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keepingthefaith
Regular Member


Date Joined Aug 2006
Total Posts : 331
   Posted 7/12/2008 5:28 PM (GMT -7)   
What do you all do to cope with fatigue?  I'm so tired all the time & no motivation.  I just had cervical neck fusion & the pain meds(vicodin) gives me energy.  I have taken it for almost 3 years due to all the body aches & neck pain.  We are now going to try & decrease & get me off the pain meds.  My anxiety goes through the roof when I don't have the meds, cuz thats what gives me the energy to do things.  Does that mean I'm addicted to them?  Or is it side effects of getting off the meds.  I still have pain so yes I still need them, & I'm going to physical therapy to decrease the pain.  What do you guys think?  Thanks. 
Dx with CD 1987, 3 colon resections, 3 rectal abcess sx, anterior cervical neck fusion 6/2008. Major depression/anxiety, kidney stones & sx to remove, now 45 yrs old.  Still trying to figure this disease out & of course all the little extra complications that come with this rollarcoaster of a life with CD. Meds:Humira 40mg every other wk, Imuran .75 daily, welchol 625 x 3 daily, cymbalta 60 mg daily, lithium 1 tsp 2x/day, fish oil, vit e,folic acid,Vit B12,inject monthly, Oscal w/Vit D, vicodin 4-5 daily 5/325
 
         
 
 


jenngrl81
Regular Member


Date Joined Oct 2007
Total Posts : 208
   Posted 7/12/2008 7:47 PM (GMT -7)   
Three years ago, I had a bi-level, lumbar spinal fusion, so I can honestly say I feel your pain. I was on percocet for that and its the only thing that helps when I have some back pain now. Perc is also the only thing that touches my Crohn's pain. I understand the meds giving you energy, they do because you are mostly free of pain. Hopefully if you cut back on the meds, so when you do have to take them, they'll have a better affect. I built up such a tolerance to percocet during my back surgery recovery that after 3 months they had to switch me to something else to prevent liver damage. Just because you physically need pain meds to function, does not mean you are psychologically addicted to them. That's obviously something you would have to talk about with your doc, but I know there's a few threads that have been posted about "dependency" to pain meds. Good luck, we're here for ya!
Pentasa- 1000mg/2x 1/08; Percocet
Ultram ER 200mg; Prilosec 40mg; Xanax-ANXIETY; Cymbalta 60mg
Entocort 9mg
Probiotic
Ferrous Sulfate 325mg/daily for anemia
Azathioprine 150mg
Currently on a Low-residue diet as of 11/26

I'm so tired, when will this get better?


JP1
New Member


Date Joined Dec 2005
Total Posts : 9
   Posted 7/12/2008 7:50 PM (GMT -7)   
I'm having problems with fatigue as well. Not quite sure how to fix the problem. Have tried anti-depressants, felt horrible on Provigil, it's difficult to exercise when it hurts so bad, etc. Hoping they'll come up with something soon that helps more. I know it can always be worse but I sure would love some relief. I hope you're feeling better soon. Hang in there.
"They that sow in tears shall reap in joy.” Psalms 126:5


“And inasmuch as it is appointed unto men once to die, and after this (cometh) judgment.” Hebrews 9:27


Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 7/13/2008 6:00 AM (GMT -7)   
I am starting to think it is the Humira, for some reason alot of people on Humira, such as myself are tired, foggy and no energy. I just saw my GI and told him I am tired all the time. Being on Pred 25mg isnt helping much either.
Tough times don't last long, tough people do!
 
Crohn's 30 years
dx 15 years
2 resections
Humira
Prednisone


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 7/13/2008 7:33 AM (GMT -7)   
I am constantly exhausted
My pain meds dont give me any energy whatsover.....
Wish they did

I plan on talking to my doc about this this week in fact
I am not use to being a lay about

I go to the grocery store and my energy is gone for the rest of day ............

I wish us all a better time with this .......LYN
  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
                                    Donate at  www.healingwell.com
 
Moderator @ Alzheimer's,Co Mod @ Anxiety/ Panic,Co Mod @ Crohns 
 
                                    FIGHT the FIGHT with all YOU HAVE
               Look For The GOOD,Even At Your Lowest
 
     Listen To Your Heart,Look Inside Yourself,Understand You
 
 
 
                    


mmckenna
Veteran Member


Date Joined Jan 2006
Total Posts : 725
   Posted 7/13/2008 11:09 AM (GMT -7)   
Don't overlook the drugs you are already on as being the cause for the exhaustion/lack of energy. I see you are on Imuran. I'm on 6mp, which is a close family member of it. When I first went on 6mp, I was at a dose of 100mg a day. It completely wiped me out to the point that I couldn't function. I slept probably 15 hours a day, and was still wiped out. Since when I went on it I had just come out of the hospital and was only on Remicade as my other drug, I didn't know what the cause was. I don't know how I discovered it, whether it was info from here or what, but I suspected the 6mp. I had to convince my GI to let me lower the dose of the 6mp and see what happened. I dropped it to 50mg a day and have been fine ever since. I don't have any problem with the Remicade, and the vicodin I am on occasionally does cause some sleeping issues.
Maybe check with your doctor and see if adjusting your medication levels around a bit is a possibility. I hope you find a solution soon.
Matthew McKenna,

Remicade, 6MP and a few of their friends.

"I'm just along for the ride."


keepingthefaith
Regular Member


Date Joined Aug 2006
Total Posts : 331
   Posted 7/14/2008 7:39 PM (GMT -7)   
Thanks again for the replies!  I know the Humira made me very achey & tired initially.  Maybe, its that, imuran or one of my biggest problem which is Stress from stepchildren (teenage & 21 girls).  Right now I really feel its anxiety & stress from many different factors.  I'm KeepingtheFaith!

Dx with CD 1987, 3 colon resections, 3 rectal abcess sx, anterior cervical neck fusion 6/2008. Major depression/anxiety, kidney stones & sx to remove, now 45 yrs old.  Still trying to figure this disease out & of course all the little extra complications that come with this rollarcoaster of a life with CD. Meds:Humira 40mg every other wk, Imuran .75 daily, welchol 625 x 3 daily, cymbalta 60 mg daily, fish oil, vit e,folic acid,Vit B12,inject monthly, Oscal w/Vit D, vicodin 4-5 daily 5/325
 
         
 
 

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