What do you guys think???

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dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 6/23/2008 7:59 AM (GMT -7)   
My legs, from the buttocks , to the soles of my feet are aching so bad!! Sometimes I wish I didn't have them..
I've always had a problem, but not like this. I thought it was neuropathy due to lack of B12, then I wondered
if it was Humira causing (known side effect). So I called my GI, according to him, none of the above.
So what the hell is it??
BTW, diarrhea is also on the increase as is feeling unwell in general!!!

Thanks for listening guys.....
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 6/23/2008 8:25 AM (GMT -7)   
I feel your pain, man... Wish there was something I could tell you, but I don't even know what's up myself. I'm hoping its just a side effect from my medication (taking Asacol, Imuran, and prednisone)... but I'm going to get things checked out in-depth just to be sure... (Well, soon as I can get someone to listen to me and check things out)
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/23/2008 8:27 AM (GMT -7)   

Vicky, I also get really achy legs sometimes. I attributed it to my fibro. I take a muscle relaxer and it seems to help some.

Maybe a trip to a rheumy is in order? a rheumy might be able to do something.

Sorry you hurt so much!!!

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 6/23/2008 8:33 AM (GMT -7)   
Thanks Celey, I know you've been going through hell right now..

Karen I do take Soma for my fibro, but it's not cutting it. I did just check out the side effects of Tricor, as this is one of the
meds that they've increased lately. Yet another one that can cause muscle pain....

So I guess I need to take to my pcp...
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/23/2008 8:51 AM (GMT -7)   
Vivky, I take Soma also, do you notice it does not work as well as it did when you first started taking it? It almost seems my body gets used to the muscle relaxers.
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 


Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/23/2008 9:16 AM (GMT -7)   
Hey Dunny, I have had that!! My feet up to my knees and I couldnt even walk!  They were swollen and very painful.  The docs couldnt figure it out and this happened about 6 months after my surgery (5 years ago) , and they thought maybe thrombosis??? So they put needles in my belly, two times a day for a week of coumadin.  It eventually went away, didnt know what the heck it was, I had to wear slippers and one idiot doc said it was from wearing slippers, too much of using muscles that normally use in running shoes.  I still dont know if it was the disease, and i have heard others say alot about hurting feet and swelling.  Could be meds, or the disease, it was scary tho.  How are you doing now?
Tough times don't last long, tough people do!


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 6/23/2008 10:05 AM (GMT -7)   
Karen, yep, I think our bodies build a resistance to these meds. It's stupid really, I'm still taking them although it's rather
like taking a sugar pill. I guess that's how addiction start!! Although I've never been tempted to take more, to see if it works
any better... I was asked to take Lyrica, but that scared me too much. I guess, better the devil you know.....

4 ever, I haven't had any swelling. So I guess we don't have the same problem... But it still sucks, when you don't know what's up.....
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 6/23/2008 10:32 AM (GMT -7)   
Hi Vicky,,,sorry your hurting so much. Have you had circulation problems in your legs before. This is very painful. It can be caused by anything from sitting too much, standing to much, sitting in a way that cuts blood flow, or the old standard,,,who knows.. Either way it may be something you need to check. You don't really want to be a candidate for one of those scooter chairs, do you ?
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 6/23/2008 11:11 AM (GMT -7)   
Hey Sniper, uh uh,, no circulatory problems. I've left that little situation up to my husband. He goes for his double by-pass
surgery on Friday, and yep, you're right, it's painful. His blockage is high up in his abdomen, invading the main Aorta, so
even his butt hurts. Maybe all my problems are "the old standard" and right now stress....

One of those scooter chairs sounds good right now LOL....
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 6/23/2008 4:03 PM (GMT -7)   
Vicky Haven't a clue what's up with your legs and feet. You know a person could get a little jealous of a scooter chair. How is Keith holding up? Sending lots of good wishes your way for you both. lol gail

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 6/23/2008 6:50 PM (GMT -7)   
Gail, Keith is getting more and more nervous. He keeps slowly walking around the garden, looking for things to do, to take
his mind off it. He's telling me this is going to be a long week, and it's only Monday.... He also seems quite convinced that
he's not gonna wake up after surgery. I wish there was something I could say to convince him otherwise, but fear, has taken
over....
I will let you know on Friday night how things went. LOL.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts

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