I SPOKE AT SENATE TODAY FOR IBD BILL 5046

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tlw
Regular Member


Date Joined Nov 2006
Total Posts : 87
   Posted 6/24/2008 7:16 PM (GMT -7)   
Well everyone!!
I did it!!!
It went great.  As an advocate for the Crohns/Colitis Foundation, myself and 4 others were asked to testify before a committee of Michigan Senators to persuade them to pass the IBD BILL 5046.  If passed, this bill will allow crohn's/colitis sufferers earier access to public restrooms.  The bill has been passed in Illinois and a few other states, pending in 12 states and Michigan is considering the bill.  It was to my surprise that anyone would object to it; but the chamber of commerce as well as another organization does not want it passed due to the fear that it will costs business owners to spend money putting in public restrooms in their place of business.  We're not asking that they do that.  All we're asking is that they let us have access to their 'employees only' restroom if they don't want to add another restroom.
The testimonies were all very good; I got a bit emotional talking about my experience and began crying but they were patient with me.  A couple of other testimonials were quite tearful as well. 
I think we were very well received by the senators. 
However, the oppossers did not show up and instead, sent a letter.  I guess they were not brave enough to see us face-to-face to tell us what their objections were. 
In any event, the next step is something I'm asking from all of you in the states.  Please contact your legislation or senators and request that they pass IBD Bill 5046.
Thanks to you all and have a blessed evening.

tlw
Regular Member


Date Joined Nov 2006
Total Posts : 87
   Posted 6/24/2008 7:27 PM (GMT -7)   
I have edited this post. Please remember the forum rules - no advocacy of medical, personal or political causes.

Thanks,

Ivy.

Post Edited By Moderator (ivy6) : 6/24/2008 8:42:52 PM (GMT-6)


Betagirl
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Date Joined Jan 2003
Total Posts : 1928
   Posted 6/25/2008 5:47 AM (GMT -7)   
I met the girl who started Ally's law here in Illinois after having an accident in an Old Navy up in the north suburbs. She was such an inspiration and much older in her speech and manner than her youthful exterior. She's certainly going to go far in life. I'm happy to see others following in her footsteps to get these laws passed. Kudos to you!
"Only the meek get pinched...the bold survive."


CrohnieYogi
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Date Joined Oct 2006
Total Posts : 367
   Posted 6/25/2008 6:44 AM (GMT -7)   
{I have edited this post. Please remember that HW rules do not allow advocacy of political causes - Ivy}


Also, I know the lady who is trying to get it passed in Washington. There is a little more to passing the law than one would think. The retail establishments have to be assured that their businesses will not suffer. (If you look at each states' laws, there are exceptions to access--if there is only one employee in the store, etc)

Post Edited By Moderator (ivy6) : 6/25/2008 6:42:17 PM (GMT-6)


Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/25/2008 6:56 AM (GMT -7)   
In Canada we have CCFC cards and some stores show a sign that you can use the the restrooms, but still not in all places. Very few and far between. Keep up the fight, it is worth it!
Tough times don't last long, tough people do!


potty pooper
Regular Member


Date Joined Dec 2006
Total Posts : 375
   Posted 6/25/2008 10:09 AM (GMT -7)   
Thanks so much for fighting for this cause. I will do my part in trying to get this law passed.

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2142
   Posted 6/25/2008 10:39 AM (GMT -7)   
that is great, I always have a fear about asking to use the bathroom in small places, its like, do you think I was saving it up all day today just to use your bathroom, coz i'd much rather use my own!

I was in the liquor store the other day and all of a sudden just had to go and this woman I thought she was a customer and she came out of the back room and I was like, is there a bathroom back there and she was like there sure is, I would not have made it up to the front of the store to ask, especially if there were ppl in line and then having to cut in front of everyone to ask and to have to explain, I need to know right now......it was just great that it was so easy.

I think if they have a bathroom, they should let us use it. Once when I was little, I was walking home from school and had to pee, well the store I stopped into would not let me use their bathroom (don't remember why) and so I just squatted and pee'd in my pants right there in the middle of the store on their floor, I just could not hold it in any longer. Would they prefer we poop our pants and have it drip down our legs onto their floor?
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


Jen77
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Date Joined Mar 2006
Total Posts : 2690
   Posted 6/25/2008 12:29 PM (GMT -7)   
Thank you for going there and doing that! Sounds like a wonderful bill, and it's hard to believe some people are cruel enough to oppose it. I would agree that it would be asking too much to have them build a restroom if they didn't have one. But I see nothing wrong with letting a customer use a bathroom that's already there. Sounds like good business to me, since I tend to go back to the places that treat me well!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 15 mg *eek*, Asacol, Questran, Toprol XL (for high blood pressure).


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/25/2008 12:40 PM (GMT -7)   
Thank you for standing up for all of us!!! I had a situation where I had to get off the trolley because I needed a BR so bad. Closest place to the trolley was a visitor information center. I went in explained that I was ill and needed a BR immediately and the lady pointed across a VERY BUSY street to a McDonalds, I started to cry and told her I can't make it, and she finally let me use their bathroom. There was no way I could have ever waited for traffic and crossed that street to get to the McDonalds. Although I was very grateful to this lady and told her so afterwards, she still acted like she was perturbed. I agree with Jen77 businesses that are good to me, get my repeat business.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 6/25/2008 4:12 PM (GMT -7)   
Thank goodness someone is doing something somewhere to help people who already have enough to bare in life. Keep up the flame and hopefully improvements will continue for us . Cheers to the USA !!!! lol gail

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/25/2008 5:45 PM (GMT -7)   
You might be interested in this study that has just been done in Australia.

toilet survey
Co-Moderator Crohn's Forum.


Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/25/2008 6:10 PM (GMT -7)   
Hey Ivy, interesting survey, here in Canada we do have cards, I never got one, more reasons just because there are not enough business' that dont give kindly to people running in and out.  I would even take my own TP and pay a buck if I had too.  This is an embarrassing disease.  I go to coffee shops mostly or back door of McDonalds, and sometimes I buy a pop or coffee, just easier than getting bawled out. Glad TLW is stepping up to the plate. Awareness is needed, huge! :-)
Tough times don't last long, tough people do!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/25/2008 6:38 PM (GMT -7)   
We have cards too. The issue is that businesses aren't recognising them. I'm one of the people the survey mentions who've been forced to walk 200+m to a place that will provide loos.

Do you find that a lot of McDonalds toilets are revolting? I do - will avoid them if I can.
Co-Moderator Crohn's Forum.


Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/25/2008 7:50 PM (GMT -7)   
Actually no, Mc Donalds is one of the cleanest, they have spotless bathrooms, they are checked hourly, and signed off, for cleanliness.  Only one Mcdonalds was discusting but it wasnt the bathroom it was the whole place and I was gonna complain but I realized later the new one was almost built right next to the old one. I take disinfecting wipes or antibacterial gel and use it everytime I touch a cart or door.  As a general rule (study done in Canada) only 20 percent of the men wash their hands and women 40% which really surprised me.  Common doors coming out of the bathroom I use papertowels.  Have to be careful not matter where go.  But when you gotta go, you gotta go, could be worse could be in your pants!  LOL.
Tough times don't last long, tough people do!


tlw
Regular Member


Date Joined Nov 2006
Total Posts : 87
   Posted 6/27/2008 1:07 PM (GMT -7)   
ivy6
thanks for the survey.
as far as macdonalds', i think it is one of the cleanest public restrooms when i'm traveling on the road and have to make a quick stop. i find them the cleanest of the other places on the road. (but i don't get out much) LOL
thanks again for the survey.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/27/2008 1:13 PM (GMT -7)   
Boy if I gotta go, I don't care what the BR looks like to tell you the truth. I just quickly put toilet paper on the seat (if seat covers aren't available) and do my business. And I have to agree with the above posts, most McDonald's I have been in have very nice BR's.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 6/27/2008 1:50 PM (GMT -7)   
I guess I just don't see why it is such a big deal for business to just let people use the toilet. TP and soap is not that expensive.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/27/2008 4:29 PM (GMT -7)   
FitzyK23 said...
I guess I just don't see why it is such a big deal for business to just let people use the toilet. TP and soap is not that expensive.

I dont know what the big deal is.  Get this...about 17 years ago before I was dx's I had diarreah, so bad, went to a very small town  laundromat and wanted to go to the bathroom,,,, and I mean I only had 5 seconds, or else!  The owners were sitting outside and said "bathrooms are only for customers"!  I was young and stupid and so I ran across the street at a small grocery store and they let me go!  I made it!  But looking back then, could you imagine the mess, that THEY would of  had to clean up?  There was no internet back then, but if I knew then, what I know now.  They would of been boycott because I was in that small town visiting since I was a 6 year old.  What could I have done to their precious bathroom that would destroy their business???? Word of mouth goes a long way.  Now I am not so naive. eyes
Tough times don't last long, tough people do!


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 6/27/2008 7:02 PM (GMT -7)   
I had an insident not long ago and I was denied acess to ther bathroom because it was for employes only and needless to say I had an accident because of it.When you take people that are not aware of Crohns-IBS they don't get it and the only way for them to get it is to be heard and that is what you did,and I thank you for taking a stand.
Curley
.........
 


Poppa T
Regular Member


Date Joined Nov 2003
Total Posts : 99
   Posted 6/28/2008 5:52 AM (GMT -7)   
Kudos for going in front of the Senate,It really frosts my cookies when i go to use a public restroom in the mall or even some restaurants and see the condition.how in the HE double hockey sticks can people be so dirty,i can only imagine what their homes look like.a card would be a good idea,it would be easier to give that to an attendant than saying please sir,i gotta go poo.I live in Capac,mi and would be interested in getting involved TLW.please send me an email

john
 
       regards,
             john 
 
        "when you see only one set of footprints in the sand,that is because you were tired and HE carried you"


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 6/28/2008 12:51 PM (GMT -7)   
i live in mass and ally's law is pending here. i did my part and sent letters via email to our local senate. i got 2 responses back, an email from one and a letter in the mail from another.

i highly commend you for going before the senate and speaking about your personal life.
.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits

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