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tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 6/29/2008 1:18 AM (GMT -7)   
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Post Edited (tsitodawg) : 11/12/2011 5:50:03 PM (GMT-7)


Dory
Regular Member


Date Joined May 2005
Total Posts : 120
   Posted 6/29/2008 1:27 AM (GMT -7)   
This is great news. Where can I get info for the state I live in? I was recently approved for SSDI, and I agree, why don't we try to make the best of it when we can. Thanks for sharing this.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 6/29/2008 8:29 AM (GMT -7)   
I have a brother who was a national park ranger and never knew this. Cool!
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Post Edited (MMMNAVY) : 6/29/2008 1:09:27 PM (GMT-6)


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 6/29/2008 5:14 PM (GMT -7)   
Ok, so is there anyway to get any of this is you aren't on SSDI? I'm barely employed so I've been able to keep my job, I only work one day a week at this point. But I love to make lemonade out of lemons and I've always been a glass is half full kind of girl so, anyone with some suggestions?
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 6/29/2008 5:25 PM (GMT -7)   
Hmm...I did know this and am really tempted to post a rant about how inaccessable federal parks are to the disabled-it would be inconsciable for them to charge when most of the parks are not usable by people with significant physical disabilities.

Okay, getting off my soapbox-most cities also give free access to public transportation including things like fastran-special medical transportation that can provide rides to medical appointments, day support services etc-(this may not be free-depends on medicaid).

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 6/29/2008 5:41 PM (GMT -7)   
I would just be worried that if you are on disability because of frequent bathroom trips and then start going to all these parks w/ your pass they might start to question how disabled you are if you can handle days at the park usually quite a distance from a bathroom without accident.

I obviously know that you would just use it on your good days but I can't help but wonder if it could come back to bite you some how.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 6/30/2008 6:35 AM (GMT -7)   
tsitodawg- very well said. I am not on disability so I wasn't aware that part of the application process involved saying what you CAN do as well. I am all for doing everything you can do. I think you totally understood my question though and answered it well!!
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 6/30/2008 9:32 PM (GMT -7)   
Nice to know it's there if I reach that point "disablity" in the future. I LOVE Camping!!!!!

Wanna know a secret....I've been checking out some RV's. Would love to get one in about 5 years from now. Gas prices will be so high I probably won't be able to cruise very far though! State Parks offer a whole lot cheaper rates than KOA campgrounds too!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.

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