I have had both Episcleritis and Scleritis. Mine started a little over a year ago, with Episcleritis in both eyes. I tried several drops--Tobradex, Fluromethalone, Prednisolone--and they would help, but then a few months ago, my left eye got really bad and the doctor said it was now Scleritis.
I am currently on Prednisone and Methotrexate, to help with the inflammation. I also am using Acular eye drops for the pain, as needed.
My heart goes out to you because both conditions are very painful and even when mine seemed to be going away, it always came back. In fact, after having Episcleritis for about 6 months, I went to see my Internist and she immediately suspected Crohn's. I was just diagnosed a few weeks ago (long story).
I have noticed a link now to my eyes and my stomach issues. Before I had even heard of Crohn's, I remember last summer, when both my eyes were bad, having bad stomach problems, but I always thought it was something I ate or a nerves, etc.
Please keep us posted and please feel free to ask me anything.
Now this is all making sense to me !
Can you tell me who dx your eye issues...
I only had an optomitrist give me some kind of dx ; but he didn't know much about it because what he told me to do was making me worse ..then I saw a cataract specialist that is in the area where I work - he said it is strojens disease - but would not say it in writing or be definite about it ...but got me started on a steroid drop and lacerites. ( I finished with them about a month to 6 weeks ago )
Meanwhile I have had 3 infusions of remicade - and I didn't think it was working ..but my eyes have gotten better ...I still have to put the drops in each night and day or they will get bad again ...but I am not needing the $150 per month med ( thats with ins! ) that he prescribed as a forever drop !
So...maybe they have really gotten better because of the Remicade ??? !
Well, I see a NEW GI next week ...hopefully he will know more of this disease then the other ?@$% that I was / am seeing ... I have been so patient with him and his office but just can't do it anymore ...they are simply incompetent .. and trust me I don't curse !! At all ! But this was easy to use those symbols to express my feelings
After 10 Remicade infusions, I'm finally on top of mine for now. I had to have a top specialist from Baskin Palmer Eye Institute in Miami lead me through the treatment after having my local Opthamologist plus a Retina Specialist give up. She said for treating the eye, Remicade should be given every 4 weeks for best results. After two retina detachments and going down to 20/400, mine is much better. But all the Prednisone I took this last 1 1/2 years really advanced a cataract I was growing. The cataract was removed June 5, and now my eyesight is 20/30 in the bad eye. I still watch my eyes like a hawk. If I get a "sinis" headache, like I thought the original pain was, I take a single dose of 50 mg of Pred instead of any pain killer. It works. I don't want it to get ahead of me again.
This was the worst 1 1/2 years of my life anticipating blindness.