Hi everybody, as usually always around reading your posts and admiring the wisdom! Have a question......Since my resection in Feb. have been doing really well. Quite normal bm and very little D. Joint pain a bit, but nothing to stop me. I have stayed on Pentasa 500mg x 2 a day as maintenace.
about a month ago, I was under alot of stress and sadness when our close friends daughter was killed in a car crash. So horrible and to make it worse my husband was first on scene (firefighter) and was working on her. Unbearable sadness. Then a few other family issues came up weeks later and I think put me over the edge..my poor body is not used to all of this as I try very hard to avoid stress but as we know life hands us situations that are completely unavoidable.
I started to have painful D and then constipation? bloated etc. Then I noticed that when I did have small bm's that the stool is very skinny again. I phoned my GI and he said to up my dose of pentasa to 4 pills a day and call him in a week. Well I decided to self medicate myself a bit and I also started entocort 3mg a day also. We were leaving on a trip to Alberta in a week and I wanted to try and stop any inflammation sooner the better.
Well it has been 2 weeks, we are home from our trip and I have kept taking the same meds. I feel a bit better, no D but my stools are still skinny and not much comes out. I also suffered with a bad cold, extremely sore throat no voice (kids enjoyed that!!) the whole time of vacation. So I can tell my whole system is out of sorts.
I have a call into the GI and should hear back from him on monday. I was wondering what you veterans would do if you were me, as far as meds go? Nanners you said you put yourself on a 10 day program of prednisone? How are you by the way? Would something like that be a good option for me? or higher dose of entocort? I really don't want to go on prednisone at all, but I really want to get rid of this inflammation going on before it causes any scarring. I was doing so well since surgery.
I really trust and respect my GI and am anxious to see what he suggests, but I wanted some insight from all of you before I talk to him.
40 yr old wife and mom to two boys 8 & 10
symptoms since the age of 19
officially diagnosed with crohn's Feb/2006
meds: pentasa 500mg x 2/day,probiotic,fibre supplement,mult-vit
glucosamine & msm
resection surgery Feb.11/2008