Post Edited (mmckenna) : 6/27/2008 8:01:48 PM (GMT-6)
Thanks for the advice. Matthew- You had a lot of good things to tell me that I didn't know. I am only on remi right now. I stopped prednisone a week ago. I am not on 6mp because my dr didn't know if it was safe for pregnancy and I wasn't ready to be done having a family so young, so he just put me on the remicade. I notice you on the board and I want to thank you for taking the time to be so clear. I have had the three loading doses and next week will put me at 6 weeks from my third dose. I think I am on 500 or 600 mg of the medication. I am a big girl so I know my RN gives me more due to my weight. I will see how this infusion goes and hopefully it will get me to six weeks, if not I'll ask them about upping the dose. I am trying mightily to avoid surgery and every time my symptoms return I get scared that that is what I am looking at. It feels reassuring talking with people on my same medication and someone that is experienced. I too love my RN and have really enjoyed our time together. My next struggle is my boss. She hassles me when I take time off for my infusion, but I can only get them on a Wed, Thurs, or Fri. She will have to get over it because I know remi is my wonder drug. It is giving me my life back.
Thanks for the info. It was again, great info and it really has me think about my options. I think I will give it more time and see how I feel. I will start marking when my symptoms come back so I have something to give to my dr. I didn't kinow they could give a double dose, so I will definately keep that in mind if upping it to six weeks doesn't work alone. I want to send my insurance company a Thank You note because without their approval I wouldn't be able to be in remicade. I am coming to the conclusion that my family may be complete, which would be fine because I have a beautiful son and daughter. I just never thought my body would fight me so hard at so young. I am trying to get to where I can work part time because full time is a killer. I am so glad I have HW. You have all made me feel better and knowing to give the remi more time is reassuring, even though that's what my dr said too. I love learning more and more about CD and remicade. I will keep studying and asking my questions.