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Buddha443556
Regular Member


Date Joined Jun 2008
Total Posts : 293
   Posted 7/3/2008 7:58 AM (GMT -7)   
I've been running all over town trying to get government assistance. The only way I've been able to do this is to eat and drink once a day usually as soon as I get home (between 12 and 4pm usually) from running around. So basically with no AC, fever, night sweats and diarrhea, I'm pretty dry by the time I get going in the morning. Just the walk to the bus stop can wipe me out depending how hot it is. I did community service yesterday and I was really close to collapsing from heat stroke or a heart attack or both. (Never had this racing heart thing till recently.) I finally broke down suck on some ice and drank a small amount of water when I stopped sweating completely and they told me to "sit down your really pale." I didn't make it home without a emergency stop a local store bathroom ... no accident but it was close. I then got caught in the rain just wasn't my day.

I got medical assistance but getting to see a doctor is a whole new problem. The only prescription I have is for Dicyclomine (Bentyl) but I'm a afraid to take it because of this fasting regiment. If I ate more and more often I'd probably be in a serious flare up but as it is I go between 8 and 10 times at night which is about normal for me. Liquids still go right through me.

Is there any other tricks I can use to dealing with travel?

Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 7/3/2008 8:17 AM (GMT -7)   
Buddha443556 -

Welcome. If you are off food, please make sure you put gaterade and at least chicken broth in your system. In addition, pick up some Omega 3 vitamin, a multi-vitamin, and some dissolvable B12. When I am off food, the above items are my staples. I was off food for eight days. I just had my first solid food yesterday. If it wasn't for the vitamins, broth and gaterade, I would have been too weak to walk - you don't want that if you have to be out of bed. The B12 you can drop under your tongue and they will disolve instantly. This will keep your immune and nervous system under control.

As the pain subsides, start with chicken and rice soup. When that goes well with little or no pain, move up to chicken noodle soup... and so on. Most here have been on a liquid diet. I am finding that it is just part of this wonderful disease that we all struggle with. We are all here when you need us. This place is wonderful and full of supportive people.

Best wishes to you.

-Leslie a/k/a Texan

mmckenna
Veteran Member


Date Joined Jan 2006
Total Posts : 725
   Posted 7/3/2008 8:17 AM (GMT -7)   
Sorry to hear what you are having to go through right now. Sounds like you are having a tough time. I hope you can get some medical help soon.

It's hard to say what will work since everyones disease is different. I've experienced some of what you went through, but probably no where near as severe. I've times when I'm flaring up that drinking anything is dangerous. Eating any food is a gamble as well. Sometimes finding the right schedule can help. Also, I've heard that eating at one time and drinking fluids at a different time can help. I guess the idea is that if you eat and don't drink, it keeps things a bit more sticky and solid, so they hang around longer.
I know that keeping hydrated, especially in the extreme heat, is very difficult. I used to have a job where I worked outside for long periods. Keeping enough water in my system was very difficult. Being able to drink anything, and not having it trigger violent BM's is sometimes difficult. Truth is your body needs water to function, and the symptoms you experienced with the racing heart and sweating sounds like you were in danger.
Sometimes getting the right foods in can help. Things like bananas, rice and dry toast can help reduce diarrhea. I personally found that fasting doesn't work for me since it just opens up the gut and allows anything I consume, food or liquid, to just shoot through faster. My disease runs from the diarrhea to blockage symptoms, and can change daily. I've found it very difficult, but possible, to find a balance, although staying there can be tricky. You may want to try some of the foods that traditionally stop things up as a possible solution. The other thing you can try are the water soluble fiber supplements that can sometimes slow down the transit times of foods.

I hope you find something. Sounds like you are having a very tough time.
Matthew McKenna,

"I'm just along for the ride."


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/3/2008 8:19 AM (GMT -7)   
You have to very careful not to become dehydrated.  You have to at least keep continually drinking water.  You can't just stop everything until you get home.  You should be drinking water and maybe eating some bananas to keep your potassium levels up.  The rapid heart rate is a sign that you are already dehydrated.  This could cause some serious problems.  Since you have medical assistance now, maybe you could get put on a steroid (Prednisone or Entocort) to get things under control.  But fasting is a big no no, it could become a life and death situation.  Please be careful.

Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


mmckenna
Veteran Member


Date Joined Jan 2006
Total Posts : 725
   Posted 7/3/2008 8:23 AM (GMT -7)   
Not to contradict what Leslie said, but try the gatorade at a time when you can deal with it. I personally have found that the large amount of sugar in it makes my diarrhea a lot worse. If it does that to you, you can cut it with a mix of water to reduce the amount of sugars. Also, research oral rehydration salts. I have some packages of this I keep in my backpack when I travel. It is a quick way to treat dehydration. It is a package of powder you mix with water and drink. It has the stuff your body needs to recover from water loss.

I agree 100% with the vitamins and minerals, those are important. The B12 is very important as a lot of times the disease affects the section of the gut that normally absorbs it.
Matthew McKenna,

"I'm just along for the ride."


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/3/2008 8:24 AM (GMT -7)   
By the way, if you are already thirsty and wanting water, you are already dehydrated. Just fyi! And Texas is right drink chicken broth, gatorade. You have to have something in your system or you are going to wind up in the hospital in an emergency situation.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


mmckenna
Veteran Member


Date Joined Jan 2006
Total Posts : 725
   Posted 7/3/2008 8:40 AM (GMT -7)   
Yeah, dehydration, coupled with blood loss from in your intestine is very bad. I did that once and ended up in the hospital in a very not nice section where they watch everything you do with lots of monitors and wires. My heart was starting to do strange and bizarre things, and they put me in with the cardiac patients. Not a good place to be.
Matthew McKenna,

"I'm just along for the ride."


Buddha443556
Regular Member


Date Joined Jun 2008
Total Posts : 293
   Posted 7/3/2008 9:54 AM (GMT -7)   
WOW! Thanks for all the replies.

mmckenna, yep sugar does have that effect on me. I'll check out those re-hydration salts too.

So, far no bleeding at the moment (have it bad sometimes) but I'm not taking anything for the pain either. (I could really use something today.) I finally figured out Aspirin and Ibuprofen make bleeding worse and cause flare ups. Acetaminophen screws up my liver which would make the dehydration even worse. I think I'm out of over the counter options for pain, they don't work any more and the side effects are going to kill me.

B12 deficiency is possible, I'm sure I'm suffer from some type of anemia but only a blood test will probably tell me what kind.

I actually only started losing weight recently which with my fat ass is probably a good thing. I haven't had a diet because I always tried to make sure my mother had the things she liked to eat. She was on a renal diet but just getting her to eat was more important most of the time. I really haven't exam my diet, I have no idea what food are better or worse for me.

I figured fasting was a big no-no but with no other option I was desperate.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 7/3/2008 10:08 AM (GMT -7)   
I'm sorry for what you're going through as well ((HUGS))...instead of the gatoraid may I suggest you by pedialyte instead, gatoraid is full of sugar and dyes which can have a negative impact on one with IBD, pedialyte is a much safer liquid to consume and it also contains the electrolytes needed when becomming dehydrated...you could also eat at least some yogurt (plain is likely best) and maybe something like watermelon which is mainly water and usually pretty easy on the gut even for an IBDer...and chamomile tea.

I hope you find a way for things to work out so it's not so physically demanding on you cuz it will affect you mentally/emotionally if you're not careful.

:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)


mmckenna
Veteran Member


Date Joined Jan 2006
Total Posts : 725
   Posted 7/3/2008 10:15 AM (GMT -7)   
Wow, sounds like you have your hands full. Hang in there, and don't be afraid to ask for help. Dealing with your own disease can be tough enough, but having to help your mom too really can put things over the top. Doing all this without a whole lot of medical help is incredible.

Asprin and Ibuprofin are things that any GI will tell you to stay far, far away from. Those can lead to a lot of trouble.

I got the rehydration salts at a outdoor supply store. I think they are intended for backpackers and the like, but they are good to have on hand.

If you are in pain, you should really talk to your doctor about it. It's pretty common for them to prescribe things that are stronger than you can get over the counter. I know when I am having blockage symptoms, none of the over counter stuff will work. The good/bad thing about some of the stronger pain meds is that they can cause constipation. This can be good if you are having a lot of diarrhea, but bad if you are having blockage symptoms.

Hey, hang in there. It really sounds like you have your work cut out for you. Good thing is that with good medical care, you should be able to get your symptoms under control and be able to lead a more normal life.
Matthew McKenna,

"I'm just along for the ride."

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