (GMT -7)   
having a pity party may not help physically, but a really good rant about it, lets it out and you can feel a bit better , for a short time, emotionally. Hope you feel better soon,
Judith

Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/21/2008 5:43 AM (GMT -7)   
Yeah I am in the same boat!  Just when things start to work out, the rug gets pulled out underneath you.  I know the feeling of "sick and tired of being sick and tired"  No one understands but us crohnies.  However it is best to shake out of this mood because it makes it that much longer for a relief.  Hang in there, I am too. Starting Prednisone today. eyes

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 6/21/2008 6:37 AM (GMT -7)   
Songstress, been there, in fact still am. You go ahead, it's your party, and you can cry if you want to...
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


potty pooper
Regular Member


Date Joined Dec 2006
Total Posts : 375
   Posted 6/21/2008 8:34 AM (GMT -7)   
I second dunny's post. I've been suffering from this pretty much as long as I can remember. I was diagnosed 43 years ago, and I really don't remember feeling well. I suffered with abdominal pain since I was very young. (I'm an now 62).

I have had 3 resections (one just this April) and many obstructions through the years. I don't remember what "normal food" is since I've been eating low-fiber for so long. I've just now, with the recommendation of my GI, starting to experiment with fiber foods.

Ok, that's my pity party!

With that said, in spite of all this I managed to marry a great guy, raise three wonderful daughters and am blessed with two precious granddaughters. These are the things that I choose to focus on. When things get tough, it's hard not to feel sorry for myself, but having the good things in my life really help.

And that includes all the wonderful people I have "met" on this site.

Sending you good wishes and hugs. Hope things get better soon. And remember, we are all in this together.

LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 6/21/2008 10:12 AM (GMT -7)   
Your aloud to have a pitty party!!! I always think "why me" especially since no one in my family has this. Why was I blessed with it??
I'll never know. Maybe because God feels I'm the strongest out of the family to deal with it, who knows. I get tired of people
saying to me "But you look totally fine" Yeah well the outside of me may look normal, but the inside isn't!! :-(

Like potty pooper said "We are all in this togehter" Don't ever feel alone!!!!
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS too
 
Meds I have tried:  Just about everything 
Meds currently on:  Prednisone 30mg tapering
                           Methotrexate injection 12wks
                           Folic Acid
                           Wellbutrin
No Surgeries
 


Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 6/21/2008 10:51 AM (GMT -7)   
songstress -

I understand and feel this way too. This is why I sit at home and go nowhere. This is why I stay in here. In here I feel normal, understood, in the company of all the good folks here at healing well CD forum. It is a beautiful day outside, yet I sit inside.

Flare... flare... flare. Only here does anyone know what this means. I am sad and I cannot stop crying.

I read here to step out of my own self-sorrow. Chin up chest up and prepare for tomorrow.

Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/21/2008 11:56 AM (GMT -7)   
Texan with Crohn's said...
songstress -

I understand and feel this way too. This is why I sit at home and go nowhere. This is why I stay in here. In here I feel normal, understood, in the company of all the good folks here at healing well CD forum. It is a beautiful day outside, yet I sit inside.

Flare... flare... flare. Only here does anyone know what this means. I am sad and I cannot stop crying.

I read here to step out of my own self-sorrow. Chin up chest up and prepare for tomorrow.
That sounds like my broken record!

nruth
Regular Member


Date Joined Mar 2006
Total Posts : 195
   Posted 6/21/2008 4:47 PM (GMT -7)   
I know exactly how you feel. I can't even remember what it meant to actually feel good, what it meant to be able to eat whatever sounds good, to be able to go take a walk without worrying if I can get home before the diarrhea hits, to go through a day without my stomach hurting or feeling queasy, to be able to gain weight and stop looking like a scarecrow, etc, etc. I am so sick of it all. Right now I'm just so bummed out I can hardly bear it. No, it isn't fair.

Dory
Regular Member


Date Joined May 2005
Total Posts : 120
   Posted 6/21/2008 5:33 PM (GMT -7)   

I know exactly how you feel, I could have written this post.  Understand and live EVERY  word you wrote.  All we can do is vent when we can, and hang in there.

Dory

 


Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 6/21/2008 9:44 PM (GMT -7)   
Honey, you vent and complain all you want. Anger is a good thing sometimes....and its always best to express it...because anger turned inwards is depression..... so cry, scream, get mad and complain all you want.... we all have our "why me" days, especially when things are not going well, we haven't slept, we're in pain etc.... its chronic...never ending....so if we didn't have moments of "why me" we'd go absolutely crazy....its normal to feel tired and fed up....in fact it would be abnormal if you didn't from time to time
To everything there is a season.... a time for everything.... ".... and a time for a "pity party".
You will carry on, and one day , the sun will be shining, your day will be going better and you'll see things in a different light....thank God for those days!
Keeping you in my thoughts and prayers.
mary
51 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.,RLS, arthritis
 
 

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