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Date Joined Oct 2007
Total Posts : 390
Posted 6/22/2008 8:02 PM (GMT -6)
Since my last flare (from which I am still recovering - I am back at work and can make it through the day without several naps, which I consider recovering) I am still having symptoms. The last 2 flares were healed with Prednisone - my current dr doesn't want me to take it, bone loss, side effects, etc etc so I have taken 6mp, Liada (briefly) and now Remicade to try and get me into remission. From talking to other people with Crohn's colitis and experiencing this lack of rapid healing, for the first time I am realizing that it is a possibility that may stay somewhat sick all the time. So I am going to try and do whatever I can to pick up where my (sometimes absentee doctor) leaves off!
My question is this - how quickly has anyone who has tried a vegan, wheat or gluten free diet seen results AND does anyone currently "practice" (for lack of a better word) all 3? I am finding it difficult - things seem to be meat & dairy & gluten free but have eggs in them. Or they are wheat free but have gluten, etc etc.
Are there any wheat & gluten free vegans out there who have Crohn's and are finding that it is worth the trouble?
Thanks again in advance for all advice, I get great feedback from this board. :)
32 yr old Female
Currently on Remicade, Oxycodone, Protonix, trying to remember to take Multivitamin and Calcium, need to start taking Probiotics and Omega 3-6-9
Presently healing from a flare and 2 week hospital stay, during which abcess was drained by surgeon
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Date Joined May 2008
Total Posts : 1445
Posted 6/22/2008 9:24 PM (GMT -6)
I started gluten free (which implies wheat free by the way since wheat has gluten) a week ago and it has reduced the gas and bloating, at least so far (I don't want to come to any conclusions yet.)
Eggs don't bother me when I cook the yolk hard. I actually love eggs!
Dx'ed in 1999. No surgeries.
Current meds: 75 mg 6MP. 20mg prednisone. Udo's Choice Probiotics (30 billion).
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Date Joined Mar 2006
Total Posts : 1034
Posted 6/22/2008 9:53 PM (GMT -6)
i was basically done, facing ostomy surgery when i started the maker's diet. i had pretty much run out of meds to try and options. the makers diet gets you eating organic and off processed/refined foods and sugars. it saved my life. probably literally. i noticed a response in like 3 days and i cheated starting on the maintenance phase, phase 3, cos phases 1 and 2, which are detox phases, seemed way to difficult. but individual results do vary, so please keep that in mind.
the diet does allow grains, but promotes sprouted grains. i have found after redoing the diet properly starting with phase 1, following the outline in the book, that i do much better with no to little grain based foods. i search for sprouted first, gluten free second. i refuse to eat anything with/made from white flour. i use other grains now in
cookies and baked goods, which i make myself now cos i can control the ingredients. i've had to change my lifestyle around cos the diet has you doing a lot of food shopping and preparing your own meals. but it is totally worth it. i feel way better and cooking and eating is much more pleasurable. i actually look forward to my meals, enjoy making them, and like planning my meals and shopping for new foods to try. it has become a hobby. i also eat as low glycemic as possible. i find this helps a lot too.
the makers diet is hard when starting. it takes a lot of will power and determination. but it is habit for me now. i am so used to eating this way that when i go off it for a meal i run the risk of getting sick cos my body is no longer used to "normal" food. but dont let that scare you.
i have since incorporated aspects of the specific carbohydrate diet into my regime. that diet prohibits any grain based foods, so i cheat there on this diet, but i've found some of it handy to blend into the makers diet and making foods as legal as i can on both diets.
i am not vegan/vegetarian as humans are designed to be omnivores. there are days where by dumb luck i dont have meat, but they are few and far between. if you do go vegan/vegetarian, do some research first cos you'll have to supplement your diet to get proper nutrition as you cannot get all 8 essential amino acids and you become deficient in your b vitamins. meat eaters dont have this problem. and stay away from tofu and soy based foods. it is bad news. we've all been duped into thinking it is a health food. research that too. it must be fermented to be of any benefit and virtually all soy based products are not. beans dont supply nearly as much protein as meat does. but with that being said, people can do just fine on a vegan/vegetarian diet if they know how to supplement correctly.
wheat contains gluten. gluten free stuff includes bean and nut flours, quinoa, buckwheat, and i believe amarinth.
i have no trouble with dairy or eggs or cheese. i love the stuff. i think i probably have an egg a day (there is no link to food cholesterol and blood cholesterol, which is why the "eggs are bad for you" bit has died off, but of course the FDA in america cant admit they were wrong).
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07
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Date Joined Aug 2007
Total Posts : 4389
Posted 6/22/2008 11:21 PM (GMT -6)
I am both a vegetarian and gluten-free. I have not eaten meat, fish, or eggs since 1991 (1988 for meat & fish). I have not eaten gluten since 7/05. I do eat some dairy products (mostly brined cheeses and some butter), but I was dairy-free from 1988 to 2001, and for brief times after that. I have also had times when I have eaten nothing other than an amino-acid-based elemental diet. The exclusive elemental formula diet has resulted in gut pain decreasing within one week. Drastic dietary measures are necessary for me due to the severity of my symptoms (can be as severe as anaphylaxis) when I am not careful about
the ingredients of the foods I eat.
Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD (Lupus?), Osteoporosis, Anemia, T- & B-Cell Lymphopenia, malabsorption/malnutrition, Lyme Disease (Igenex Lab IgM WesternBlot positive/CDC negative), etc.
Meds: Pulmicort, Injectable Vitamin B12, Herbs, Nutritional Supplements, Homeopathy.
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Date Joined Feb 2008
Total Posts : 298
Posted 6/23/2008 1:22 AM (GMT -6)
I eat chicken and fish, no red meat. I stay away from processed foods and usually juice my veggies vice eating them raw. I drink Goats Milk and eat goat milk yogurt and seem to do okay. Sometimes things that work for me one month won't necessarily work the next month. I've tried the Maker's Diet and though it didn't work for me I adopted a lot of it's principles. I also tried the "Guts and Glory Program" (also from Jordan Rubin) and that didn't work either. All of our bodies are different, so what works for me won't necessarily work for you and vice versa. If this disease has taught me one thing it is patience! GL finding something that works!
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