losing sense of smell and taste?

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Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 7/3/2008 12:35 PM (GMT -6)   
Is anyone else having this problem?
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 7/3/2008 1:23 PM (GMT -6)   

I know my smeller still works . . . .

But my taster is so off that I don't even want to go out to eat anymore . . . as I'm always disappointed, even at nicer restaurants. So . . . yes . . . nothing tastes good anymore.

Sorry you are having this problem too.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

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Regular Member

Date Joined Jun 2008
Total Posts : 49
   Posted 7/3/2008 2:02 PM (GMT -6)   
Never heard of this in some relation to crohns... losing your sense of smell is known as anosmia (sp?).. and my smell/taste is great

Regular Member

Date Joined May 2008
Total Posts : 117
   Posted 7/3/2008 2:55 PM (GMT -6)   
I am not having this right now, however, I have at certain phases, pre-diagnosis. it was not long lasting and went away on its own.  I've read zinc deficiency often causes this.  It can come from malabsorption, diet, or, I think, too much copper can give a zn deficiency, or maybe it's the other way around.  try taking some zinc gluconate, maybe, can't hurt.  it can  also be associated with certain kinds of faulty signalling in the brain, but that's very rare.

Elite Member

Date Joined Feb 2004
Total Posts : 20552
   Posted 7/3/2008 3:30 PM (GMT -6)   
I've never had that...and I'm a smoker and smokers tend to have their sense of smell and taste reduced because of it...have you started any new meds recently?

It would really suck, especially to lose sense of taste...I just prepared my Greek salad for supper with salmon tonight, I couldn't imagine not being able to taste that.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

Veteran Member

Date Joined May 2005
Total Posts : 511
   Posted 7/3/2008 3:33 PM (GMT -6)   
Not a problem here
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS too
Meds I have tried:  Just about everything 
Meds currently on:  Prednisone 25mg tapering
                           Methotrexate injection 12wks
                           Folic Acid
No Surgeries

Veteran Member

Date Joined Dec 2007
Total Posts : 2113
   Posted 7/3/2008 3:34 PM (GMT -6)   
I would definetly check your meds, many medications have strange side effects and that could be it-someone else mentioned nutritional deficiencys and that is also worth checking. Hope you find what is causing this and can do something about it.

Regular Member

Date Joined May 2008
Total Posts : 117
   Posted 7/3/2008 3:46 PM (GMT -6)   
Oh, wait, sinus infection?  that might contribute to that also.

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 7/3/2008 4:54 PM (GMT -6)   
Smell goes along with taste so if your sense of smell is off, you will lose some sense of taste. Thats why I always hold my nose when I have to take those nasty preps and bariums. I had an aunt who lost her sense of smell from nasal decongestant, so that is another avenue to consider. Also, your sense of smell and taste decrease with age or so I'm told, just another one of those lovely perks.

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Veteran Member

Date Joined Apr 2006
Total Posts : 686
   Posted 7/3/2008 7:15 PM (GMT -6)   
My sense of smell has become more sensitive.

Remicade and 6MP

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 7/3/2008 7:27 PM (GMT -6)   
What meds are you on, Navy?

Have you noticed any other neurological-type-symptoms, like tingling in the limbs or ringing in the ears?
Co-Moderator Crohn's Forum.

Regular Member

Date Joined Apr 2005
Total Posts : 103
   Posted 7/3/2008 7:55 PM (GMT -6)   
the prednisone definitely hurt/ruined my taste buds. sweets aren't sweet. fruit is mostly bland. yes, it is an issue. it may just be the disease in general... but i've noticed it for sure!

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 7/3/2008 8:29 PM (GMT -6)   
I may be way off base here, but are you by any chance on Flagyl? I thought I heard that it could affect your taste and smell. Sure hopes its a temporary thing. (((HUGS)))
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Regular Member

Date Joined May 2008
Total Posts : 117
   Posted 7/3/2008 8:32 PM (GMT -6)   
when I was on flagyl, it gave a metallic taste to my food, but if I waited a few hours, it would go down.

New Member

Date Joined Aug 2014
Total Posts : 1
   Posted 8/13/2014 12:46 PM (GMT -6)   
I am having this problem... My doctor says that when there is a flare up, people can expect all different types of reactions. For about 4 yrs now, one of my tell-tell signs is swelling in my left ankle and foot and a loss of smell and taste. Not from a sinus infection either. FYI: I can breathe just fine, but can't smell or taste a thing. Going out to eat is usually a disaster. Nothing has a distinctive taste anymore. I can smell maybe 1/2 of the yr. Sucks!

Regular Member

Date Joined Jun 2014
Total Posts : 82
   Posted 8/13/2014 3:05 PM (GMT -6)   
The only time I had a loss of taste and smell was after surgery.  about a couple days after leaving the hospital I noticed not being able to smell properly and I couldn't taste my cigars anymore.  I talked to my doc and he said anesthesia has been known to do some weird things, but didn't know for certain.   Other than that when I flare up I actually seem to be light, sound and smell/taste hypersensitive.
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