For the ladies....Blood in stool during Cycle?

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want_2_be_well
Regular Member


Date Joined Sep 2006
Total Posts : 181
   Posted 7/3/2008 10:56 AM (GMT -7)   
Hey ladies, I have had blood in my stool during flares but my newest trick is blood in my stool during my menstrual cycle when I am not flaring.  Anyone else expierence this?  What was the cause?
 
Spoke with GI who wants to do a colonoscopy during my cycle.  However since I am irregular I have to go on the pill so we can try to schedule the scope mid cycle. 
want_2_be_well AKA Mel
32 year old Female
Diagnosed with CD 2006, had been ill off and on for over 10 years.
Also have seasonal allergies, milk allergy, and asthma.
CD Meds: Remicade every 8 weeks, Imuran 50 mg, Pentasa
 
 


MamaDove
Regular Member


Date Joined Dec 2006
Total Posts : 181
   Posted 7/3/2008 11:29 AM (GMT -7)   
 
I am dealing with the same problem...
 
To make a very long story short, I have concluded that for me it is likely endometriosis (History dating back to 1993,UC diagnosed 1995, always knew there was a connection)
 
Three years ago I began to have bleeding ONLY at the start of my cycle which usually tells a smart GI to investigate for endo...He did not wish to, but instead my condition worsened with every drug they added and I ended up hospitalized with liver and pancreas trouble...He finally agreed to do a sig at the beginning of my cycle and I told him he needed to LOOK for endo and forget what his opinion was and to leave his ego at the door...He was more than rough during the sig and made a comment to the nurse that many woman with Crohn's are complaining about exaserbations during their cycle...My opinion is that some is linked to diet, woman tend to increase their dairy and chocolate intake that time of month and that is certainly a known cause esp. with those with delayed food allergies, like myself...
 
I then ended up hospitalized with a systemic infection from the sig and almost died form it along with the added abx they treated it with...Levaquin destroyed my body while I was fighting the infection...
 
My biopsies always show inflammation cause my doc always writes "I favor Crohn's" when he sends the biopsies off for pathology but the pathologist never concurs...
 
Funny, you brought this up today...I began my cycle Tuesday and it is frightening allready to have both at the same time...It is now like vaginal blood coming from the rectum...My new proctologist realized right away that endo could be the cause and wants to do a scope on the exact day it starts but I have been researching this long and came up with my own things I wished to try...
 
I am having my hormones tested, finally, only waited 8 years (my docs wouldn't order them, they didn't think there was a connection) Also will be tested for copper and prostaglandins, all 3 can be associated with rectal bleeding and copper load can be the cause of UC, which may be in my case...The cycle then increases the estrogen which in turn increases the copper to toxic levels and will bring about the initial bleed, which in my case is the rectum...High levels of copper increase prostaglandins which are at their highest during the start of the cycle...Have I lost you yet? It makes such sense yet my old docs knew none of this nor cared to...I found my 3 new docs and I just keep asking for tests and am coming to my own conclusion...I will avoid future invasive tests until I know what they should be looking for...
 
Now I am in the process of finding the best surgeon that deals with bowel endo, one in Maine (where I am) and one in PA...
 
Btw, copper levels can increase when eating milk, nuts, chocolate, beer, water...
 
Things that make you go HMMMMMMM....I no longer trust the medical profession as a whole and since I have been able to do continued research and testing as I see fit I now only suffer from rectal bleeding and have likely eradicated all the other issues such as arthritis, fibromyalgia, chronic fatigue, raynauds, etc...all known auto-immune diseases are now gone just with dietary changes...Now if I can conquer this rectal bleeding issue once and for all...I am no longer falling for the diagnosis of UC, Crohn's or the more recent Crohn's colitis...I will get to the bottom of it tongue Hope you do too!
 
Can't wait to see what others have to say but as far as I can tell when I google this topic, there is not much to learn from, you basically have to dig around and turn into Sherlock Holmes to find something that 'clicks'...
 
I just saw you had seasonal and milk allergies, should raise a red flag for you also...This is likely a histmaine reaction but from  what??? I am nearly outta my mind trying to figure this out for myself...I did begin LDN two weeks ago, it is known to eliminate endo as well as Crohn's inflammation...Hope it's my magic pill...If nothing else it is boosting my immune system and alleviating all the other things I listed above...Hope you find the answers for you...
 
Wish you well~MamaDove

LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 7/3/2008 1:37 PM (GMT -7)   
I get it too but just once in awhile. It doesn't happen every cycle. My periods are also horrible when my Crohn's
is flared which my GI doctor would probably happen. :-(
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS too
 
Meds I have tried:  Just about everything 
Meds currently on:  Prednisone 25mg tapering
                           Methotrexate injection 12wks
                           Folic Acid
                           Wellbutrin
No Surgeries
 


Lady G
Regular Member


Date Joined Sep 2006
Total Posts : 321
   Posted 7/3/2008 3:26 PM (GMT -7)   
I get that too when I am not on flares, every once in awhile on my cycle I will go and notice blood there...not all the time..and I am one of those girls with HORRIBLE painful cycles..not sure if something is linked there, not sure.
27 year old, married. Diagnosed with Crohns at 17, suspected of having for at least a year or so before that.  Alot of Crohns in my family history.  No surgeries yet. Taking Imuran.


want_2_be_well
Regular Member


Date Joined Sep 2006
Total Posts : 181
   Posted 7/7/2008 7:53 PM (GMT -7)   
Thanks for the replies ladies, interesting comments mama dove. The GI wants do the colonoscopy to check for endometriosis. Will have to let you all know what happens if I can ever get the timing of the scope and the cycle to work out.
want_2_be_well AKA Mel
32 year old Female
Diagnosed with CD 2006, had been ill off and on for over 10 years.
Also have seasonal allergies, milk allergy, and asthma.
CD Meds: Remicade every 8 weeks, Imuran 50 mg, Pentasa
 
 


CrohnieYogi
Regular Member


Date Joined Oct 2006
Total Posts : 367
   Posted 7/8/2008 5:36 PM (GMT -7)   
Going on the pill has pros and cons. for me the pros outweighed the cons. i've gone off for now--trying to get preg. Good luck finding answers.

broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 7/8/2008 7:15 PM (GMT -7)   
Horrific cycles here since the Crohn's. Can't say I have noticed blood in the stool during the cycle, however, there was a time prior to my resect that I never knew where the blood was coming from. I was also having urinary/kidney issues as well. Cycles never were this bad before my dx. Now, the Imuran is screwing with my hormones and I have 2-3 periods a month or none at all. I am not a canidate for birth control pills so I continue to sweat through this "time of life" for me.

I will mention however, if you can find a pharmacy that does compounding some of them do have saliva tests available to test hormonal levels. There has been some debate how effective the saliva tests are. I have not known one woman who said that after being tested and starting proper treatment to adjust their levels who said they did not feel better. Some have not been able to get their doctors to right a script for the test and therefore out of frustration they paid out of pocket for it and took the results to their doctors. Just another option out there if anyone is interested.
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.

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