I did my first Humira shots and it was not bad at all...

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karendee
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Date Joined Mar 2007
Total Posts : 1642
   Posted 6/26/2008 7:19 AM (GMT -7)   
it did not hurt much at all. I felt some stinging. After reading some others experience I thought it would hurt more. It did burn a little but not at all what I expected. Also, I took 2 Tylenol this morning so that might have helped. I will skip it next time and see how I feel.
 
I was so proud I did all 4 shots all by myself. The nurse helped me and taught me a lot. I watched the Humira video at home and my nurse was much better. She gave me some good tips and a Humira starter kit. We iced the areas on my legs and left the pens out for a few minutes. I also used her practice pen to try on a small pad. it made it much easier.
 
Thanks for all your help everyone! I had to come by here and tell all of you I did well.
 
I think worrying about it was worse than the actual shots (I used the pens)
 
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort Switching to Humira June 2008 will wean off Pentasa and Entocort

Diagnosed w/  Fibromyalgia May 2007 also on Soma - Also on Prilosec for reflux.

 

 


yogaprof
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Date Joined Apr 2006
Total Posts : 1665
   Posted 6/26/2008 8:46 AM (GMT -7)   
good girl! I felt very proud when I learned to give myself shots (I used syringes) and I found it nearly pain-less. it is nice to feel some control over treating yourself, yes?
I hope you feel great soon. yp
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


ZenaWP
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Date Joined Aug 2007
Total Posts : 884
   Posted 6/26/2008 9:04 AM (GMT -7)   
karendee, I'm glad they didn't hurt you, but they sure did hurt me!  I got my first shots on Saturday and, although I read where people on here said they hurt a lot, I was used to Cimzia burning some, so I didn't think it would be any different.  Oh my gosh, I was wrong!  It hurt a lot when the medicine was going in, and I even let it sit out first and all of that.  I think I will try icing the spot first next time, to see if that dulls it.  =)

Crohn's Disease, Acid Reflux/Gastritis, Hypothyroidism, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


karendee
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Date Joined Mar 2007
Total Posts : 1642
   Posted 6/26/2008 9:59 AM (GMT -7)   

thanks yogaprof, it does feel good to be in control!

I had barely any pain, the needle is very tiny, I looked at one of them and it was small. But needles never really bothered me before so I might have a higher tolerance for pain.

ZenaWP, we iced mine for a few minutes, the ice was in a rubber glove and the site was red it got so cold and I could feel some numbness in my leg at the spot I iced when I pinched the skin. My nurse also said to put quite a bit of pressure on the skin since the force of the medicine going it will almost push it away. That seemed to help. Also, my shots seemed to take much less than 10 seconds. One was longer but the first one was real quick.

I hope Ice helps you next time! it did for me.

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort Switching to Humira June 2008 will wean off Pentasa and Entocort

Diagnosed w/  Fibromyalgia May 2007 also on Soma - Also on Prilosec for reflux.

 

 


karendee
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Date Joined Mar 2007
Total Posts : 1642
   Posted 6/26/2008 10:01 AM (GMT -7)   
Also, I might add I was so nervous I was in the bathroom 4 times before my visit with the nurse this morning. Stress, really aggrivates my CD.

Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort Switching to Humira June 2008 will wean off Pentasa and Entocort

Diagnosed w/  Fibromyalgia May 2007 also on Soma - Also on Prilosec for reflux.

 

 


Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/26/2008 10:05 AM (GMT -7)   
Good for you karendee!  I use the syringes and very fine needles, and I dont prep for nothing, yeah it stings for a minute but when I press down with a clean Guaze for a minute after it is fine and catches any little trickle of blood.  I have been on it since may 28th and although I am going to see my GI in a few hours, my meds may change, dont know yet.  I had no problem with the belly either, actually it hurt less there probably because I have more cushioning there LOL.  Good luck, hope Hurmira works for you! yeah
Tough times don't last long, tough people do!


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/26/2008 11:55 AM (GMT -7)   
thanks, Crohn's 4 ever! I have cushioning in my legs too... so that might be why it did not hurt much

I hope you get on a med that works for you!!
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort Switching to Humira June 2008 will wean off Pentasa and Entocort

Diagnosed w/  Fibromyalgia May 2007 also on Soma - Also on Prilosec for reflux.

 

 


Aimee =)
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Date Joined Jun 2004
Total Posts : 1020
   Posted 6/26/2008 2:35 PM (GMT -7)   
I felt the same as you - I had scared myself to death but once it was over, I realized it truly wasn't that bad.

I will say that the pain differs from time to time. Sometimes, I can feel nothing and am so proud of myself while other times it hurts like hell! I am not sure why it's different each time... so don't be surprised if the next time is more painful for whatever reason.

I've been on it 1.5 years now and it's a blessing for me, even if I sometimes hurt worse than other times.

karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/26/2008 2:48 PM (GMT -7)   

thanks, Aimee!!!

karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort Switching to Humira June 2008 will wean off Pentasa and Entocort

Diagnosed w/  Fibromyalgia May 2007 also on Soma - Also on Prilosec for reflux.

 

 


wahoo217
Regular Member


Date Joined Mar 2004
Total Posts : 55
   Posted 6/26/2008 2:58 PM (GMT -7)   
I felt the EXACT same way. I was in the bathroom a few times before my visit too. I was so nervous. Watching the video right before made me even more nervous. For me, and so far, the anxiety was worse than the shots....buuuuut...we'll see if I still feel the same way on Monday when I get my next 2!!! :P Hope it works for you Karen!

Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 6/26/2008 3:48 PM (GMT -7)   
Oh my gosh! I'm sooooooo happy for you. I can't believe it wasn't that bad! That's AWESOME! I took my first 4 shots almost a week ago and the medicine stung so badly I would rather have cut my leg off with a chainsaw (NO KIDDING!) Even more awesome is that you did it yourself! You go girl! I hope it really works for you.

Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
   Posted 6/26/2008 3:57 PM (GMT -7)   
Wow, I am so impressed that you did all 4 by yourself so smoothly - way to go!! Wishing you good results from the Humira.

Funny that another poster mentioned that sometimes the shots hurt more than others -- I have that experience too, and I just thought I was nuts, LOL. I do the same procedures each times, using the pens, and sometimes not-so-bad, other times overwhelming.
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Entocort, and Remicade
On Humira since 1/08 with promising results, but can't get below 5mg Prednisone
4/9/08 Humira dose increased to 40mg/weekly
Down to 7.5 mg pred


caligrammy
New Member


Date Joined Jun 2008
Total Posts : 3
   Posted 6/26/2008 7:22 PM (GMT -7)   
CONGRATULATIONS on doing the shots yourself.  I took my second set of two today and tried to talk myself into it for 10 minutes and still couldn't do it so the nurse taught my daughter.  She did very good and it hardly hurt at all.  We rubbed the syringe in our hands for about two minutes to warm it up.  Maybe that is what helped to not be so painfull as the first set.  Maybe I will try to do it next time.  I do think that the anxiety is the worst part of it all.  LOL
 
Teri

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 6/26/2008 8:23 PM (GMT -7)   
Karen, I'm so pleased it didn't hurt you. I've been doing mine for about 6 months now, and I can honestly say I never
hurt myself... I also have weekly B12 shots. I gotta admit I'm getting good at this shot stuff....
However, the B12's are leaving some nice bruises on my legs. I think before I go on vacation in November, and when my
husband is recovered, I'll have him give me the B12 shots in my butt. He originally offered to do it, BUT he seemed much
too keen for my liking LOL so I just "went" for it myself. Oh I'm so good, and so are you LOL
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 6/27/2008 2:02 AM (GMT -7)   
I am so proud of you as well for giving your self the Humira I was lilke you before I took my loading dose I thought that it would hurt realy bad as well but like you it did not the only thing that I felt was a little stinging and it did burn for a few secounds and that was it
Curley
.........
 


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/27/2008 4:54 AM (GMT -7)   
thanks eveeyone!!! All of you are such a big help! If my HW buddies can do it so could I :)

My hubby is too keen on giving me shots too....that is why I was determined to learn myself!
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort Switching to Humira June 2008 will wean off Pentasa and Entocort

Diagnosed w/  Fibromyalgia May 2007 also on Soma - Also on Prilosec for reflux.

 

 


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 6/28/2008 12:57 PM (GMT -7)   
I got the med on Thursday and am still waiting for humira to call back to send nurse/trainer. Am so anxious to start that I'm about to do it my self. WAtched the video, have had epi pen training myself, have a nurse next door. Should I wait? Do they usually take a while to send someone? I just want to start mending--yesterday was so terrible! So glad to hear folks are doing well on this med.
23 years with moderate Crohn's/colitis; fistulizing crohn's; pentasa


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 6/30/2008 4:59 AM (GMT -7)   
sammies, I used a nurse from my Dr office, they have an education department. I would try to wait if you can because I got some good tips from my nurse that I missed when I watched the video. If you want to do yourself maybe you can call humira nurse line and have them talk you through it? or does your doctor have any nurses that can help?

good luck. If you have any questions send me a message... I am new to this but I might be able to help.
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort Switching to Humira June 2008 will wean off Pentasa and Entocort

Diagnosed w/  Fibromyalgia May 2007 also on Soma - Also on Prilosec for reflux.

 

 


staci100
Regular Member


Date Joined Mar 2006
Total Posts : 111
   Posted 6/30/2008 5:51 PM (GMT -7)   
I was soooo sick when my Humira arrived.  The nurse couldn't tell me if it would be one day or several before she could come so I just read the instructions because I had not received my video yet and did it by myself.  I just couldn't wait one more day!

Travisr6
Regular Member


Date Joined Feb 2005
Total Posts : 192
   Posted 6/30/2008 7:30 PM (GMT -7)   
I have given myself Heparin injections in the past using Syringes so initially I wanted the syringes for Humira
....the Humira Pen is great though, I am glad I have that instead of the syringes.
I guess we're all a little different, but the pen seems o.k. if I leave it out for the 15 minutes they recommend prior to injection.
Don't get me wrong, it's not fun...but it only stings me for a little bit, stays sore for a little bit longer, then tender for the rest of the day.
The benefits have been great for me.
The only bad thing I get is headaches........I never used to get them at all, but since the Humira (3 months +) I get headaches all of the time.
-------------------------------------------------------------------------------------------------
Travis
Crohn's- Dx'd Sept.16th 2004
Prednisone / Humira

"Whatever tomorrow brings, I'll be there
With open arms and open eyes"


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 7/1/2008 7:22 AM (GMT -7)   
staci100, I watched the video on myhumira.com and it was pretty good. The pens are pretty easy so I could have done them alone if I had to. The nurse was very helpful though.

Travis, I like the pens too. The medicine stings some but I don't feel the needle.

I had one injection site that was sore. It bleed a little more. the nurse said it looked like I might have hit a capillary. That leg was sore some that night but was better the next day. The others hurt at first then felt better later.

Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort Switching to Humira June 2008 will wean off Pentasa and Entocort

Diagnosed w/  Fibromyalgia May 2007 also on Soma - Also on Prilosec for reflux.

 

 


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 7/1/2008 8:46 AM (GMT -7)   
well, I did it. Humira never called back to send nurse (after 2 calls from my doc's office and 3 from me) and we've got a lot of visitors and little trips coming up so my husband and I decided to do it today. Unfortunately, I got overzealous and tried to do the first one myself. Do you believe I wanted to surprise my husband? Anyway, I got nervous and didn't keep the cap down all the way on the pen--med wound up all over the floor. Oh, I was crying and screaming--so mad at myself. But he held the skin for the next three and it was fine! Just some burning during the 10 seconds each time. Called doc's office and GI was not worried--at least I got the three in without any problems he said.

Now, here's the funny thing. I've had epi pen training. Can you imagine if I'd done that for some poor person with a bee sting?! I could've killed them if they didn't get their med.

Well, here's to hoping this stuff works!! The posts here have been so helpful!
23 years with moderate Crohn's/colitis; fistulizing crohn's; pentasa


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 7/1/2008 10:01 AM (GMT -7)   
sammies, call humira about the one that squired on the floor. I have heard they will send a replacement pen when that happens. you could at least use it for the next dose if not now...

I am gald you did it... it was about the same for me stinging for the 10 seconds.

Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort Switching to Humira June 2008 will wean off Pentasa and Entocort

Diagnosed w/  Fibromyalgia May 2007 also on Soma - Also on Prilosec for reflux.

 

 


Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 7/1/2008 10:46 AM (GMT -7)   
Yeah I am taking my shot tonight, I am calmer at night and therefore it will be better for me. I do my own syringes, I am surprised at everyone's different pain they get from the shot. However I asked my nurse right from the get go which was less painful and she says most people find the syringes easier and less painful. I just leave my syringe out for half hour. Stings for a min, press on the spot for a bit and presto, done....
Tough times don't last long, tough people do!


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 7/1/2008 11:22 AM (GMT -7)   
Funny my nurse said the pens were easier. She said the needle is not very big... who knows I am ok with the pens for now.

Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort Switching to Humira June 2008 will wean off Pentasa and Entocort

Diagnosed w/  Fibromyalgia May 2007 also on Soma - Also on Prilosec for reflux.

 

 

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