I have Crohn's, but I don't have health insurance

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lightningbug
Regular Member


Date Joined Jun 2008
Total Posts : 28
   Posted 6/21/2008 8:03 AM (GMT -7)   
Hi all,
 
I've found myself in an undesirable position.  I have Crohn's disease but I don't have insurance.
 
I was just on the cusp of getting Humira to treat my fistulas when the whole thing shut down because our insurance expired.  I'm going to try to get something thru the state for a while, but does anyone have any suggestions on how I might get ahold of Crohn's medicine without insurance?  Do you know of any sponsored programs or "scholarships" for medicine?
 
Thanks for any and all help!

Do your best, then to hell with it.


Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
   Posted 6/21/2008 8:15 AM (GMT -7)   
Check out the MyHumira website. Abbott has a patient assistance program that will help you get the Humira if you meet their guidelines.
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Entocort, and Remicade
On Humira since 1/08 with promising results, but can't get below 5mg Prednisone
Take Tylenol #3 as needed when not in close proximity to a bathroom.
Put back on 40mg Prednisone again during mid-March flare, ack
4/9/08 Humira dose increased to 40mg/week
Down to 10mg pred


lightningbug
Regular Member


Date Joined Jun 2008
Total Posts : 28
   Posted 6/21/2008 8:54 AM (GMT -7)   

Thank you, Pibbin!  I'm off to investigate those sites.  I really appreciate your help!

 


Do your best, then to hell with it.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/21/2008 9:17 AM (GMT -7)   
Just wanted to send you ((BIG HUGS)) to you. I can't imagine having Crohns disease and no insurance. But Pibbin did give you some great advice. Montel Williams also runs a program call something like Prescriptions for America or something like that.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


br4d
Regular Member


Date Joined Feb 2008
Total Posts : 71
   Posted 6/21/2008 9:20 AM (GMT -7)   
i went for a few months without insurance, but thankfully i didn't have any issues. best of luck to you!!
.:brad:. 23 year old male from PA.

diagnosed with crohn's disease in april 2002 during surgery for obstruction
meds: 50mg 6-MP, folic acid


Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/21/2008 9:24 AM (GMT -7)   
Yes Humira does have a help program and depending where you live there is Trillium.  Not sure.  Sucks to have a disease you cant afford.  And all the cheap drugs have a lot of side effects, go figure. Hang in there.

lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 6/21/2008 9:45 AM (GMT -7)   
Good Luck! I will keep you in my thoughts and prayers...please keep us posted!
turboemma.blogspot.com/


Bane
Veteran Member


Date Joined May 2007
Total Posts : 589
   Posted 6/21/2008 10:44 AM (GMT -7)   
I'm in the same boat. I've been bouncing from clinical trial to clinical trial. its something worth looking into.
20, Male, diagnosed over Christmas Break of my Junior year in High School. BEST CHRISTMAS EVAR LOL

(not really)


shylou
New Member


Date Joined Jun 2008
Total Posts : 15
   Posted 6/21/2008 6:57 PM (GMT -7)   
My GI contacts the drug companies and said he could get my meds for free for me. I dont have insurance either right now. The only downfall is your a little more limited to what meds you can get. And you will have to administer them to your self but from what I am told alot of drug companies will give meds through your doctor. Best of wishes to you.
25 years old just DX 5/08 after 3 yrs. of IBS treatment. 
 Was told yesterday that it is  in my small intestines Currently on 40 mg pred. (tapering). Had along battle with illness, doctors, and surgeons.  


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/21/2008 7:58 PM (GMT -7)   

Try these links for assistance with meds:

 
 
Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


lightningbug
Regular Member


Date Joined Jun 2008
Total Posts : 28
   Posted 6/22/2008 8:46 AM (GMT -7)   

Wow you guys!  I've never been to a board like this before and I am just overwhelmed by how much support I've received from everyone.  Thank you so much for all of the wonderful advice.  And for the hugs and warm wishes.  I am all about soliciting doctors and Montel Williams on Monday!

 

Thank you guys SO MUCH


Do your best, then to hell with it.


Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 6/22/2008 12:47 PM (GMT -7)   
lightningbug -

Welcome to the forum. Hang in there - and hang around here. There are many wise and wonderful people here, as you will find. The forum moderators are a blessing as well - always GREAT assistance.

lightningbug
Regular Member


Date Joined Jun 2008
Total Posts : 28
   Posted 6/22/2008 2:20 PM (GMT -7)   
Thanks Tex! :)  I will have so much to pursue Monday morning.  I'm really excited that there are some options to look into.  Wish me luck, I need it!

Do your best, then to hell with it.


Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 6/22/2008 4:07 PM (GMT -7)   
GOOD LUCK!!! yeah

nosleepgirl
New Member


Date Joined Jan 2011
Total Posts : 2
   Posted 1/9/2011 1:54 PM (GMT -7)   
I was on state assistance, but then we started making too much money. My husband is a contractor and I am part time. We applied for personal insurance which denied me. I appealed and got insurance, but it excludes my colitis. The insurance company says that if I go symptom free for a year they will take it off the exclusions. I talked to my doctor and he is giving me meds for free now. As long as I don't claim anything for the disease on my insurance I can expect to have it added back.
Now, if I do have to go in for anything related to colitis, I was told I can still apply for high risk through the government. It costs a bit more, but it will cover anything that needs to be done. I've talked to someone else on the program and they said it was well worth it.
I guess this is for someone that isn't financially strapped. Otherwise, I know there are other programs out there for people who can't afford personal insurance.
I was hoping that the pre-existing condition rule would apply to everyone, but such is the games of government. Write to your local political leader and tell them that we deserve equal rights !!!

silvergriz
Regular Member


Date Joined Nov 2010
Total Posts : 86
   Posted 1/9/2011 2:56 PM (GMT -7)   
blush  This response goes out to lightningbug: I'm kinda in your boat!! I lost my job last June/2010, and have been on CobraInsurance since then. I can only be on that for a year and at whihch time if I have to go on disability, they will extend it for 24months. I don't have a drug policy on my insurance, so I had to apply to thru a drug company Humira to see if I could get assistance, and  so far have heard nothing back. They were supposed to send an application to my Doctor, but they haven't received anything either!! I guess what worries me the most is that I  now have developed pre-existing liver conditions because of my Crohns, and I think that started around 2007. My GI Doctor says it's minimal and has been for over a year now, so I may try it if I can get approved. I have an app. to see him this week and I will definitely be asking questions. I also thought that insurance companies were to accept you regardless of your pre-existing condition, I had thought they had passed a law into that effect. Who knows about our government these days!! Good Luck and keep me posed on how your are doing--Hugs--Silvergriz

chrisnsteph1022
Veteran Member


Date Joined Apr 2003
Total Posts : 973
   Posted 1/9/2011 3:33 PM (GMT -7)   
I was there in 2003. I was dx while I had no insurance. So a scope, SBFT, GI visits...all out of pocket. The thing that saved me was my regular doc. He called the asacol rep and got a ton of free samples for me. It would've been several hundred dollars a month (though I think asacol is much cheaper now). And I set up a payment plan with the hospital that did my procedures. I ended up with $10k in medical debt from one year, and was still paying it off after I was in remission, but I was thankful I could make small payments each month.
Stephanie
dx April 2003, in remission 2004-December 2010
Apriso, dicyclomine
Scope scheduled 1/7/11

Kellznpc8784
Regular Member


Date Joined Jun 2009
Total Posts : 46
   Posted 1/9/2011 4:36 PM (GMT -7)   
I know how you feel...... I also have crohns with no insurance I havent had any since I found out I had crohns which was 2 1/2 years ago...... Theres really not much programs out there at least here in west virginia. Remicade has an program that will pay for ur treatments if u make less than 45,000 a year. Its called Johnson and Johnson. If u want more info just let me know I would be happy 2 help and pentasa also has a program that will pay or help pay for your meds if u want info about that just let me know also...... but other than those 2 I dont know of anything else..... I tried 2 get a medical card here and got DENIED..... Im about 45,000 in debt. 2 doctor bills,blood work and all that....... its very hard and stressful I know that for sure but u just gotta let it not worry you...... I'v learned just 2 not care about this bill or that bill if it gets paid it does if it doesnt my health is more important...... I'v tried 4 times for a med. card and get turned down everytime..... and tired 2 get insurance and well cant afford it or they wont take me....... but i hope ur feeling well take care,Kelly

lady1012
Regular Member


Date Joined Nov 2006
Total Posts : 304
   Posted 1/9/2011 8:20 PM (GMT -7)   
It seems that health care in the states is bad. In canada insurance is good for your co-pay on your Rx...but if you have to go into the hospital for a stay it costs nothing....and I do believe if a drug is administerd in the hospital that is covered as well because they admit you as an out-patient...someone in Canada who has had rem in the hospital would know me than me as I havn't been on that road yet..but its coming...I will know more when I see the doc on the 11th.

I wish you luck in getting covered for your meds because they are much needed.
Official diagnosis of Crohns in the TI summer of 2006 via CT scan

justcallmeD
Regular Member


Date Joined Oct 2009
Total Posts : 48
   Posted 1/9/2011 10:45 PM (GMT -7)   
i didnt read through all the replys, so this might have been posted already but Humira has an assistance program, if your uninsured you might be able to get it for free. i have insurance but still signed up for the plan and only pay $2 per prescription which is the cheapest ive ever paid for any prescription for my crohns.....their number is 1-888-486-4723 or their website www.humirahelp.com....good luck

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/10/2011 7:37 AM (GMT -7)   
Guys this post is 2 1/2 years old and lightingbug has not been seen in the forums since October 2008. So I doubt the original poster is going to see your messages. Just fyi!
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Protonix, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

lady1012
Regular Member


Date Joined Nov 2006
Total Posts : 304
   Posted 1/10/2011 8:27 AM (GMT -7)   
blush  oh my.....never even looked at the posting date... blush
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