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Jade523
New Member


Date Joined Mar 2004
Total Posts : 8
   Posted 7/9/2008 2:58 PM (GMT -7)   
Ok, so I'm now facing my 1st surgery due to crohn's. sad
I'll be having a colon resection at the end of the month and was wondering if anyone had any advice on what to expect.
 
Thanks
Jade
 
 
Diagnosed Dec '03
taking Pentasa (1g 4xday)


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 7/9/2008 3:38 PM (GMT -7)   
Hi Jade I had resection in Jan. I am hoping that you like me will feel better when you have had it done. I had a epidermal in when they put me to sleep and had very little pain only one tylenol after they removed that after day 3 and that didn't hurt. It may take a few days to pass air after that a person can eat . I did have a nasal tube which caused me to have a itchy nose because they tapped it in place. I was up and walking soon after surgery and got some rest. Walking is good once you start it. Ensure helped me get some strength back and loved the boost ,I liked going to the kitchenette for snacks. I had a Aunt who visited and that was great support and helped me get threw it as I was a couple of hours from home. My teen came up to and it is great to get some family help. 22 staples and did get infected after surgery but cleared up good with antibotics and yes the incision closed up nicely too. I say that because I am prone to fistula"s .lol gail

meshice
Veteran Member


Date Joined Jan 2003
Total Posts : 734
   Posted 7/11/2008 11:29 AM (GMT -7)   
Resection saved my life! I too had the nasal tube (TG Tube). Not really painful, just agrivating. It sucks everything off your stomach so you don't get sick and throw up. It goes into your nose, down your throat and into your stomach. They put mine in while I was asleep so it was no big deal. The main thing from it was it made my throat sore when I talked. I had a Morphine pump for pain. It works, but the Morphine made me have wild dreams. Walking is good, but don't over do (especially once you are home.

The best thing that helped me was a "gift" from the nurses. They took a towel and folded it up and then put it into a pillowcase and wraped the extra around the towel to make a small pillow. It helped to put pressure on my stomach when I was getting up and down. I did not go anywhere without my pillow.

Start out slow with foods after surgery and don't go nuts with eating lots or crazy foods.

Good luck!
"We can't beat this disease, YET, but we can't let it beat us!"
Mandy

"Do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own." Matthew 6:34


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 7/11/2008 12:11 PM (GMT -7)   
I didn't have the nasal tube. My surgery was mostly laproscopic except they had to make a larger incision to get the "guts" out. The first time you stand up is weird. My nurse advised me to give myself a shot of morphine before I got up, it helped a lot with the fear. I was afraid to stand up because I thought it would hurt but it wasn't bad at all. My stomach felt like I had done about 500 sit ups the day before. Sore but not bad.

Mandy's suggestion about the pillow is great, you can get a small travel pillow for this purpose. This pillow will come in handy when you wear your seatbelt on the way home from the hospital.

I brought some "pillow spray" because I can't stand the hospital smells. A drop of essential oil on a cotton ball will also help if you don't like the smells.

Hospitals seem to come alive at night after visiting hours. It's easy to start sleeping days and staying up at night because of the activity and noise. I recommend some ear plugs or an MP3 player with ear buds.

Everyone is concerned about your intestines waking up but they give you morphine which slows you down. I stopped the morhine as soon as I could so things would get moving again. I don't recommend stopping it if you are in pain, but if your pain is mild talk to your doctor. I found that I was in a lot more pain when I went home than when I was in the hospital. I was overdoing it.

If you have to climb stairs at home, find some in the hospital before you are released. Make sure you can climb steps before you go home.

The thing that surprised me the most was how tired I was when I got home. I needed an afternoon nap for about 6 weeks after my surgery.

I hope this helps!

Dagger

Having grownups asking about my farts and later, my poop was a little weird.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/11/2008 12:25 PM (GMT -7)   
I have had two resections myself. I had the NG tube for both. Not terrible, just in the way. Are you having a laproscopic surgery or open surgery? I had to have open on both. Do ask for the pain pump. That way you can give yourself pain meds as needed, instead of having to wait for the nurse. Don't be a martyr, use them if you are in pain. Try to walk as much as you can, that helps to wake the bowels up. They were also bringing me food I wasn't quite ready for, so try to eat light for a bit before adding the heavier stuff. Alot of folks also recommend bringing your own pillow and pj's (use the hospital gowns for the first few days). I had a catheder also when I woke up, but they took that out a day or two after surgery. Also folks said that they took in portable DVD players so they could watch something other than TV. And lastly but not least, remember this is major surgery (if even done lap) and to take your time and rest and recuperate at home. Oh, and you will have some explosive D afterwards, its normal, it almost always settles down after your bowels get adjusted to the change.

I pray this brings you a long long remission. Good luck and keep us posted on how your recovery goes.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 7/11/2008 6:42 PM (GMT -7)   
Hi Jade,
You have already been given great advice. Just wanted to add that the pillow on the tummy to get out of bed is a must, and walking as soon as you can is also a must. Dont be afraid to use the painkillers as often as they are offered, as this helped to speed up my recovery and get me home quicker. Good luck and keep us posted. Joanne

ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 7/11/2008 8:45 PM (GMT -7)   
Jade - I had a resection in April. It was like Dagger's - mostly laparoscopic, but with about a 3 inch incision to get the bowel out. I didn't get a pain pump, but I never really experienced much pain. I didn't have an NG tube. The catheter came out the first day after surgery. The IV stayed in until just before I was discharged (post-op day 3). In addition to bringing ear plugs, I recommend you bring those eye patch thingies so you can sleep without being bothered by the lights. The explosive D Nanners mentioned caused me the most problems, once I got home. You might want to stick to a bland diet for a few weeks - rice, baked potato, yogurt, saltines, cheese, chicken noodle soup.... It took awhile, but I found a combination of meds to help with the D - 1/2 package of Questran powder (to bind the bile salts that would normally be absorbed by the portion of terminal ileum that was removed) every morning and a Fibercon pill, 3x/day. I took Imodium 1/2 hour before eating for awhile, and then decreased that to 1/2 an Imodium, but eventually switched over to the Questran. The D was pretty irritating to the tush. To help with that, I took a sitz bath after each BM and applied ointment like Desitan or Aquaphor. I went back to work in 5 weeks. Good luck and keep us posted.
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08.


Jade523
New Member


Date Joined Mar 2004
Total Posts : 8
   Posted 7/15/2008 10:26 AM (GMT -7)   

Thanks for the advice everyone!

The surgeon already advised this would not be done laproscopically and I would have a pain pump.he also said he'd have me out of bed the next day doing laps! I sooo don't like the sound of this....

 


Diagnosed Dec '03
taking Pentasa (1g 4xday)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/15/2008 11:33 AM (GMT -7)   
Don't worry they won't have you doing alot of laps, but will have you try to walk a little. Just take your time and do the best you can. But walking is very important to help the bowels wake up and to start passing gas.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 7/15/2008 12:14 PM (GMT -7)   
Ditto all the above, but like Nanners says walking is going to be your best friend when it comes to getting things moving....

I wish you the best of luck!!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 7/15/2008 1:52 PM (GMT -7)   
I have not had surgery but I wanted to wish you luck.
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort Switching to Humira June 2008 will wean off Pentasa and Entocort

Diagnosed w/  Fibromyalgia May 2007 also on Soma - Also on Prilosec for reflux.

 

 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 7/15/2008 3:32 PM (GMT -7)   
Hi Relax and don't worry , the days go by pretty fast. I did alot of reading when I was in .You"ll do great. lol gail

nruth
Regular Member


Date Joined Mar 2006
Total Posts : 195
   Posted 7/15/2008 8:43 PM (GMT -7)   
Try not to puke. I had a bad reaction to medication and wound up having to throw-up several times a few days after surgery. It was beyond awful.

kronstoolong
Regular Member


Date Joined Mar 2006
Total Posts : 366
   Posted 7/16/2008 2:25 AM (GMT -7)   
I had a resection in 2006. To be perfectly honest...it was tough. Mine was lap. so your experience will be different. Why can't you do it laporoscopically? That seems to be easier if it is possible. I know sometimes it is not. I was in the hospital for 5 days. A little longer that usual but I did have some complications. I did walk the next day. It was scary but you'll get through. As you get up, you do feel like your tummy weighs a ton. You'll feel like you won't be able to do it. I felt like I was being taking to the edge of my ability, but then all of a sudden I was up. For some reason I began throwing up on my second day. I could not stop. I threw up so much that my tounge, throat and roof of my mouth was stripped of their first layer. My potassium became very low. My veins could not handle the postassium, so my first meal was three bananas that they made me eat extremely rapidly. Just take things easy. Don't be afraid to push yourself a little, but definitely don't overdo it. Listen to your body. Keep all the good and bad stuff people here are telling you, and believe you are going to be healed. I'll keep you in my prayers.
Dawn
 
32 Years Old
Diagnosed with Crohn's Disease at age 17.
Diagnosed with RA or severe joint inflammation due to CD.
Hypothyroid, GERD.
 
Currently taking Leucovorin, Levoxyl,  Lyrica, Methotrexate, Vitamin D - 50,000 IU per week, Vitamin B12 injections, Lunesta and Vicodin or Percocet as needed.
 

“God Loves People More Than Anything.”


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 7/16/2008 10:11 AM (GMT -7)   
My surgery was 2 years ago. Everybodies advice is great. Walking is good. For comfort I had my husband brought me a pillow from home. Even though I had a full incision I didn't need the NG tube, but because I had to have my bladder repaired I did have a foley cathider and even had to bring it home with me.
Vicky / 48 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (27) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


ashcroft3
New Member


Date Joined Mar 2009
Total Posts : 1
   Posted 3/21/2009 10:00 PM (GMT -7)   
I've been diagnosed with a fistula adjoining my colon and bladder. Is a large incision the only way to repair this or is there doctors that can do this with the scope?
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