UC'er with possible fistula?

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Regular Member

Date Joined Jul 2007
Total Posts : 172
   Posted 6/29/2008 10:14 PM (GMT -6)   
Hi everyone,
I've read where UC'ers can have Chrones symptoms. I get the mouth sores when flaring badly and GI says this is Chrones related, although the initial colonoscopy didn't show the granules nor did they do any other testing when the mouth sores surfaced.
Now I'm wondering if there is more to it?
I've been in remission of my UC for two solid months.  cool However, this past week, I've had soreness in my bottom and some extra bm's.  I thought it was something I ate that didn't agree (a nutty crunchy salty pretzel, chip mix thingie).
Anyway, I've had lots more gas the past few days and now I have a "sore spot" in between my anus and vagina.  It is also bleeding ever so lightly, when "tapped" with TP on the tip of my fingers. 
Is this a fistula?  An abcess?  Taking Canasa seems like the wrong thing in the wrong place.  It really hurts after going number one or number two.  Please help!  I have had this about a year ago and it was in the same area, only like a cyst.  I only had blood come out and it went away after awhile. 
Pancolitis diagnosed 5/07 
4 Lialda/day since 8/01/07
Canasa suppositories 1000mg, as needed

Regular Member

Date Joined Feb 2003
Total Posts : 60
   Posted 6/30/2008 6:55 AM (GMT -6)   
You can have Crohns colitis, that is what they say I have, try very warm sitz baths and try not to irritate it, could just be a hemmoroid or boil, hope it is not a fistula. Do the baths as much as possible. Good luck

Regular Member

Date Joined Jul 2007
Total Posts : 456
   Posted 6/30/2008 9:26 AM (GMT -6)   

I use Canasa suppositories when needed.  Whether it's UC or Crohn's, if you've got inflammation in the area, and it's helping, I say go for it.  I occasionally get so inflammed around my anus that I bleed slightly, without a fistula or anything else.  I think the skin just kind of gives up and I end up with very small tears.  I try not to let things get to that point, but a day of more frequent than normal bms can do it.  I try to use Calmoseptine (OTC, request from your pharmacist) when ever I start to see irritation.  That helps with the burning and itching, and protects the skin.  Usually a couple days of that brings things back under control, assuming that it was just a bad day or two and not an extended period of D.

The sitz bath was a good suggestion.  I find that they may sting at first, but once you get past the first few seconds, it feels really good.  I have skin tags, which makes it hard to wipe.  (Too many nooks and crannies!)  So it's one of the few times I feel really clean, too.

I would discuss the situation with your doctor.  At the very least, your current treatment isn't controlling all your inflammation.  And you have a legitimate reason to think that you may have been misdiagnosed.  (Which happens a lot with UC and Crohn's.)  If you can't get answers to your questions, get a second opinion.

Good luck.

Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 6/30/2008 10:28 AM (GMT -6)   
I was originally diagnosed UC but when I began presenting with Crohn's symptoms the next scope showed Crohn's pattern of ulceration too.  Hence my dx was changed to Crohn's.  For quite a while I was helped by the hydrocortisone enemas.  Good luck!

--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--methylpred - finally off 6/15/08, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08, started Xifanan 5/24/08 
--single mom to 10-yr-old girl

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 6/30/2008 4:18 PM (GMT -6)   
I would ask your doc about it.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 6/30/2008 6:19 PM (GMT -6)   
I agree that you need to see a Doc. who has experience with CD and perirectal abscesses and fistulas. This is very important to get a right diagnosis and good treatment. Abscesses are more common than you might think in the general population, but treating CD abscesses is a specialty. We just don't heal the same way.

Take care of yourself and take plenty of sitz baths until you see a Doc.

Veteran Member

Date Joined Mar 2006
Total Posts : 2670
   Posted 6/30/2008 6:36 PM (GMT -6)   
Gotta agree with seeing your doc. UC isn't supposed to skip around the GI track, that's a classic sign of Crohn's Disease.
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 10 mg *eek*, Asacol, Questran, Toprol XL (for high blood pressure).

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