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biloxigirl
Regular Member


Date Joined Feb 2007
Total Posts : 56
   Posted 6/29/2008 8:19 PM (GMT -7)   
Every time I try to get off the pred.  I start to use the bathroom more then once a day.  If that happens My groan area and left leg fills up with numerous lymph nods that are so pain full.  Plus sometimes I get lots of lymph nods all over hurting.  All the docs say is well that is just part of it.  I think I have more then just a bad bowl day to cause this.  I think something else is going on.  so I suppose my question is.  Does anyone else seem to have a problem with lymph nods swelling up and being painful?

tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 6/30/2008 2:37 AM (GMT -7)   
Are you talking about lymph nodes or nodules?  If I remember correctly from my Human Biology classes, lymph nodes can not move, but can swell.  If you are talking about the sores or red bumps that some us get during a flare, then you may be talking about nodules.

biloxigirl
Regular Member


Date Joined Feb 2007
Total Posts : 56
   Posted 6/30/2008 6:17 AM (GMT -7)   
nope nodes.. just like you get when you have pus on your glandes and your lymph nodes swell. its all over my body. bad in my gron area. even my ct scan read out that I have numberus lymph nods.

tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 6/30/2008 6:39 AM (GMT -7)   

What ever you are going through, it does not sound fun.  You got me curious, so looked up Lymph node and here is the definition from wikipedia:

Lymph node  is an organ consisting of many types of cells, and is a part of the lymphatic system. Lymph nodes are found throughout the body, and act as filters or traps for foreign particles and contain white blood cells. Thus they are important in the proper functioning of the immune system.

Lymph nodes have clinical significance, too. They get inflamed or enlarged in various conditions, which may range from as trivial as throat infection to life-threatening conditions as cancers. In the latter, the condition of lymph nodes is so significant that it is used for cancer staging, which decides the treatment modalities to be employed, and for determining the prognosis (the outcome of disease).

Lymph nodes can be also used for diagnosis by biopsy whenever they are inflamed

It really sounds like you what you are experiencing is referred to as nodules.  I get them on my legs and back.  They are part of the disease and start out like a pimple or bug bite.  I have had one that became infected and turned into staph.  YOu may want to see a doctor because it may even be foliculitis

biloxigirl
Regular Member


Date Joined Feb 2007
Total Posts : 56
   Posted 6/30/2008 8:39 AM (GMT -7)   
no this is not like a pimple or bug bite.  it is deep inside the body under the skin. the ones in the gron area get as big as golf balls. and the docs have said its like haveiing a throat infection but in the bottom end.  I wonder if I have something else going on besides crohns since nonone else seems to have this problem.   dang docs here.  I go see a new doc at the end of july.  Maybe she will be better help.  I not maybe I should go to oshners hospital I live close to new orleans. 

keepingthefaith
Regular Member


Date Joined Aug 2006
Total Posts : 331
   Posted 6/30/2008 7:33 PM (GMT -7)   
I am experiencing something similiar.  It is in my R groin area.  I think it is a lymph node & thats why your post caught my eye.  It has been swelling like a soft little ball just in the crease of the hip/leg.  I just had cervical neck fusion, don't know if that has anything to do with it.  I doubt it, cuz, I've noticed it before.  Its very soft feeling, but definitely swollen compared to the other side.  My annual girlie appt is coming up & will have it checked out then, but wanted you to know I am also having those issues.  Just one more thing to worry about.  Yes, I'm very afraid of swollen lymph nodes.  Right before my cycle starts the lymph node in my underarms are so swollen & pain they wake me at night.  I'm suppose to get an mri on the breasts asap.  Hope this helps.

Dx with CD 1987, 3 colon resections, 3 rectal abcess sx, anterior cervical neck fusion 6/2008. Major depression/anxiety, kidney stones & sx to remove, now 45 yrs old.  Still trying to figure this disease out & of course all the little extra complications that come with this rollarcoaster of a life with CD. Meds:Humira 40mg every other wk, Imuran .75 daily, welchol 625 x 3 daily, cymbalta 60 mg daily, fish oil, vit e,folic acid,Vit B12,inject monthly, Oscal w/Vit D, vicodin 4-5 daily 7.5
 
         
 
 


biloxigirl
Regular Member


Date Joined Feb 2007
Total Posts : 56
   Posted 7/1/2008 10:09 AM (GMT -7)   
let me know what your girl appt.  says.  I was wondering if it was bothering stuff there also, and if that was why. 

chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 7/1/2008 5:09 PM (GMT -7)   
I have had enlarged lymph nodes show up on a ct scan....my dr. told me that that indicates inflammation.

biloxigirl
Regular Member


Date Joined Feb 2007
Total Posts : 56
   Posted 7/1/2008 8:18 PM (GMT -7)   
hmm thats what my doc says.  I must stay inflamed 24/7  well this just sucks. lol
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