How many CTs are too many?

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donut
Regular Member


Date Joined Jan 2008
Total Posts : 54
   Posted 6/21/2008 3:02 PM (GMT -7)   
I have had 7 CTs in the past two years due to diverticulitis,sigmoid resection, ileostomy and takedown surgery. Now I have inflammation in the TI. I had a colonoscopy and biopsy which all came back negative for CD. The surgeon could not get up into the TI all the way so now wants to do a more thorough CT and I am worried about all the radition. How many CTs should make me say STOP!! My other doctor says to just watch the inflamation and do another small bowel x-ray to see if it gets better on its own. I don't know what to do!

Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/21/2008 3:35 PM (GMT -7)   
Good question, I wondered that myself, I had 3 regular xrays, and lithotripsy for kidney stones in just one day.  Then another one the next week.  CT scans 2 in month, I should be glowing by now, not to make fun, but I too worry.  Anyone know the statistics???
Tough times don't last long, tough people do!


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6050
   Posted 6/21/2008 4:45 PM (GMT -7)   
well one of my CT peeps tells me that i will soon be on the "list" . for only CT's of and emergency nature.. i have had maybe 30-40 over the years. and dozens of sbft's. lowers, chest, abdomen series etc... so i would say you ok for quite a while yet
randynoguts 



     http://www.geocities.com/randynogutsweb/


Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 6/22/2008 4:40 AM (GMT -7)   
I had the same question. After three in one year and seeing the cost, as well as always walking back to the screen myself and looking, I decided that if I am not FULL-FORCE DEFCON 1 ER READY I will not get another one. They show inflammation indicative of Crohn's and fluid retention in and around the area.

Had a CT Scan set up for next Friday on a machine for small bowl. When I called the imaging company to ask how much it cost and they told me $2,267 plus the fees associated with reading (my out of pocket $700 - $800), I told them to hold that until I was at a pain level of 12.

Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 6/22/2008 4:44 AM (GMT -7)   
Oh, by the way, donut,

Where is your diverticulum? Do you have it in your small bowel? I have it all in my ileum. Just wondered. I can tell the difference between CD and divertculitis without a doubt. That limits our diets even more. NO SEEDS!! :-)

Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/22/2008 8:07 AM (GMT -7)   
Texan with Crohn's said...
I had the same question. After three in one year and seeing the cost, as well as always walking back to the screen myself and looking, I decided that if I am not FULL-FORCE DEFCON 1 ER READY I will not get another one. They show inflammation indicative of Crohn's and fluid retention in and around the area.

Had a CT Scan set up for next Friday on a machine for small bowl. When I called the imaging company to ask how much it cost and they told me $2,267 plus the fees associated with reading (my out of pocket $700 - $800), I told them to hold that until I was at a pain level of 12.
 
Wow, a pain level of 12? I only go to 10!  You must have a high painlevel threshold!  I guess I am happy that living in Canada does have it's pluses, we dont pay for individual costs. One flat fee (income based) a year.
Tough times don't last long, tough people do!


Shoshanna
Regular Member


Date Joined Feb 2008
Total Posts : 91
   Posted 6/22/2008 11:17 AM (GMT -7)   
I agree with the fact that too many doc's order CT Scan's....more so in the emergency department than else where.  I really can't tell you how many CT Scan's that I have had done over the years.  My GI doesn't order to many, neither does my GP or other doc's...they are always done in the ER.  It is because it is the quickest way to find out what is up with the patient.  Like Crohn's 4 Ever I have a very high tolerance of pain.  I have told the doc's that the pain is a 8 when at low point and a 25 when it is high.  Lice Crohn's 4 Ever I too have medical that is paid for (yearly on my taxes) in this wonderful country Canada.  As for everything I don't have insurance...but at least my visit to the hospital and the doc is covered through my medical insurance...just wish my medications were covered...:(

Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 6/22/2008 12:33 PM (GMT -7)   
Crohn's 4 ever -

The GI doc that diagnosed me was from Canada. I drove the poor man crazy because I do not "go gentle in to that good night"... I question EVERYTHING and research everything. I think I drove him back to Canada, he's heading back up there next month. devil

Here in the states what you pay depends on how good your insurance is. I pay higher for a PPO plan (I do not have to get a referral for each specialist I see). Even with that I pay almost a 4th of my salary to CD. Yep, that's right all in the states. This year I am most certaily going to hit the tax deduction... missed it by 200 dollars last year because I didn't keep all my receipts.

Crohn's 4 ever -

I actually don't have a very high threshold for pain. I just want to make darn sure that if I am going to pay $700 dollars I get my money's worth. Gotta make sure my child (single mom) has everything she needs, so I try to keep "my" expenses as low as possible - as possible as I can control. A solid 12 should do it. :-)

-Leslie a/k/a Texan with Crohn's

donut
Regular Member


Date Joined Jan 2008
Total Posts : 54
   Posted 6/22/2008 7:08 PM (GMT -7)   
Hi Texan. My diverticulitis was all in my sigmoid colon. The colonoscopy that I had this week indicated that my whole colon looked clear since the resection. It is the terminal ileus that has the inflammation now. The diverticulitis pain used to be in my left side...like kidney pain. This pain from the small bowel was centered right around my navel. Very different pain, but both gut-wrenching. My husband and I talked a lot today about my options and I am going to go with what my surgeon suggests. I will wait two weeks and have another small bowel x-ray and then if indicated, have the CT. If the inflammation is gone, then I will skip the CT. It helps to read everyone posts to see how you deal with so many tests. Thanks!

Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/22/2008 7:54 PM (GMT -7)   
Shoshanna said...
I agree with the fact that too many doc's order CT Scan's....more so in the emergency department than else where.  I really can't tell you how many CT Scan's that I have had done over the years.  My GI doesn't order to many, neither does my GP or other doc's...they are always done in the ER.  It is because it is the quickest way to find out what is up with the patient.  Like Crohn's 4 Ever I have a very high tolerance of pain.  I have told the doc's that the pain is a 8 when at low point and a 25 when it is high.  Lice Crohn's 4 Ever I too have medical that is paid for (yearly on my taxes) in this wonderful country Canada.  As for everything I don't have insurance...but at least my visit to the hospital and the doc is covered through my medical insurance...just wish my medications were covered...:(

I feel for you, I am fortunate to have my husbands company coverage 100% paid but we do pay a higher costs, for that plan.  With all the drugs out there, seems like the ones with the most devestating side effects, like Prednisone, is so dirt cheap.  Remicade is $4,200.00 allergic to it and then went to Humira, which is $700.00 a shot and get two shots in one box.  Entocort which did something in the beginning and that was a whopping $300.00.  Some people get Trillum coverage?? I dunno much about.  Humira is helped by Abbot Labs to cough up some.  Sorry I cant help much. Take care.
Tough times don't last long, tough people do!


xraygrrl
Regular Member


Date Joined Aug 2004
Total Posts : 102
   Posted 6/23/2008 5:45 AM (GMT -7)   
Overuse of CT scans has become a hot topic in the radiology community due to a recent study. After this came out, my clinic saw a decline in the amount of CT business we were getting, especially in children. Here's an article about it:

http://health.usnews.com/articles/health/cancer/2008/05/30/facing-a-ct-scan-think-about-radiation.html
 
[* I just activated the URL - C2]

Post Edited By Moderator (CrohnieToo) : 6/23/2008 3:32:34 PM (GMT-6)

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