Post Edited (MamaDove) : 6/26/2008 1:16:37 PM (GMT-6)
I was afraid of what you might tell me...The politics...More familiarity...If they will not entertain a transfer of records nor advise you of another hospital that's the beginning of the 'cover-up'...Exactly what happened to me...They held out as long as they could, diagnosed me Crohn's so severe I would die without Remicade, having my records fudged (re-written) to reflect what they preferred and left out ALL the info regarding any complaint about reactions and such...My husband came to my rescue...he proved it to me that I was being poisoned and made worse for profit...AND along came a nurse that sat by me and whispered "Get out of here, you will not survive unless you pull these IV's, get some strength back and GET OUT"...My angel!!!
As far as being rats...I felt like a lab rat with one added benefit...I had FULL health insurance...They covered everything!!! No questions, in fact they paid in one month after each hospital stay and had the gall to lie about it when I questioned them...They denied it until I told them I had the computer printout from the hospital computer of what was actually paid...CAUGHT!!!
If I had to do it over again, I would have went to a private hospital, not a non-profit state funded ( didn't know of such differences then) and I am sure I would have had completely different results...My other local hospital knows my story and says they hear stories like that everyday from that other hospital...Why am I the only one that has a problem with why this is allowed to continue???...I will be writing a book about my experiences with my illnesses for the past 15 years as well as a few chapters on my hospital nightmare...My idea for the title is SUNSHINE, RAIN and a hospital in Maine...My husband sees it differently and would like the title to be CAPITALISM: How it almost killed me!
KWAA...we unfortunately are not the only ones dealing with this and these illnesses have much leeway as far as proving the diagnosis, they seem to use all that leeway to make big $$$$...Heck, my lil town here has 4 GI's and 'owns' an entire floor in the hospital...During my 3 stays, they were either 'dead' or full of newly diagnosed Crohn's patients...These ego maniacs need to be eradicated but until then, we need to hit them where it hurts, in their pockets...Take your 'business' elsewhere and get what your SO truly needs...It may take some time and more pain than he is willing to go through but noone is going to help you but YOU...Do not rely on them...I remained sick for 15 years because of the experts and EVERYONE is aware of that fact yet they go about their lives, esp. the hospital workers cuz they need their jobs...
One more thing to prove what I am telling you is the truth...One nurse that ran my first IV was sent to me, I am sure of that...My body so badly dehydrated, they couldn't get a vein but HAD to in order to get me the medicine "poison" the doctor said I needed to live...She tried everywhere to get a line...The burning of the needle prick was torturous, I still feel, see and hear it...I got up enough strength to point to her where to put it, she agreed to try...She was shaking and began to cry (there was no denying that I was dying and she knew me well from the last visit and we had a connection) With no strength, I reached for her shoulder and said to her "I will help us get through this"...As the needle went in, her tears fell on my other hand...It was over...Actually that was just the beginning for me...the levaquin that poisoned me went through that line and I was never the same...I saw her a few months ago...She stopped me, grabbed onto me and began shaking and crying...She knows what she was a part of...I said "are you still there", she replied "yes honey, I need the job"...So as much of an angel as she was that day in my life, she is allowing more pain and suffering than anyone should ever go through...I am saddened by this but someday she will 'learn'.
Do what you must, find the strength to find the answers...I believe you can overcome this but do something today...Don't wait another minute...Peace~MamaDove
Haven't heard back from you...
Was wondering how things are going?
Hope to hear back from you soon, with good news~MamaDove