How long do your flare ups last?

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abseeley
Regular Member


Date Joined Jun 2008
Total Posts : 49
   Posted 6/28/2008 2:33 PM (GMT -7)   
I realize that crohns kinda works on a flare up then remission and so on cycle. Just trying to get a vague idea, how long do your flare ups last (like major ones)?

AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 6/28/2008 2:38 PM (GMT -7)   
Mine have lasted from a few days to about a month. Although I think sometimes, I think the flare is gone and it is still perking. I am mildly affected when reading all the trouble the members here have.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

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MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 6/28/2008 2:41 PM (GMT -7)   
3 years and counting
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...


kgirlie
Regular Member


Date Joined Jan 2008
Total Posts : 101
   Posted 6/28/2008 2:56 PM (GMT -7)   

I don't want to be discouraging my mine is going on 11 months and it has been debilitating. Good luck to you. I have had crohn's a while and this is my second major flare. I tend to have my worst flares after I have a baby and I had baby # 2 about 11 months ago.

Kgirlie


Kgirlie
 
27 year old female dx with CD in 2001. Pentasa 4 g/day, Prednisone 30 mg/day, Lexapro 10 mg/day, Wellbutrin 150 mg/day, Remicade, topamax, nadalol, Maxalt 10 mg as needed. Mother of son, 3, and daughter, 10 months.  


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 6/28/2008 3:11 PM (GMT -7)   
My first one was almost a year but it took the doctors about 3 months to even figure out was wrong with me. This one has been a little over a month so far.
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS too
 
Meds I have tried:  Just about everything 
Meds currently on:  Prednisone 25mg tapering
                           Methotrexate injection 12wks
                           Folic Acid
                           Wellbutrin
No Surgeries
 


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 6/28/2008 3:13 PM (GMT -7)   
My flares last varying lengths depending on how I respond to them and how soon. When I used the denial method 18 months (I only ignored it the first 3 months then it took the rest of that time for treatment to actually work). When I have jumped all over it with both (steroid) feet-a few months and with many fewer symptoms.
Sj

Dory
Regular Member


Date Joined May 2005
Total Posts : 120
   Posted 6/28/2008 6:50 PM (GMT -7)   
I was diagnosed almost 10 years ago, have never been in remission.  Even after 2 resections.  Nothing seems to work for me, I have tried it all.  Now my sister, her flares last til she gets a quick dose of pred. goes right off after a few weeks and she is ok again.  I guess we really are all different.

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 6/28/2008 9:32 PM (GMT -7)   
I think in all the years Ive had CD I have only had the equivalent to one month a year of relative wellness (or my idea of being well anyway). Even the pred upped to 40mgs barely cuts it anymore.
I agree with Dory - we are all different, so dont be disheartened.
Joanne

lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 6/28/2008 10:10 PM (GMT -7)   
The longest flare I've ever had was about ten months. It was a severe flare and ended up landing me in the hospital on TPN.

The shortest flare I've ever had was prob a little over a month.
turboemma.blogspot.com/


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 6/28/2008 11:13 PM (GMT -7)   
It varies for me. Before diagnosis I was in a constant flare for years, since I wasn't being treated. Now minor flare ups can last a few days, to a few weeks. Anything more then that, and I'm in my doctors office. Or if my symptoms are sever of course. Last month my flare up lasted a few weeks, and then I went on prednisone. Within another week or so my flare had calmed down. Lets hope it stays that way!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 15 mg *eek*, Asacol, Questran, Toprol XL (for high blood pressure).


Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 6/29/2008 10:23 AM (GMT -7)   
I never feel well, I feel like there is something 'brewing' all the time.... but as far as major flares, I've had about 4, 2 after each of my pregnancies that lasted about 2 years. and the other 2 lasted, 3years and 5 months respectively. I feel that I have 'mini' flares all the time. I go on a liquid diet for a few days and it seems t settle.
51 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.,RLS, arthritis
 
 


Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 6/29/2008 11:25 AM (GMT -7)   
Jen77 said...
It varies for me. Before diagnosis I was in a constant flare for years, since I wasn't being treated. Now minor flare ups can last a few days, to a few weeks. Anything more then that, and I'm in my doctors office. Or if my symptoms are sever of course. Last month my flare up lasted a few weeks, and then I went on prednisone. Within another week or so my flare had calmed down. Lets hope it stays that way!

Yep, pretty much ditto for me too!
Tough times don't last long, tough people do!


abseeley
Regular Member


Date Joined Jun 2008
Total Posts : 49
   Posted 6/30/2008 5:08 PM (GMT -7)   
Well its great to know some people's flares are short, and dissapointing to know some peoples are long to never ending... I went about 11 months before being dxed....I hope its over soon.

LtlMissT
Regular Member


Date Joined Jun 2008
Total Posts : 20
   Posted 6/30/2008 11:43 PM (GMT -7)   
Everyone is going to be different...

I was having problems for 2 years when finally diagnosed. Most of mine will last 10 mos with a few months break... but some flares are only a month or so before a big flare hits. Good Luck!!
Loves & Always Smiles,
 
T. B.
 
~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*
23 year old Female
Crohn's diagnosed since age of 10
 
Humira Shot bi-weekly since 11.07 (luckily I have a great group of Patrollers/Medics at work who can administer it for me!!)
Anemic and now due to Humira - monthly Bladder Infections...
 
Never ending Symptoms... Always Different (which is why I refuse Surgery...)
 
*When Flared: 6mp and Prednisone...  TPN/Picc Line - 3.5 months in 2007 & 2 months in 1999.
Colonoscopies, endoscopies, Ct Scans, Upper and Lower GI's and the always fun Hospital stays.
 
*Previously Taken: Remicade (became allergic after 6 months, went into anaphylactic shock), Pentasa (also allergic to after months of taking), Flagyl, Asacol, Entocrt, Hydrocortisone...


Bonwilsky
Regular Member


Date Joined Dec 2006
Total Posts : 22
   Posted 7/1/2008 8:27 PM (GMT -7)   
Remission is our unicorn. My husband hasn't had anything resembling lasting wellness since his Crohn's first started up in 2006. We'll get his abdomen feeling okay, but his anal fistulas never quit and just ruin his well-being. I have to be honest and say that I am jealous of those of you who experence remission because I want it so badly for my husband. At the same time, I am happy for you because you get a break from all of the suffering.
Bonnie
Wife to 26 y/o diagnosed with Crohn's in August 2006
Possible perianal fistula presence for 2 or more years
Taking Remicade but switching to Humira 

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