Mid-flare/New GI Doc/No Medications - just needed to vent

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Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 6/26/2008 4:30 AM (GMT -7)   
A work conflict last Friday threw me into one hell of a vomiting, D, and pain flare. I have been off food since Monday and am very weak.

I saw a new GI doctor that is hung up on narcotics (I understand. He doesn't know me). I did not ask for any from him to begin with - he flagged me for use of them and anxiety medication (I wrote out everything I take and all my doctors with phone numbers. He a) will not start me on immurane as we discussed, nothing for nausea/vomiting (which I did ask for) until I have SB CT Scan, which I cannot afford right now. b) contacted my PCP and pain management doctor and requested that I not treated for my CD symptoms - he told me this on the phone when he called me late yesterday. I understand that he does not know me, nor bare no malice of his actions. Just think it doesn't make sense to say, Okay. Stop ALL meds.?.? I am so honest and exact with my doctors... just seems strange.

Long story short: I am now out of **all** medications and am very, very, v e r y frightened. The D is bad enough with much needed pain medication - about to find out just how bad it will be without it. I don't even have an anti-panic button/pill here!

Just frightened and wanted to tell someone to get this off my mind in a safe and supportive/non-judgmental environment. I will not frighten my friends/family with this, my daughter most especially. I have sent her to her grandmothers for a few days just in case I go fetal.

Have B12, gatorade and chicken broth and three rolls of TP. I don't know what natural medications will help here or how bad this is going to get physically and mentally... about to find out.

Thanks for lending an ear.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/26/2008 6:11 AM (GMT -7)   

I would stick to a liquid diet, hopefully that will help the gut settle down.  As for the nerves there are some natural things you might try, such as Valerian or St Johns Wort.  I would suggest you also take a probiotic, that will keep the bacteria level at least.

Can you get in to see one of your other doctors?  You need to have some kind of treatment and this guy is being a jerk for not helping you at all.  I will definetly keep you in my thoughts and prayers.  Good luck!


Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 6/26/2008 8:17 AM (GMT -7)   
Hey Texan - what happened at work? Last I knew someone was sticking up for you and you might not be layed off. Any word?
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 6/26/2008 6:54 PM (GMT -7)   
Hey Nanners -

Thanks. I am on chicken broth and water for the time being. Thanks for the recommend on the over-the-counter. I will go pick some up and try them. I know that pain and nausea makes me stress... and stress worsens the pain and nausea - double-edged sword. I already had standing appointments for PCP on Monday and PM on Tuesday as I am off the next week for female procedure tomorrow. I will listen to my PCP and do as he tells me. I know and trust him, as I have been with him for 15 years.

Hey Fitzy -

That's what started this WHOLE round of flare. Guess I am safe for the time being. Of course, it is non-reconcilable between us. I am being proactive by starting a search. I did go into work today long enough to train a last-minute new hire that started today. I cannot give my wonderful boss any reason to believe I am not capable of doing my job due to this disease. As soon as I was done training, I left for the day.

Thank you both for replying. I was so nervous this morning that I needed to come here and rant a bit.

Well, back to bed I go. Kinda weak and puny from being off food for four days now.

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 6/26/2008 7:05 PM (GMT -7)   
I am so sorry you are having to go through this. When I read in you post that you sent your daughter to her grandmothers all I could think is what a wonderful mother you must be. I know its hard to send her away even for a few days but to think of her first and not wanting to frighten her or be unable to care for her well ((Hugs)).
I hope the universe aligns itself to help you through this time and my prayers will be with you.
Sj

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 6/26/2008 7:08 PM (GMT -7)   
My pharm told me I could take dramamine for naseau as long as I could stay awake. If caffeine doesn't kill you maybe take the dramamine w/ some coke or vitamen water w/ caffeine. As for anxiety I like rescue remedy. It is a bach flower spray that tastes like whiskey but has a calming effect. Be careful w/ St. John's Wart because it interacts w/ other medications like birth control.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/27/2008 6:48 AM (GMT -7)   
Good idea about the dramamine Fitzy, I forgot about that one. I was in Mexico once and didn't have my nausea med with me, went to a little clinic and they gave me a shot of Dramamine and it really helped. I know they sell that in pill form over the counter here in the US. Texas that will help some with the nausea, give it a try. Good luck!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 6/27/2008 8:08 AM (GMT -7)   
Thanks again, you two wonderful peeps. :)

Nausea and pain are starting to subside. Still on liquids... probably will keep it that way for a few more days just be cautious. (hungry though) I do not have to go into work for the next nine days, so I can lay up and rest. Funny, I haven't been off work for this long for anything but illness since 1985. Oh, and today is my three-year anniversary! Yahooooo, I made it - take that, Captain D!!

Gotta admit, I was worried that after taking pain medication daily for approximately six weeks and then stopping abruptly was going mess me up... I mean I have heard stories. I am doing okay. No problem in this area at all, thankfully. I believe that the new GI doc wants to be sure I am not bringing this on myself by substance abuse... quiet the opposite. Started to tell him on the phone that this is not one of those what came first, the chick or the egg things. Crohn's first, medications that assist in daily survival second. Sure want to try the Immurane we talked about.


An off-track thought for you all:
I was in the car driving into work the other morning while on the phone (no wrecks or anything) and I was telling one of my oldest friends about how I wish people with any maladies that require a daily cocktail of medications, vitamins and supplements could go to the pharmacy and the pharmacists/apothecary could put together one single, daily-dosage pill that has all the necessary ingredients. Now, that's a my crohnie dream there.

Going back to bed.

karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/27/2008 9:22 AM (GMT -7)   

Oh texas I am so sorry about all of this. I really think the Dr is out of line here. I can understand no pain meds cause he does not know you but to no CD meds while in a flare is crazy. I would try to see another Dr if possible. Also, have you thought of asking the old Doc to call in an RX for what you are out of? you need something to get you out of this flare so you can eat and not be so weak.

I wish you lots of Luck!!!

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort Switching to Humira June 2008 will wean off Pentasa and Entocort

Diagnosed w/  Fibromyalgia May 2007 also on Soma - Also on Prilosec for reflux.

 

 


Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 7/2/2008 6:47 AM (GMT -7)   
Went into my PCP and we discussed everything that the GI visited with him about. What the GI doc did not know is that my PCP and I are very loyal to one another. The PCP is my entire family's doctor and we are his priortiy, not the spcialist. Still gets under my skin that the specialist would be calling my doctor and telling him not to prescribe anything for crohn's or effects of crohn's (nausea and pain).

I now have nausea and panic medication. He asked if I needed any pain meds, but I told him not right now. I am still not on food, so I'm not digesting anything - so no pain.

PCP did suggest that I up my Omega three intake from one to three a day. He is the one doc that I will always listen to and respect... because he cares. His patients are not a number.

Anyways, just thought I would post an update. Hope this post finds everyone doing okay... okay is good in my book.


If I continue to feel better I think I will head out to the ranch on Friday and throw a leg over my horse.

Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 7/2/2008 9:30 AM (GMT -7)   
I am happy to say that last night I had my first solid food. I ate a small part of a Scholotzy's (sp?) sandwich (minus the top bun due to seeds) and no veggies, just turkey and swiss. It was WONDERFUL!! Their spongy bread is great. Of course, I took baby bites and chewed each bite 50 - 60 times just to be safe.

My PCP suggested that I up my Omega3 supplement to three a day, so I started that. Oh, I almost forgot. For swelling I have been using turmeric, a natural anti-inflammatory found in curry powder. I have been putting yellow curry powder on almost everything I eat. I think it is helping!!

Specialists... they just think they know everything. I know my body enough to know when to stay at home vs. going into ER and vs. doing unnecessary tests that will show inflammation and fluid buildup for a mere cost of 3000. lol

So my friends, the time has come for me to end this rant. Still in flare, but it's slowly getting better each day.


You ALL are wonderful people. Your support always gives me the strength to get through the day. I tank you for that, from the bottom of my heart.

Take care,

-Leslie a/k/a Texan w/ Crohn's

karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 7/2/2008 11:41 AM (GMT -7)   
So glad you got the meds for Nausea, my zofran is a godsend sometimes!!!! It helps so much.

I am glad you are feeling better.

I am lucky, My gi is a good one and really does care. He refuses to prescribe pain meds though, he says we need to treat the disease and the meds hide problems. I say phooey, Tylenol sucks and does not help me and I hurt sometimes!
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort Switching to Humira June 2008 will wean off Pentasa and Entocort

Diagnosed w/  Fibromyalgia May 2007 also on Soma - Also on Prilosec for reflux.

 

 

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