I am newly diagnosed... as of May 2008. It has been five years that i have been living with Crohn's without being diagnosed. I went from 160 pounds to 120 over the course of one year. I was hospitalized and released with anorexia at the age of 21. Also i was led to believe i might have had hiv/aids for one week. A few months after that... i went to a new set of doctors. One sent me to another then to another.... six total. Dismissed me without a diagnosis. I felt crazy, but i was too tired to bother caring about
anything. Meanwhile, i was in and out of college at the time. I went to one more doctor. Dr. T, an internist. He ran some more tests ... then in his office he told me to stop wasting the medical field's time, making me feel all kinds of insane. Very bad doctor. After that i did my own research, and i thought I had celiac disease, some of same symptoms, abdominal pain, bloating, gas, decreased appetite, diarrhea, nausea and vomiting, stools that float, foul smelling gas, unexplained weight loss... So, for two years i did not eat any wheat, oats, are barley. I got better, i think placebo effect. The power of the mind is overwhelming! But still i was sick... I had two fistulas removed and I asked the doctor who removed them why i was getting these and he said "oh, it happens to some people." I was 23 and 24 when i got them. I did my own research on wikipedia... and found it's not normal for people to just have fistulas.
I researched the best doctor's where i live, and I had to fight my way into his office and waited for three months for an appointment. He diagnosed me in two weeks. He takes his time with you and looks at the whole body, so nice. My colonoscopy confirmed the Crohn's and some damage along the way. No surgery! I am now healthier than i have been since i was a teenager.
I am now on a of cocktail drugs. Pentasa, eight a day. Entocort, 3 (side affects severe insomnia and mood swings, one time a week i would go crazy--- not myself a wacky moment only two or three nights out of one month). Now i take two Entocort and no side affects. I take Clonazepam up to 5mg at night to sleep. Prilosec to help with ulcers, no side affects. Iron three times a day... my levels are rising started at 6 now at 9, goal 20. My own pills that i take are Probiotic, Multi Vitamin, Super Enzymes, Omega 3, Kombucha(Drink). I just starting taking 6mp at 50mg... two weeks ago, at first i was so physically drained from the insomnia, i was walking down the hall at work one day and fell, my legs gave out. I went home early and slept for 16 hr's that day and 10 hr at night for a few days. Now, i am back to normal. But i am developing a heat rash or something...
Over the course of my experience with this disease i have developed a hydrocodone habit... Doctor prescribed.
My soul is having this experience in my body,,, what can i learn from this?
This is my story... still evolving.
Look up Louise L. Hay her book and dvd are helping me!
And don't give up, the medical field has its place and can be great... but i have faith that you can heal your life.
Doctors are people just like you and me... they can get it wrong
Post Edited By Moderator (Ides) : 7/12/2008 9:11:41 PM (GMT-6)