Hi! I hope everyone is doing well. It's been a long time since I've posted, but I was so sick this winter and spring, that I didn't even have energy to turn on my computer. I have been flaring up now for over one year. I transitioned from pediatric to adult care, and adult care absolutely sucks. The only thing the doctors want to do is give me prednisone, which doesn't work for me. I have disease in my colon, so I have been losing blood from my GI tract for over a year. Over the winter my hemoglobin was around a high 7 to a low 8. I was exhausted. Finally I went to see a hematologist, and he gave me iron infusions since the GI doctors wouldn't do anything. My hemoglobin reached a 12, and I am on the way back down again. The hematologist said we could set up maintenance infusions, which I think I am going to have to do.
Because of all my medical appointments and hospitalizations, I had to withdraw from all but one class in college. I decided to keep one class that was unrelated to my major just so I could have something to do, and have a chance to be around people rather than sitting at home by myself. I missed a lot of class and I don't think my memory was working normally because of the IBD and anemia. I ended up earning a C- in the class. This gave me a GPA of 1.75, since I had just transferred to the university that winter, and this is the only grade I have there. I have to have a GPA of 2.00 to be in good academic standing, so now I am on academic probation. Maybe if I had been thinking clearly, I would have realized that keeping even that one class might be a bad idea, but I had to push myself and try. Since I am on academic probation I get no financial aid and I have to go to these stupid meetings with an "academic retention specialist." I feel like such a loser. I probably shouldn't have taken even one class, but then I would be so lonely at home, and probably die of boredom. The only thing I have learned from this is that i will never do anything again unless i am sure i will be successful.
I hate that I have to waste my time and what little energy i have going to these meetings with an academic retention specialist because my problem isn't academic, it's medical. I am going into my fourth year of college, and my GPA has always been above a 3.00. I don't have issues with time management, studying, test taking, partying, etc. I guess I am really frustrated and angry, especially at the doctors since they are the ones that have the power to fix me but just don't care. Anyway, thanks for listening.
"Of one thing I am certain, the body is not the measure of healing - peace is the measure. ~George Melton~"
Current Meds include:Sulfasalazine and Zofran. With a new doctor, forced to retry all the meds that haven't worked in the past :(