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caligrammy
New Member


Date Joined Jun 2008
Total Posts : 3
   Posted 6/22/2008 10:20 AM (GMT -7)   
I have just started taking Humira about 1 1/2 weeks ago after having a flare up.  I was just wondering if and when it starts helping with the joint pain?  I am stiff and achy ALL the time.  I am hoping it will help with this.  It seems to help with my stomach aches and diarrhea.  The GI doc really didn't know.  He just offered to send me to a rheumy. 
 
 

Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/22/2008 11:08 AM (GMT -7)   
Hi there, umm, no, unfortunately it only helps Rhumatoid arthritis, not osteo or crohn's arthritis.  I have been on it 3months, but I am flaring way too much, even took one dose early.  I am now on 7 pred pills a day.  Have to think about my 3rd surgery.  Started my pred yesterday and the body joints were painful but today it is fine.  Good luck with Humira, I wish you all the best.
Tough times don't last long, tough people do!


Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
   Posted 6/22/2008 1:26 PM (GMT -7)   
I'm not sure about the joint pain (knock on wood I don't have that issue yet), but for me it took 4 weeks before I began to feel the results of the humira. And then it was dramatic -- no more pain, formed stools, more energy. Hang in there!
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Entocort, and Remicade
On Humira since 1/08 with promising results, but can't get below 5mg Prednisone
Take Tylenol #3 as needed when not in close proximity to a bathroom.
Put back on 40mg Prednisone again during mid-March flare, ack
4/9/08 Humira dose increased to 40mg/week
Down to 10mg pred


potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 6/22/2008 8:32 PM (GMT -7)   
Give it some time. Three to four months and you should be really noticing a huge difference. I no longer have any joint pain. It was a gradual change for me. I suddenly stopped having to go to the bathroom as much. I started to feel better and not so tired. The joint pain subsided. No more mouth sores. Everthing just got better and better until I noticed that I was mostly without any symptoms at all. It was and continues to be amazing for me. I hope it helps you.

wahoo217
Regular Member


Date Joined Mar 2004
Total Posts : 55
   Posted 6/23/2008 7:04 AM (GMT -7)   
I actually had my first 4 shots of Humira a week ago. The first 2 days after the shots I started feeling less tired an thought I felt a little better. Then, from Friday on, I've been going to the bathroom even more it seems. and it's even worse than it normally is! I actually thought I was getting dehydrated yesterday. I asked the nurse how long it normally takes to start feeling better and she said a week. Has anybody experienced maybe getting a little worse before they got better on Humira? Also, how long does it seem to take everyone else to notice a difference?

karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/23/2008 8:30 AM (GMT -7)   
Crohn's 4 ever said...
Hi there, umm, no, unfortunately it only helps Rhumatoid arthritis, not osteo or crohn's arthritis.  I have been on it 3months, but I am flaring way too much, even took one dose early.  I am now on 7 pred pills a day.  Have to think about my 3rd surgery.  Started my pred yesterday and the body joints were painful but today it is fine.  Good luck with Humira, I wish you all the best.

Darn, I was hoping to get some relief from my arthrits when i start Humira (I should take it Wed Finally, if my rx mail order gets it to me)
 
I guess if my rheumy was wrong and it is not just plain old arthritis then it might help.... interesting...
 
wahoo217, I am glad the Humira is starting to work on your gut issues!!!
 
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 


Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/23/2008 9:23 AM (GMT -7)   
Hey Karen, I do noticed that when your Humira does work it eliminates your flaring and helps to combat arthritis, but it takes up to 3 months.
Tough times don't last long, tough people do!


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/23/2008 9:30 AM (GMT -7)   
thanks, Crohn's 4 ever! that is good news!
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 


Travisr6
Regular Member


Date Joined Feb 2005
Total Posts : 192
   Posted 6/23/2008 10:04 AM (GMT -7)   
I've been on Humira for just over 3 months now. No huge help in the joint pain area yet, but maybe it's just me...
-------------------------------------------------------------------------------------------------
Travis
Crohn's- Dx'd Sept.16th 2004
Imuran, Prednisone, Humira, Nexium, Iron, Donatal

"Whatever tomorrow brings, I'll be there
With open arms and open eyes"


caligrammy
New Member


Date Joined Jun 2008
Total Posts : 3
   Posted 6/23/2008 12:36 PM (GMT -7)   

Thanks everyone.  I was just wondering if anybody knew since it doesn't seem like the doctors do.  LOL.  Reading a lot of these other comments I don't have it so bad.  I can usually control the diarrhea and just occasional stomach aches.  It's just I ALWAYS have the joint pain, aches and chronic fatigue that I deal with.  It is just nice to know that there are people that know what I'm talking about and don't think that I am just a complainer.  I was told in the beginning that I have fibromyalgia but then I wasn't diagnosed with Crohn's yet.  So who knows what it is.  I don't really care.  All I know is that it sucks hurting everyday of my life.  ( and I'm only 43) I feel like 80.  So thank you again for all of your advice.  I hope for the amount of money I pay for it, it will help.

 


staci100
Regular Member


Date Joined Mar 2006
Total Posts : 111
   Posted 6/23/2008 7:11 PM (GMT -7)   
I got relief with arthritis and joint pain from a Chiropractor. I told my GI about it and he seemed to already know that the Chiropractor could help.
Diagnosed 1993
Currently taking Asacol, 100mg Immuran, 7.5mg prednisone (tapering), Bi-weekly Humira injections since Feb 08, Fish Oil, Probiotics, Multi Vitamin, B-12 tablet, folic acid


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/24/2008 2:52 PM (GMT -7)   
thanks staci100, my mom said the same thing. I hate to add another visit to a Dr though :)

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 


staci100
Regular Member


Date Joined Mar 2006
Total Posts : 111
   Posted 6/24/2008 7:29 PM (GMT -7)   
If it works for you it sure will be worth it! I still go every now and then just to keep my body in alignment.
34 years old
Diagnosed with CD 1993
Currently taking Asacol, 100mg Immuran, 7.5mg prednisone (tapering), Humira injections twice monthly since Feb 08, Fish Oil, Probiotics, Multi Vitamin, B-12 tablet, folic acid


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/25/2008 7:16 AM (GMT -7)   
thanks staci100

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 

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