I think I really need a new GI; recommendation?

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Illy
Regular Member


Date Joined May 2008
Total Posts : 117
   Posted 7/1/2008 8:19 AM (GMT -7)   
I'm in NY/CT area.  My doctor knows nothing about diet, is not up on research literature, knows nothing about new tests.  I'm so jealous when I read about your docs.  (sounds like Boston is the place to move to!)  you can pm me, I guess this board has that option?  thanks!

MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 7/1/2008 8:29 AM (GMT -7)   
Don't live there and would not have any recommendations, but a good rule is if you know a hospital nurse, or someone who does, they usually know whose patiemts do well and who they would feel most comfortable with if they needed a specialist.

wahoo217
Regular Member


Date Joined Mar 2004
Total Posts : 55
   Posted 7/1/2008 8:36 AM (GMT -7)   
I would suggest Dr. Steinlauf. He actually was working underneath Dr. Present who I believe actually worked with Dr. who discovered Crohn's disease. I believe he's associated with Mount Sinai Hospital. I had my surgery in NY and was overseen by Dr. Present and Steinlauf. I would really recommend them though. Good luck!

yankeespg23
Regular Member


Date Joined Dec 2007
Total Posts : 63
   Posted 7/1/2008 9:17 AM (GMT -7)   
I see Dr Ullman in MT Sinai hospital. Great Dr and good guy, would definetly recommend him.
Mt Sinai has several top G.I Dr if your willing to travel to Manhattan. Its 5 -- 98th street, 11th floor. between Madison and 5th ave. Phone for appointment : (212) 241-4299
Good Luck
33 yr old Male from NYC, DX with Crohn's in oct of 1987, at age 12.
Resection in 1990 at age of 15.
Currently on Humira pen shots, 40mg weekly. Cipro 2x a day.
Multi vitamin daily,  B 12 pill 2x a day.
Anemic again, started iron IV infusions.


Illy
Regular Member


Date Joined May 2008
Total Posts : 117
   Posted 7/1/2008 11:19 AM (GMT -7)   
hm...called MS GI, on hold for 40 min....not promising!  had to hang up

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 7/1/2008 12:34 PM (GMT -7)   
Hi Illy . . . just so you know. . . no one can email or message you unless you include that option in your profile. Just a thought. (I'm in Ohio so can't help with this one.)

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

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Illy
Regular Member


Date Joined May 2008
Total Posts : 117
   Posted 7/1/2008 12:41 PM (GMT -7)   
Oh, OK, thanks for telling me.

CrohnieYogi
Regular Member


Date Joined Oct 2006
Total Posts : 367
   Posted 7/2/2008 1:27 PM (GMT -7)   
Hmm....I would give Mt. Sinai another try.  Dr. Ullman really is great.  He is everything you are looking for (up on the latest,etc)

petittarte
Veteran Member


Date Joined Apr 2006
Total Posts : 686
   Posted 7/2/2008 4:05 PM (GMT -7)   
I go to office of Drs. Katz, Tepper and Fung Liu in Great Neck, NY. They have a clinical research facility on site and are up to date and the latest research, tests, treatments, etc. I was referred to them by one of the co-founders of CCFA.
Jodi

Remicade and 6MP


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 7/2/2008 4:17 PM (GMT -7)   
Sorry wish I could help but I'm also in Ohio. Hope you find someone good!!
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS too
 
Meds I have tried:  Just about everything 
Meds currently on:  Prednisone 25mg tapering
                           Methotrexate injection 12wks
                           Folic Acid
                           Wellbutrin
No Surgeries
 


Illy
Regular Member


Date Joined May 2008
Total Posts : 117
   Posted 7/3/2008 1:29 PM (GMT -7)   
Thank you everyone!  I finally got through to Dr. Ullman's office but no appts till Sept!  I also saw the Great Neck site,  and emailed them.  Thanks and have a nice weekend!

yankeespg23
Regular Member


Date Joined Dec 2007
Total Posts : 63
   Posted 7/3/2008 2:39 PM (GMT -7)   
Your welcome.
That is prob the only negative, Dr Ullman and the other DR there are busy. It is still well worth it. When I have my appt, on my way out I make a new appt. I see him every 2 to 3 months.
have a good weekend.
 
33 yr old Male from NYC, DX with Crohn's in oct of 1987, at age 12.
Resection in 1990 at age of 15.
Currently on Humira pen shots, 40mg weekly. Cipro 2x a day.
Multi vitamin daily,  B 12 pill 2x a day.
Anemic again, started iron IV infusions.

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