Weakness... and I'm tired of the pain...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 6/24/2008 10:35 AM (GMT -7)   
Sunday, I didn't want to do anything... I pretty much laid in bed all day because I felt so weak. Like I could hardly grab anything... or move...

It seemed not to bother me Monday, though. I didn't have any weakness. And I went swimming... to try and see if maybe that would help the pain in my joints...

Today, I feel really weak again... And the pain in my hips and knees is so bad... I don't want to do anything. I didn't go to class today because it hurts so much and I feel so weak... and now, I'm really depressed.

I feel like I'm falling apart... What is wrong with me? Why can't I feel like a normal person? I just want to feel normal again... :(

*I'm going to do some research on my sleeping medicine.... Vistaril... maybe the weakness is a side effect...*
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


MELBATOAST
New Member


Date Joined Jun 2008
Total Posts : 7
   Posted 6/24/2008 10:48 AM (GMT -7)   
Celey...its so easy to feel down and out about life when you are having to deal with soooo much...this illness really is an eye opener for those who suffer from it, and to other who dont...they have no idea what its like...seriously...its good to have a strong support system around you to let you know youre doing everything you can to get by...
there are many days I feel like I dont have the strength to get out of bed too...but I find that I feel worse about myself if I just lay there and submit to the illness. Therefore, i put both feet on the ground and push myself to make it through another day!
:) keep your head up...the world is not picking on you!!!

Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 6/24/2008 10:56 AM (GMT -7)   
I'm trying... it's just so hard...

Anyway, I can't find anything that says Vistaril can cause weakness as a side effect...

I know prednisone can, but I've been on prednisone for a long time and I've never had weakness before... //@.@\\'...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Shellz0711
Regular Member


Date Joined Jun 2008
Total Posts : 54
   Posted 6/24/2008 11:02 AM (GMT -7)   
keep pushing through celey. I know its hard but you are a stronger person for dealing with this disease. It's okay to have these bad days, just relax, sleep and tomorrow will be a new day. Keep your head up celey we are here for you!

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/24/2008 11:53 AM (GMT -7)   
Celey,

There is a delicate balance between staying fit and overdoing. You will learn your tolerance for exertion and that will help you avoid the big swings in energy. It is good to be active when you can . . . but overdoing can be a big no-no if you are trying to recover from a flare.

I hope some rest will have you back to the swimming pool soon!! Your really will learn a new normal and all will seem better again. Its just a lot to take in until you figure out a few things.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 6/24/2008 12:29 PM (GMT -7)   
Celey-Do you have someone you can talk to on a regular basis? Perhaps a counselor, trusted aunt, or clergy? It sounds like you need and deserve a bit more support. hang in there. We are pulling for you. But don't be afraid to line up a little counseling. Even if it's once or twice. Can make a big difference in dealing with this chronic illness.

PS. Remember the definition of chronic--always there. Please, look into a bit more support. You shouldn't deal with all this alone.
23 years with moderate Crohn's/colitis; fistulizing crohn's; pentasa


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 6/24/2008 12:52 PM (GMT -7)   
 
 
 
     Celey,
 
     Have you been tested (however that is done!) for Fibromyalagia(sic)? Sounds sort of like those symptoms. But like a couple of other Crohnies noticed it sounds like depression along with fatique. Be careful with the excercise until you build up your strength, ok? I know it takes time. But God knows. I've done it 2 or 3 times in the past.
    Take care & consider that advice about counseling, its good.
 
    Sincerely,
    Matthew

kam#7
Regular Member


Date Joined Jun 2008
Total Posts : 125
   Posted 6/24/2008 1:08 PM (GMT -7)   
Celey -

Some days are so much tougher than others. If you are anything like me, I beat myself up on the bad days thinking that "I can do more..." It is really hard for me to cut myself some slack - I am a total perfectionist and I HATE not being able to do everything.

I have found great relief through talking with other folks with similar issues. One of my dear friends just got diagnosed with MS, so we talk frequently about knowing our limits. Sometimes I just need to hear that it is okay to take a few days off. My body tells me when it is time to slow down...my job is to listen and not let my craziness make my physical condition worse.

Hang in there -

KAM
KAM

35 year old female - Diagnosed w/Crohn's 2002 - Surgery 2004

Currently taking: Pentasa, Entocort, Immodium, Zoloft, Wellbutrin, Seroquel


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 6/24/2008 1:15 PM (GMT -7)   
Hi Celey Sounds like your still having lots of joint pain wish I could give you the answers your looking for. When is your next GI appointment? I just got the pool here filled so will soon be swimming myself. Hope the water warms fast. Do you take calcium for the bones? I feel the same as you do about the body aches I'am having. Better days ahead I hope . Get back to the DR. and keep pushing for answers and I know your tired of trying but don't stop now. How much pred. are you on now? lol gail

Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 6/24/2008 1:50 PM (GMT -7)   
I got a counseling appointment lined up for July 1st... and I just got off the phone with a counselor (was feeling really depressed)...

I don't think I have been tested for fibromyalgia...

I started taking a calcium supplement a few months ago... But I've been on the prednisone for way longer than that and haven't taken calcium (didn't have the financial means to get the calcium myself)...

I didn't think I overdid it at the pool... I really thought it might help with my joint pain, but judging by the way I've been feeling since this morning, I think it made things worse... :(

And... I'm going down a dose today since its been a couple of weeks.... Just 20 mg today and for the next couple of weeks...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 6/24/2008 2:20 PM (GMT -7)   
Hi Great you going down on the pred. Swimming is suppose to be easy on the joints golly I hope it will help me. I find I'am not bad if I keep going but find it hard to get up after sitting .You said your weak are you eating? The calcium should be good for you. So what did you do today? Did you find the cunselling helpful. lol gail

Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 6/24/2008 2:43 PM (GMT -7)   
I'm eating... I'm running low on food... *I'll get that taken care of when I can...* Sucks because the prednisone makes me so hungry....

I mostly stayed in bed today... and yes, the counselling was helpful...

Thanks for your concern, Ga... and everyone else, too. Thank you all...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/24/2008 7:07 PM (GMT -7)   
Hey Celey, you sound like you could have mono??? Just a wonder because it is spreading amongst young people these days. Talk to your counselor and see what happens. Cheer up there, tomorrow is another day!
Tough times don't last long, tough people do!

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 3:35 AM (GMT -7)
There are a total of 2,733,991 posts in 301,165 threads.
View Active Threads


Who's Online
This forum has 151299 registered members. Please welcome our newest member, ABBear.
205 Guest(s), 3 Registered Member(s) are currently online.  Details
Tirzah, tdnjam, fiddlecanoe


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer